Some examples of being "served" by a system includes going to school (education system), having a therapist (healthcare system), being involved with a DHS caseworker (child welfare system), and more.
Some examples of being "served" by a system includes going to school (education system), having a therapist (healthcare system), being involved with a DHS caseworker (child welfare system), and more.
"Nothing About Us, Without Us" means that young people are sharing that they do not feel heard or meaningfully involved in their own care.Β
This includes not having input on how they are being cared for, goals being set for them instead of with them, and an overall sense of adultism (click to learn more) across all systems.Β
There are "diamonds in the rough" as one youth shared, and, the system itself perpetuates this problem (hence why we're focusing on it πͺ)
"Getting Helped Too Late" means that though a youth did receive the help they needed, it was after they experienced harm.Β
The help was available to them the entire time, but since they didn't know about it, they got the help "too late".
"More Relevant Academic Content" means that young people are feeling the content taught in traditional public schools is not adequately preparing them for adult life
What is being taught lacks "relevancy", or the ability to apply the skills that are being taught to them in real life
Lincoln County - 16 year old - 12/01/25
Required to engage with a counselor; "if it wasnβt for that, I would not be where Iβm at today"
"So receiving the care in the juvenile justice system was a lot of help because I was so lost until they had so much opportunities and the openings that they lend me to become the person I am now."
"From all the help that I have gotten, I donβt think thereβs anything that didnβt work for me."
Linn County - 18 year old - 12/01/25
Oak Creek Correctional Facility
Enjoyed having access to church service
Juvenile Probation
Had a great relationship with Probation Officer Lily Richardson
She was βvery chillβ and βwasnβt really hard on meβ
Great at communicating with guardians
Workcrew
Had a great relationship with Work Crew Program Officer Idahna FreitagΒ
She was βreally understandingβ and βdidnβt hold anything over my headβ
Had lived experience, shared her story which was very helpful
Visited youth when placed at Oak Creek
Provided youth new shoes
Permitted youth to socialize amongst each other as long as work continued to occur
Linn County - 17 year old - 11/13/25
"It kinda helped me a lot on how to stay to myself and avoid problems that dont have anything to do with you"
Linn County - 16 year old - 11/13/25
Benefited from Juvenile Detention in Albany - "they made it feel like home" ; "it felt like a very safe place"
Benefited from "help from Obria and youth for Christ"
"I donβt think there was anything bad about it"
Linn County - 20 year old - 07/03/25
Didnβt like it at first with PO, ended up being helpful
βI wouldnβt be clean if it wasnβt for my POβ
PO was βhardβ on them, which ended up being helpful but isnβt for everyone
Was relieved when no longer being mandated to have a PO, but the structure was helpful and they stay-in-contact to this day
POβs that are strict, while also support with a βkind, helping handβ
PO provided youth $200 Gift Card to Ross for clothing & other necessities
Biggest thing for young people is βthem feeling comfortableβ and the PO βactually trying to help, not just trying to enforce the lawβ
Peer Court could have a lot of potential
Needs to be completely & discernably separate from regular court, cannot feel like the same thing
Linn County - 18 year old - 12/01/25
Oak Creek Correctional Facility
Very strict
Not allowed to look out window, βif they catch you, you get in troubleβ
Required to look at the ground during transitions
Required to respond to staff with βyes sir/maβam, no sir/maβamβ
βIt was not helpful at allβ
Unable to stay connected with trusted peer due to rule prohibiting communication between girls and boys (required to sit at separate tables)
Work Crew
Had harmful relationship with other Work Crew staff
Created and pushed power imbalances / struggles
Wouldnβt allow any socializing between youth engaged in the work
Consistently yelled at youth to get back to work
Linn County - 17 year old - 11/13/25
"Sitting in a room for almost more than 2 hours"
Linn County - 16 year old - 10/09/25
Has been βdealing with cops since 4 years oldβ
Reports that a police officer told them to βnever contact them againβ even when the youthβs parents were trying to kick them out or put hands on them (with witnesses). The same statement was reportedly repeated multiple times.
Feels that police are always accusatory and view them as a negative person
When asking for time to regulate, officers treated them as if they were βplaying the victimβ
Feels targeted due to frequent contact with police, as though officers are βlooking for problemsβ
Linn County - 20 year old - 07/03/25
Receiving warrants for not checking in with PO regardless of reason for absence & circumstances (not experienced by youth, but observed with youth peers)
Idea: Upon first time missing visit with PO, mandated tour or one night stay in corrections rather than prolonged stay
Overly strict POβs
Ability to be βrealβ with PO (telling them what they know they want to hear) as it is risky to be fully authentic
Didnβt know much about own rights while navigating system, lawyer shared rights but didnβt ensure understanding
Very little choice going through court process, its either this (what they want you to do) or that (a threat of a punishment)
Traditional judicial process can cause young people to become disenfranchised, system-wary, and distrustful of the system
Treatment opportunities shared by system offered no natural supports (going from one new, uncomfy setting of corrections to another new, uncomfy setting of treatment)
No access to natural supports when opting for treatment upon exiting corrections setting
Lincoln County - 16 year old - 12/01/25
Felt stressed in attending court
Linn County - 18 year old - 12/01/25
Juvenile Probation
βReally hard to get ahold ofβ
Responses appear to be triaged due to lack of capacity, resulting in delayed communication to youth
Linn County - 16 year old - 10/09/25
Youth emphasized a need for police training on understanding trauma, stress responses, and mental disorders β and how to respond appropriately
Lack of understanding from law enforcement about why people have negative associations with police
Linn County - 20 year old - 07/03/25
Getting connected to a peer support before challenges could have been helpful
Court giving pathway to get connected to peer support
Pathway being available upon system-entry
Finding a balance between mandated & optional supports
Not providing forced choices (Ex: you can either participate in this treatment, or get locked up)
Providing multiple, 3+ opportunities to provide actual choice
Takeaways
Receiving support that is comfortable (has natural supports involved), finding someone that truly cares, and being connected to resources to help is hugely important
Peer support would do all 3 of these things
Overall the system helped in the long run, "but at what cost?"
Lincoln County - 16 year old - 12/01/25
Benefitted from tangible "tips and tricks on how to control my anger and how to manage my mental health"
- Received a case manager "that helped me get my ID helped me get a job and Iβm now working at 16 and the happiest Iβve ever been because I am in the mental health system."
Linn County - 18 year old - 12/17/25
Outpatient Therapy
Was helpful when therapist was βrealβ, βauthenticβ, βdidnβt dehumanize meβ, permitted cussing, and related βlike a friendβ
Tactful accountability ; when a therapist, who has a strong relationship with a youth, will βcall me outβ to take ownership / accountabilityΒ
When experiencing mental health struggles around ideation, was supportive to not move directly towards hospitalization, to provide frequent communication check-ins
Referral system that was school-based (school has the knowledge & connections to refer to school-based & outpatient care)
Linn County - 16 year old - 11/21/25
"It was very helpful to have someone to talk to and be there for me and I think more kids should have that"
Linn County - 22 year old - 11/20/25
Access to therapy when needed
Engaging with the suicide prevention hotline
Assisted in supporting in the moment
Provided the opportunity for young person to be truly heard
Successfully connected young person with follow-up mental health resources
Linn County - 16 year old - 11/13/25
Access to therapy for "talking about my problems"
Linn County - 17 year old - 11/13/25
Accessing care from therapist 1x a week
"It has honestly helped me with communication without yelling along as other things"
Linn County - 16 year old - 11/13/25
"My mental state got better"
Β "I donβt think there was anything bad bout it"
Linn County - 16 year old - 10/09/25
Having support from an advocate in persisting on getting connected to services
Linn County - 15 year old - 06/16/25
Strong connection to current therapist as well as first therapist
βMy therapist has helped me with all of that stuffβ (regarding βWhat Didnβt Workβ in Education)
βWhen someone in that field talks to me like Iβm any other teenager, I feel like less of an outsider"
Linn County - 14 year old - 05/09/25
Having a real, authentic, genuine connection with a therapist that could relate to the experiences
Learning about tangible strategies to navigate derealization & dissociation
Benton County - 17 year old - 04/10/25
Freedom to take walks while in residential mental health care
Always a safe space to go when needed
Having multiple levels of care that coincided with privileges
Had an initial Zoom meeting when entering new program, providing a walk through and introductions to staff
Lincoln County - 16 year old - 12/01/25
Desired "more teen groups or more things for teens to get out the house"
Linn County - 18 year old - 12/17/25
Involuntary Psychiatric Hospitalization
Involuntary Psychiatric Hospitalization
βThey made me feel more crazyβ
Youth consent was not gained prior to hospitalization (due to perceived suicidal ideation from providers, reported & falsified by guardian)
Idea: Would be better to talk to youth first prior to engaging in hospitalization due to reporting from others (Ex: detailed screener for suicide with youth)
Process included police showing up, handcuffing youth, mechanically restrained while enroute to hospital, required to strip all clothing to be provided new attire
Provided no choices while in setting other than meals
Safety Room (room youth was placed in during hospitalization) was βstaleβ, βmade me feel more crazyβ, only had white walls with no color, only metal & hard plastic, and a tiny window that couldnβt be seen out of due to height
Due to lack of activities / stimulation (Ex: couldnβt have cell phone), youth βcounted all the screws in the roomβ and engaged in self-harming behaviors
No toothbrush or other hygiene products provided in 3 days
Outpatient Therapy
Driving with therapists that havenβt built strong relationship (βmade me uncomfortableβ)
Was unhelpful when providers were reserved in their communication and werenβt βrealβ or βauthenticβ ; βtreated me fragile like Iβm glassβ
Grief Counseling
No response to referral from youth & family (over a year since it was submitted), provided by local funeral home
Linn County - 16 year old - 11/21/25
Inability to request a new therapist when desired ; "one time they gave me a horrible therapist and I had to lie my way out of that but now I have a better one"
Linn County - 22 year old - 11/20/25
- Feeling the need to βhit rock bottomβ before being engaged to participate in preventative care
Linn County - 16 year old - 11/13/25
Access to therapists compatible with youth
Linn County - 17 year old - 11/13/25
Sitting in silence
Being required to talk about certain topics and not respecting requests to change topics ; "i dont like to talk about certain topics and they donβt know how to just change the topic"
Linn County - 16 year old - 10/09/25
Trilium
Delay in getting connected created barriers to timely access (took 1-2 months of near daily advocacy by advocate to hear any follow-up)
Linn County - 20 year old - 07/03/25
Substance Use Supports
Focus less on drugs / substances, more focused on bettering oneself & healing
Linn County - 17 year old - 06/16/25
Cycled through therapists, most just asked questions & stared, no genuine care or connection shown
Need providers to ask if youth wants to meet independently or with family (only comfortable to talk when independent, left providers due to option to meet 1:1 was not provided"
Linn County - 14 year old - 05/09/25
Having inauthentic, artificial connections with therapists that kept saying the same things
Benton County - 17 year old - 04/10/25
Feeling βout of the loopβ regarding own mental health care / feeling like professionals were βwalking on eggshellsβ when discussing treatment
Feeling scared while witnessing physically aggressive & unsafe behaviors by peers also receiving mental health care
Linn County - 16 year old - 11/21/25
Need for more experienced therapists
Linn County - 22 year old - 11/20/25
Societal perception and stigma around men connecting to mental health services
Societal perception and stigma around men struggling with mental health challenges
Linn County - 16 year old - 11/13/25
Inability to gauge match compatibility with therapists beforehand
Linn County - 17 year old - 11/13/25
Barrier in comfortability to access care ; "I was scared to ask for help until a couple months ago after 3 years"
Linn County - 16 year old - 11/13/25
Family involvement in mental health care
Linn County - 16 year old - 10/09/25
Trillium
Lack of immediate access or communication despite strong follow-up efforts
Linn County - 20 year old - 07/03/25
More inpatient recovery spaces in the region (had to go to a different state to receive care, which wasnβt even recovery-oriented) for ages under 18 years old
Benton County - 17 year old - 04/10/25
Desired more authentic, honest, βrealβ communications with mental health staff
Finding a therapist on private insurance
Lincoln County - 16 year old - 12/01/25
Benefited from family support while engaged in the education system
Noted some appreciation for online school; "I feel better doing this then dealing with the stressful situations that come with being in school."
Linn County - 18 year old - 12/01/25
Elementary school counselor helped youth overcome the fear of men
Empowered youth voice in Special Education service delivery - βI always had input on my IEPβ
Had a great relationship with Mr. Marte at Beaumont Middle School
βHe was super chillβ
Created a sense of belonging
βRalston High School is the best thing to ever happen to me honestlyβ
Linn County - 16 year old - 11/21/25
"Ralston academy has helped me so much this year by giving me the help and the support that I needed and I think more kids should get the help they need instead of being put down"
Linn County - 16 year old - 11/13/25
Access to educators compatible with youth
Linn County - 17 year old - 11/13/25
Praised all aspects of Ralston High School (alternative education HS in Lebanon) ; "everything it has done a lot i love ralston"
Linn County - 16 year old - 11/13/25
"They have helped me a lot since 6th grade till now"
Linn County - 16 year old - 10/09/25
Keely Lane at the Welcome Center (high school) was described as incredibly helpful and supportive across all challenges
Met casually; youth shared their situation, and staff offered multiple ways to stay in contact and receive support
Demonstrated genuine concern and a desire to help
Made it easy to find the necessary paperwork and information to apply for assistance (like getting a birth certificate)
Helped the youth understand processes and move forward with goals
Linn County - 17 year old - 06/16/25
Upheld restraining order
School Counselor in High School - Ms. Herndon-Dubra (aka Ms. HD)
Actually listens, empathizes, & understands
Doesnβt treat you like a kid, treats you like an individual
βThere are diamonds in the roughβ in regards to Lebanon High School staff
Helpful having school-based therapist (though restricted to only certain # of sessions)
Linn County - 15 year old - 06/16/25
While doing homeschooling, had access to a βmath counselorβ to help βcatch-upβ
Consistent parent support in moving through challenges around math support & bullying at school (voice of youth was asked and advocated for)
Linn County - 14 year old - 05/28/25
Having an option to join an educational community for those that donβt βfit inβ
Having the opportunity for a βfresh startβ in moving to a different school & program
Having alternative transportation available to avoid bullying on larger buses with less supervision
Having the option to choose what high school to attend
Linn County - 14 year old - 05/09/25
Open door option to participate in Alternative Education program (wasnβt initially of interest, schools didnβt push, eventually became of interest & was available)
Linn County - 18 year old - 04/30/25
Standard Public Education System
The educators that led with transparency and authenticity were supportive & memorable
Alternative Education Program
Granted the autonomy to move / walk around during class (not forced to stay in their seat at all times)
Skilled, transparent, and authentic leadership that actively & collaboratively responds to miscommunications and conflicts whilst respecting the voice of youth and the right to their experience
Linn County - 17 year old - 04/10/25
Alternative Education High School
Providing numerous opportunities (getting a permit, ordering birth certificates, credit recovery support, gaining employment including in-district, showers, washers & dryers, etc.)
Voluntarily applied to based on shared opportunity from school counselor
Interviewed with principal to build relationships, do a walk-through, see if it was a good fit for the student and school,Β and signed a contract for expectations while attending
Smaller environment (~50 people in whole school) but not too small
Consequences / punishments are collaborative & relational
Standard Public Education
Emphasized relationship with teacher to be the biggest catalyst to attending classes (class subject matter also important, but the teacher-to-student relationship was the highest predictor of attendance)
Lincoln County - 16 year old - 12/01/25
"I think the main thing that didnβt work was the counselor from the school and the principles and the staff not understanding the students on a real level. I think it was more of them trying to get their job done"
Felt like available support staff "rushed me out well it felt like it"
Encountered bullying and "when I stick up for myself I got in trouble"
Linn County - 16 year old - 11/21/25
Insufficient support at traditional high school ; "they donβt help at all they made me depressed everyday and I hated it"
Linn County - 16 year old - 11/13/25
Inability to gauge compatibility with educators and make adjustments as necessary
Linn County - 17 year old - 11/13/25
Encountered group drama that impacted ability to stay at Lebanon High School ; "At the high school(LHS) didnβt work out because all the people are about drama"
Felt care provided was impersonal ; "they dont really know how to separate people from each other"
Linn County - 16 year old - 10/09/25
Made an informal grievance to an administrator about a staff member; the admin followed up with that staff in a shared office space (not confidential)
Received no restitution, despite the admin siding with the youth
Experienced retaliatory treatment from the staff afterward
Described the formal grievance process as lengthy and burdensome
βTeachers look at me like Iβm a delinquentβ due to being unhoused
Linn County - 17 year old - 06/16/25
Middle School Counseling
When in time of struggle, only reached out once to offer support
Did not follow-through with stated follow-up
Relationship with Teacher > Academic Content
System for responding to youth grievances
Actually having follow-up on concerns (Ex: harassment on the bus, use of slurs directed towards marginalized populations)
Bias Incident form available to students, have received no follow-up from reports (likely due to privacy, but some follow-up better than none, for example at least receiving a copy of what was submitted)
Lack of follow-up likely due to privacy / confidentiality
Some follow-up better than nothing, even just knowing that it is being followed up on and by who
Suggested School Counselors to facilitate as they know how to support youth on challenging experiences
Having options on how to report (online form, talk with a staff, etc. so youth feel heard)
Creation of this system could use more resources, but also staff need to try harder
Linn County - 15 year old - 06/16/25
Support with Math
Fell behind in 2nd grade, couldnβt βcatch upβ
Cannot recall any times where school provided additional help
Being behind in math, along with having ADHD, was always treated different for it (βteachers were short-tempered with meβ)
Youth & parents advocated for more math support in high school (upon returning to public school from homeschool), were told by school to not get an IEP as they βtake too longβ and to get a 504 instead
Failed math class twice due to lack of support (accommodations from 504 were not nearly enough help)
βI didnβt feel that I belongedβ
Bullied
For an entire school year, was bullied by a peer for being trans
Student, parents, and teachers reported these incidents, nothing happened to stop the harm until the end of the school year
No system present for hearing concerns of youth
Parents emailed, no response other than short email apologizing
Didnβt feel heard
Linn County - 14 year old - 05/28/25
Lack of a safe social environment on buses
Additional staff supervision not helpful
Needing to βget in troubleβ repeatedly to have the option of alternative education
Linn County - 18 year old - 04/30/25
Standard Public Education System
Told by an elementary school counselor βYou are a jokeβ
Ineffective βsystemβ to recognize & respond to youth feedback or grievances regarding staff behavior (yet one exists for teachers regarding student behavior)
No formalized, documented system that has guaranteed follow-up & reporting built into it (with time constraints as well)
No follow-up on conversations / no reported follow-up
Systemic Adultism - Students held to the expectations of adults without the same level of respect afforded to adults
Linn County - 17 year old - 04/10/25
Standard Public Education
Did not feel heard or that anyone really cared
Too many students, not enough support
Lack of staff interest / capacity to be responsive to reports of bullying or request for help
Classes subject matter oftentimes did not feel relevant or helpful to learn
Lincoln County - 16 year old - 12/01/25
Lack of response system for student grievances (provided evidence and "nobody did anything", resulting in student opting for online school
Lack of academic support for students engaged in online school; "I am now doing online and donβt get a lot of help, but thatβs what comes with doing online work"
"I think there should be more tutors to help kids catch up on work." ; "I myself struggled with catching up and didn't have nobody to help me"
Linn County - 18 year old - 12/01/25
Missed a lot of primary learning due to transportation barriers
While attending a school in a high socio-economic area, reported that βeveryone was very nice, I guess that comes with them being richβ
In regards to specialized programs:
Insufficient staffing for students enrolled in a specialized program to participate in school lunch with their grade-level peers
Embarrassed to be on an IEP, which resulted in targeted bullying (in-school-suspension of bully was ineffective & not helpful)
Linn County - 16 year old - 11/21/25
Not feeling cared for by educators at traditional high school ; "If the high school had better teacher who cared then it would have been 10 times better and I would have stayed there"
Linn County - 16 year old - 11/13/25
Finding compatible, relational educators at Lebanon High School
Linn County - 17 year old - 11/13/25
Combination of feeling lazy ("I was lazy to go to school") and struggling with mental health ("down with my mental health") causing absenteeism from school ("ended up being a drop out basically")
Linn County - 16 year old - 10/09/25
Grievance processes that discourage reporting due to complexity and length
Linn County - 15 year old - 06/16/25
Response system for hearing the concerns of students
System for sharing the rights of students to access the IEP process
Linn County - 14 year old - 05/28/25
Lack of alternative education options in high school
Linn County - 18 year old - 04/30/25
Standard Public Education System
Singular approach to teaching that isnβt inclusive to other learning styles
Sufficient & accessible academic support that is inclusive to other learning style
Linn County - 16 year old - 10/09/25
Has experience with multiple mandatory reporters (caseworker, school, welcome center, police 2β3 times), which at least shows some system awareness of concerns
Linn County - 17 year old - 06/16/25
ABC House
So incredibly helpful
Provided board games, snacks, time with a dog
College students who volunteered were incredibly kind & compassionate, and initiated casual conversation before moving into vulnerable conversation on lived experience
βI couldnβt have asked for a better experienceβ
Justice System
Judge & private legal representation incredibly compassionate & empathetic towards experiences
Linn County - 18 year old - 12/01/25
"CPS fucking sucksβ
Did not provide support / alternative placement for over 4 years despite numerous mandatory reports being made and visible, documented harm being provided to responders by youth and others
Harm had to be encountered repeatedly with clear documentation throughout for action to be taken
First reported at 9 years old, took until 13 years old for emergency placement
Solely assessed physical living situation, did not assess social/familial living situation
Told individual perpetuating the harm who made the report, resulting in retaliatory treatment of youth
No consistency in response
They βtake the kids that donβt need to be taken, and leave the kids that need to be takenβ
Linn County - 16 year old - 10/09/25
Worked with DHS five or six times; described it as βa rollercoasterβ
Youth keeps being told that because theyβre βsoon to be 17, almost 18,β the system βwonβt do anything for youβ
βI kept getting written off...β and told β...that Iβm just an emotional teenβ
Unable to get a permit, ID, job, or other supports due to having legal guardianship status
Expressed concerns to DHS about being hit and degraded, even showing texts and videos as evidence, but received no responseΒ
No follow-up from DHS after grievances were shared
Doesnβt know who their caseworker is; used school district Welcome Center family support staff to help reach out and left multiple voicemails, hasnβt heard back from anyone for over a month
βPeople donβt understand that a year is a lot of time.β
Linn County - 14 year old - 04/30/25
Lack of transparency regarding what situations warrant what actions from the state (each situation is nuanced, and, help paint a picture of the potential responses or actions)
Inadequate methods for evoking honest responses while investigating reports (how can someone safely report what is happening if they were threatened or warned with an escalation of behavior if they are honest)
Caseworker not being briefed on the case history of a youth before responding to a report (to understand if this is the first report, or one of many)
Linn County - 18 year old - 12/01/25
Ineffective, prolonged, and harmful response system to mandatory reports made by / substantiated by youth
Linn County - 16 year old - 10/09/25
Youth feels unheard and disregarded by DHS, even after presenting concrete evidence
Lack of caseworker communication and follow-up
Guardianship status limits ability to access identification and employment
Youth feels written off due to age and emotional expression
Concern for younger sibling still in the home, with no visible DHS response
Linn County - 14 year old - 04/30/25
Not provided a means to contact caseworker when needed (how to contact when no phone is available)
Linn County - 16 year old - 11/13/25
Access to services at local hospital
Linn County - 17 year old - 06/16/25
Dr. Frothingham (pediatrician) at Mid-Valley Childrenβs Clinic
βHe knows how to treat you like a kid, not in a demeaning wayβ
Used strategic sharing that was super helpful & supportive
Highly skilled in working with youth
Will connect with resources, and assist in accessibility (offered to make appointment)
βGoes above and beyond to make sure Iβm safe and getting the resources I need"
Linn County - 18 year old - 12/17/25
Paperwork jargon-heavy and difficult to understand
Need more specificity & clarity on surgical procedures provided to youth (to give informed consent)
Linn County - 18 year old - 12/17/25
Lack of providers in local area due to youth aging out of care from pediatrician (told to access care in different areas when no available transportation to do so exists)
Linn County - 22 year old - 04/09/25
Adult Foster Home was available to meet emergent housing needs
DD services was responsive to young personβs grievances (though was gradual, inconsistent positive changes)
Linn County - 22 year old - 04/09/25
Living Conditions / Quality of Life
Guaranteed a queen / full bed mattress (as current one was defective & unsafe), did not receive
Community engagement limited to 2 hours, once a week, with a maximum of 2 locations
Inconsistent ability to access staff support in a 24-hour staffed home
Retaliatory action, including repeated unsuccessful eviction attempts & defamatory communications about young person spread tangibly to staff members
Dietary Accommodations
Consistently encountered pushback when requesting accommodations to meet dietary needs as a result of diagnosed condition
Limited-to-no access to quality, fresh food
Provided menu not reflective of available food
Retaliatory actions taken when dietary accommodations were provided
Financial Transparency
No current method to track the use of monthly financial allocation from DD services in addition to rent charged by home
Concern of financial allocations going towards businesses owned by facilitators of the adult foster home
Charged late fees on rent overdue by 2 days
Grievance Procedure
Grievances needed to form a pattern in order for support to be provided
Linn County - 22 year old - 04/09/25
Difficulty moving furniture in transition to adult foster home
Access to Care
Lack of staffing resulting in inability to engage in mental health care
Access to SNAP benefits are limited / reduced when residing in that setting, though funding intended to meet the needs that SNAP meets isnβt transparent and young person doesnβt have full or partial autonomy on the use of those funds
Insufficient staff training in understanding needs, navigating conflict, & providing accommodations (requirements in addition to how to provide accommodations)
Home staff having personal relationships / conflict of interests with one another
Lack of policy / lack of enforcement of policy on minimum voltage / electrical output per young personsβ rooms
Lack of sufficient means to document grievances (Ex: cameras in common areas)
Proactive communication on the rights of young people in that setting (from DD services)
Legal representation for young people receiving DD services"
One way we hear from young people is via our "Be Paid to Share Your Story" opportunity, which is a one-time, no commitment, paid meeting where we talk informally with a young person 1:1 to have a safe, brave conversation on what's worked, not worked, and gaps/barriers they experienced / are experiencing in the systems that serve them
This convo can be held in-person, virtually on Zoom, on a phone call, or even over video games π
We also hear from youth via our Youth Advisory Council, which is a collective of 14-25 year olds in Linn, Benton, and Lincoln counties that have been involved in youth-serving systems (education, juvenile justice, etc.), who share their lived/living experience to advocate for & share youth-led insights and recommendations to the local System of Care π€©
We meet 1-2x a month on Zoom and pay all participants for their time each meeting π