Other Current Opportunities

• The CNDR is a national research project that aims to create a database of people suffering from neuromuscular diseases across Canada. 

• The CNDR database will collect medical information on people suffering from neuromuscular diseases to increase access to research opportunities and to improve the consistency of care across the country. 

• We are currently registering patients with ALS.

• To self-register, please click on this link

Who are we recruiting?

We are recruiting people with Spinal Bulbar Muscular Atrophy (SBMA) also known as Kennedys Disease. 

What is the purpose of the research?

SBMA is a genetic condition causing weakness of muscles in the face and limbs, starting in adulthood. Because it is “X-linked” it generally only affects males, but females who are carriers of the mutation may also develop a milder condition. We believe that female carriers may be more likely to develop symptoms if they have inactivation of one X-chromosome more than the other.

The purpose of this research study is to learn more about the prevalence, clinical features, and genetics of SBMA.

What will participants do?

The duration of this project is 5 years. When you consent to participate in this study, you will be in the study for 2 years:

• We collect clinical information and a DNA sample when you join the study.

• We collect clinical information again after 2 years.