Privacy Notice for Research Participants
This Privacy Notice provides information on how Oxford Brookes University (Oxford Brookes) collects and uses participant’s personal information when you take part in one of our research projects. Please refer to the research Participant Information Sheet for further details about the study and what information will be collected about you and how it will be used.
Oxford Brookes is the Data Controller of any data that you supply for this research. This means that we are responsible for looking after your information and using it lawfully. We will make the decisions on how your data is used and for what reasons.
Why do we need your data?
We are conducting a research project to understand how to raise awareness of the links between alcohol and breast cancer and to understand how to help women aged 40-65 reduce alcohol consumption if they want to.
We are inviting people who take part in our survey to leave an email address if they wish to be contacted with further information about the next stages of the research – a focus group and a workshop. This is also optional and you do not have to leave your email address. If you do leave your email address then we will send you information about the next steps but you are under no obligation to take part.
Oxford Brookes’ legal basis for collecting this data is:
· Public task: your Personal Data will be used in academic research. Oxford Brookes University is a public body and staff and students carry out research in line with the University’s legal powers and constitution.
Your consent is an ethical requirement.
Oxford Brookes University’s legal basis for processing your Personal Data (or information) is as set out in Art 6 UK GDPR.
What type of personal data will Oxford Brookes use?
Alongside the anonymous survey questions, we are asking for your email address if you want to hear about the next stages of the research.
Who will Oxford Brookes share your data with?
No one.
Will Oxford Brookes transfer my data outside of the UK?
We will use Qualtrics to collect your data. Qualtrics may store data outside of the UK. You can read their privacy notice here https://www.qualtrics.com/privacy-statement/
In the short term, data will be stored on Google Drive, which the University has a contract with. Google may store data outside of the UK. Information on Google can be found here: https://workspace.google.com/security/?secure-by-design_activeEl=data-centers.
What rights do I have regarding my data that Oxford Brookes holds?
· You have the right to be informed about what data will be collected and how this will be used
· You have the right of access to your data
· You have the right to correct data if it is wrong
· You have the right to ask for your data to be deleted
· You have the right to restrict use of the data we hold about you
· You have the right to data portability
· You have the right to object to Oxford Brookes using your data
· You have rights in relation to using your data in automated decision making and profiling.
Your rights will depend on the legal ground used to process your data
Where did Oxford Brookes source my data from?
From yourself.
Are there any consequences of not providing the requested data?
There are no consequences of not providing data for this research. It is purely voluntary. If you like to withdraw part way through the research, the Participant Information Sheet includes this information. It may be that some of the data that you have provided has already been used in the research. If you would like more information about this, you should feel free to contact the research team.
Will there be any automated decision making using my data?
There will be no use of automated decision making in scope of UK Data Protection and Privacy legislation.
How long will Oxford Brookes keep your data?
If you leave your email address in order to be contacted for the next stages of the project then your details will be deleted at the end of the project (February 2024).
Who can I contact if I have concerns?
In the event of any questions about the research study, please contact the research team in the first instance. Their contact details are listed on the Participant Information Sheet. If you have any concerns about the way in which the study has been conducted, please contact the Chair of the University Research Ethics Committee at ethics@brookes.ac.uk. For further details about information use contact the Information Security Management team on info.sec@brookes.ac.uk or the Data Protection Officer at brookesdpo@brookes.ac.uk. You can also contact the Information Commissioner’s Office via their website ico.org.uk.