Angela King, Kate Boddy, Beccy Summers, Kristin Liabo, Naomi Morley, Annie Hawton
Leon Farmer, Phil Ruthen, Diana Frost, Lynn Tatnell
Please note: All times are an indicative only. We will start and finish on time and will ensure each session will be followed with a break. However, exact timings may change slightly to give room to discussion.
10:00 - 11:00
Welcome & settling in
Ice breaking exercise, get people speaking
What is involvement? And why do we do it?
Breakout room activity, followed by discussion
11:00 - 11:15
Break
11:15 - 12:15
When to involve?
Values and practicalities in PPI
Breakout room activity, followed by discussion
12:15 - 12:45
Lunch
12:45 - 13:45
What does ‘good’ look like?
Values and standards
Breakout room activity, followed by discussion
13:45 - 14:00
Break
14:00 - 15:00
Examples of ‘good’ practice: in this session, we will hear from 3 groups of guest speakers about their journey to working collaboratively
15:00 - 15:15
Break
15:15 - 16:00
Co-production
Breakout room activity, followed by discussion
16:00 - 16:15
Closing comments, final questions
General:
Public involvement in research: making sense of the diversity. Oliver et al (2015)
Clarifying the Roles of Patients in Research. Liabo et al. (2018)
Public involvement in health research: what does ‘good’ look like in practice? Liabo et al. (2020)
Relation between agendas of the research community and the research consumer. Tallon et al (2000)
PenARC PPI Team resources: https://arc-swp.nihr.ac.uk/patient-public-involvement-engagement/resources/
NIHR INVOLVE resources: https://www.invo.org.uk/resource-centre/resource-for-researchers/
PPI standards:
Values and Value in Patient and Public Involvement: Moving Beyond the Methods. Laidlaw and Hollick (2022)
UK Standards for Public Involvement (UK Standards for Public Involvement (scot.nhs.uk)) Public Involvement Impact Assessment Framework (PiiAF)
Co-production:
The use of co-production, co-design and co-creation to mobilise knowledge in the management of health conditions: a systematic review. Grindell et al. (2022)
Embedding research codesign knowledge and practice: Learnings from researchers in a new research institute in Australia. Javanparast et al. (2022)
Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers. Small et al (2021)
User engagement mechanisms of online co-design service: Does user innovativeness matter? Windasari et al (2019)
Co-production Collective: https://www.coproductioncollective.co.uk/ Think Local Act Personal: https://www.thinklocalactpersonal.org.uk/
Tools for Improvement – Co-producing services – Co-producing health: https://pdf4pro.com/amp/view/co-producing-services-co-creating-health-30be8.html
NIHR- Guidance on co-producing a research project: https://www.invo.org.uk/wp-content/uploads/2019/04/Copro_Guidance_Feb19.pdf
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Beginning of the session
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