Educational Materials

Educational handouts and materials about RASopathy syndromes:

Noonan syndrome:

TALKING WITH YOUR CHILD ABOUT NOONAN SYNDROME: A GUIDE FOR CAREGIVERS

This handout/brochure provides information on speaking with children about their diagnosis of Noonan syndrome

ANNA'S BIG WEEK: A STORY ABOUT LIVING WITH NOONAN SYNDROME

This children's book tells the story about the daily life of a fictional character with Noonan syndrome.


Cardiofaciocutaneous syndrome:

BEHAVIOR IN CHILDREN WITH CFC SYNDROME

This handout provides information about research on behavioral concerns in children and adolescents with CFC syndrome