resources

Handouts and educational materials for families and teachers

Noonan syndrome

This children's book tells the story about the daily life of a fictional character with Noonan syndrome

This handout/brochure provides information on speaking with children about their diagnosis of Noonan syndrome

This teacher guide provides information on attention and executive function development in children with Noonan syndrome. It may be especially helpful for teachers and other educational professionals working with Noonan syndrome who have been diagnosed with ADHD or executive function challenges

This is a version of the guide for teachers translated into Spanish


cardiofaciocutaneous syndrome

This handout provides information about research on behavioral concerns in children and adolescents with CFC syndrome