Daily Updates

#WarriorsForMaryanne

#TeamMaryanne

#AVMAwareness

Merchandise to benefit Maryanne: https://www.bonfire.com/store/warriors-for-maryanne/

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 17, 2025

Good evening, Warriors. I apologize but today was a lot. I need to take a night off. Please know Maryanne is okay and doing well.

I did record a TikTok video update so feel free to check that out. I'll post it to the group. Thank you for your understanding.

Video Update for tonight, linky: https://www.tiktok.com/@lzzrdboy.2/video/7585045464135830814

I look forward to giving you another fantastic update tomorrow. Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Merchandise to benefit Maryanne: https://www.bonfire.com/store/warriors-for-maryanne/

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 16, 2025

Hi, Warriors. Tyler and me visited with Maryanne today. It was a good day for Maryanne but it was a bad day for me. Allow me to explain. When Maryanne arrived at the rehabilitation facility, we held a care team meeting. Myself, the Social Worker, an Administrator, 2 or 3 Nurses of different sorts, and one of the business managers met and discussed our goals for Maryanne. I was asked to establish a baseline for Maryanne to meet. I have been steadfast in making it quite clear, what I need from Maryanne. The kids are in agreement. I need Maryanne to be able to go to the restroom, shower with assistance, eat, brush her teeth, etc. This is what I expect and this is what I based my goals for Maryanne, on. These criteria.

Maryanne has, in no way the result of her own doing, leveled off with regard to PT/OT/ST. She's not really making any real progress. If you know how this stuff works you know Maryanne has to achieve certain milestones in order to be eligible to continue to receive PT/OT/ST. If she "stalls out", the Therapists note the same. I; WE, need Maryanne to push harder. We need her to work harder. We need her to tolerate more of the pain she's dealing with as a result of the rehab. It's hard. It's stupid. But most of all, it is so very needed.

I was asked to work on a plan B, today. This pissed me off, if I'm being honest. Are you fucking kidding me? I'm on Plan Y at this point. Take your place in line. That's what I want to say. The person who said this to me is a wonderful advocate for Maryanne. I know she means well. We met with talk therapy today. We talked about what we need to do to get Maryanne to be less emotional in the morning hours. She's struggling between 7AM and 10AM. I immediately asked if there is something she's getting at 2PM/5PM which she is not getting at 9AM. I will know for sure, tomorrow. When Maryanne gets her 2PM and 5PM meds, she responds extremely well. If she gets them at 1PM and 6PM, she does not do well. We have this shit dialed in. I assure you.

Tomorrow I begin work on "Plan B", as Loni put it. I do this because I have no choice. As I have said from day one, WE HAVE NO CHOICE! This is what we do. Thankfully, I have all of you to support me; to support us! We truly could not make these decisions, and do the things we must, without you all. THANK YOU! So. Very. Much.

I look forward to giving you another fantastic update tomorrow. Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy

PayPal: lzzrdboy@gmail.com

Venmo: @lzzrdboy

Merchandise to benefit Maryanne: https://www.bonfire.com/store/warriors-for-maryanne/

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 15, 2025

Happy Monday, Warriors! Madison and I visited with Maryanne today. She's doing well. She ate in the dining room for breakfast. She enjoys the social interaction. I want her to eat in the dining room more often. We attempted to watch the Christmas movie with Alicia Silverstone but the stimulation was too much. We switched to music and things got better. We are constantly monitoring Maryanne's receptiveness to video/audio. Yes, this is a thing.

Maryanne took 5 steps today. This is huge! She did this with assistance but who cares. She's putting in the work. We are so proud of her and we continuously tell her the same. She's looking to the left more often. This also, is huge. Maryanne's left side needs work and she knows it. She's doing what she needs. Even something like lifting your butt up off the bed, is huge. We call this bridging. When Maryanne has an itch on her back, she lifts her lower back and scratches. This small movement, benefits her immensely. I have found a way to turn everything into therapy. Movement is everything right now.

Thank you again, for your support. I have updated the Amazon Wish List, the Web Site, and the storefront. Tomorrow is a new day. I can't wait to see what it brings.

I look forward to giving you another fantastic update tomorrow. Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Merchandise to benefit Maryanne: https://www.bonfire.com/store/warriors-for-maryanne/

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 14, 2025

Hi, Warriors! Today was another great day. I asked Maryanne about the phone call yesterday during the benefit at The Watering Hole. I asked her if she remembered all the friends/framily at The Watering Hole telling her they loved her and missed her, on the phone. She remembered and responded that she loved hearing everyone on the phone. I think we all loved hearing her on the phone, for sure. To those who came out to The Watering Hole, THANK YOU! It was an honor to have some time to hang out with all of you. I really needed that. Seriously. It was a fantastic day and Maryanne joining in, was truly the icing on the cake! You all fuel me. You don't know it. But, YOU DO! THANK YOU!

Today we had some lunch, watched some TV, and listened to some music. Maryanne still has her moments. We handle those as best we can. Although the infections are squashed, she still has hallucinations and hears things that aren't being said. Support. That's what she needs. Whatever that looks like. Support.

Tomorrow I follow up with SSI and SSDI. It's time this shit gets done. Maryanne may be coming home in the next 90 days and we need to be ready. I have to have a plan. That's just how I work. Prepare, we must. Madison and I will visit with Maryanne just after lunch tomorrow. She's back in therapy tomorrow so she will be uncomfortable and tired by the time we arrive. We will deal with it and support her as we always do.

Thank you a million times over, to Joanna and Eric (Owners of The Watering Hole). These two are true champions and warriors for Maryanne. They are both Epic examples of the kindness and love Maryanne sees in people. She knows her people and she loves like no other! Thank you immeasurably for all you have done to support this mission. We Love You!

I look forward to giving you another fantastic update tomorrow. Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy

PayPal: lzzrdboy@gmail.com

Venmo: @lzzrdboy

Merchandise to benefit Maryanne: https://www.bonfire.com/store/warriors-for-maryanne/

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 10, 2025

Happy Hump Day, Warriors! Today was another great day, for the most part. While changing Maryanne in the later part of the afternoon, I found a pill in the blanket. Nurses were able to confirm this was the pill which Maryanne receives to address her restless legs. She gets it at 9AM and 9PM. Maryanne was quite uncomfortable this afternoon. Now we know why. She didn't get her pill. It's okay though. I spent the afternoon calming her and reminding her of how proud we all are of the progress she is making. I reinforced how important it is we keep moving forward and striving to meet the goals we have set for ourselves. Maryanne agreed and we spent some time snuggling while recalling all the things we need to in order to exercise our minds. If anything, today was productive. We will get back on track tomorrow.

Tomorrow morning we head back to WFBMC for an office visit with Interventional Radiology. We are going to put together a plan to remove Maryanne's IVC filter. It's a short visit but we are going to take advantage of the time away. We're going to stop by the Neuroscience Wing to visit with former care givers and then head to the cafeteria for some sushi. Maryanne is excited and ready for an adventure. Madison picked out some fantastic red pants and a fabulous sweater for Maryanne to wear. She will be looking festive for sure. Isn't it strange how a visit to the hospital can be something we look forward to? A chance to get out. Get mobile. Get to a place which is completely different. We will make it all the things we want it to be.

I have updated the Amazon Wish List with items Maryanne wants to get for the kids. We picked out an ornament and added a few other things we thought she may enjoy. Thank you for your support. Thank you for your love. And thank you for being a Warrior For Maryanne!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 9, 2025

Good evening, Warriors! Today was another fantastic day. I know my last few updates have been less than detailed but you have to understand, things have moved from day into night, and back into day, very quickly. Maryanne's progress over the last 5 days has been astounding. That which she has been experiencing the past 2 weeks seems to be much less of a barrier recently. Maryanne is better able to tolerate the pain in her muscles and all the other parts she keeps moving, tremendously. Again, the more she moves, the better she gets, but the more she hurts. With her improved motion on her left side it is quite evident the movement is starting to become more comfortable and hence, less painful resulting in her doing more during therapy sessions. This is simply wonderful. She's turning her head to the left more often and is actively trying to keep her shoulders/neck back. Emotionally, she is doing much better. Hallucinations have decreased significantly, in number. In one instance, she recognized something she was hearing wasn't really happening. She caught herself. She corrected herself. And then she laughed about it. This is a big deal!

I feel confident the infections are under control. Granted, I'm still awaiting the results of the chest X-Rays taken over the weekend. This combined with the changes made in medication administration, is definitely yielding positive results. Thursday Maryanne has an appointment with Interventional Radiology to discuss the plan for the removal of her IVC filter in her Pulmonary Artery. This surgery is tentatively scheduled for January, 2026. Given the discovery of additional clots in her lower extremities, the procedure may be postponed. We will find out for sure, this week.

I am going to swing by the Neuroscience Wing while at WFBMC and see if I can grab someone from Dr. Wolfe's team. I would like to get some feedback regarding Maryanne's recovery over the past 3 weeks. A lot has happened and I feel like a one-on-one would be beneficial for those providing extended care for Maryanne.

As long as Maryanne is onboard, I would very much like to have some folks over for a visit. Emotionally, she is much more stable/calm recently. I think she will be receptive to visitors/phone calls. I'm going to reach out to those of you who have been waiting. We need some friends to stop by and help us spread some holiday cheer around the suite.

Thank you for your patience the last week or so. This journey is completely unpredictable in every single way. Each day, as I enter Maryanne's suite, I have no presumptions. Every day is a new start. Every day is unique. Every day is yet another challenging day in this journey to Maryanne's recovery. We're meeting those challenges and we will continue to do so. We have no choice, after all.

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 7, 2025

Today was a great day. Maryanne is healing. She's getting better. She is doing great! She's moving her left leg and bringing her left knee all the way up to her chest. This is how Maryanne has always slept. She is killing it! This is huge!

I am so excited. Maryanne is doing fantastically!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy

PayPal: lzzrdboy@gmail.com

Venmo: @lzzrdboy

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 6, 2025

Happy Saturday, Warriors. Today was another great day. Maryanne enjoyed some meatloaf along with mac-n-cheese for lunch. She snacked on some chocolate and enjoyed a diet coke (It's really coke zero. The aspartame in diet coke is not friendly to stroke victims.) Maryanne didn't want the TV or the music on today. She requested peace and quiet so we obliged. I was scrolling through TikTok and started reading some jokes of the darker kind. Maryanne was diggin' it. She was laughing out loud and enjoying some twisted humor. It was a "gay old time", as Maryanne proclaimed.

Tyler had some buffalo wings, Madison came to visit after work and she picked up some Chinese from the Jade Garden. The dumplings from this place are simply amazing. Maryanne will confirm the same.

I used the CeraVe Daily Moisturizing lotion on Maryanne's feet, legs, hands, arms, and face/neck/chest. Thank you, Melissa! She was completely lotioned up by 4PM. She really enjoyed it. The dry skin is a real thing and a constant battle. From now on, Maryanne will be smooth and silky. I guarantee it.

Supper was stuffed shells with "Italian veggies" and a frosted cinnamon cake. It was enjoyed. We laughed some more, told some stories, chimed in on some memories and enjoyed a peaceful, relaxed evening. Today was a good day.

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboyPayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 5, 2025

Hi, Warriors! Today was a really good day. I arrived as Maryanne's lunch was delivered. She enjoyed some "Greek" chicken salad in a pita accompanied by a beautiful apple puree (applesauce). We watched a Christmas movie on Netflix, snuggled, I massaged her right thigh. This is the one which hurts the most. She moves it constantly. Those muscles are working overtime.

Maryanne's supper was an alternative option. A grilled cheese sandwich and a small piece of pumpkin pie. What the fuck? I presented Maryanne with a few different options for supper. She chose Chinese food. She requested Chicken Lo Mein and fried dumplings. The sauce which accompanied the dumplings was incredible. Just sayin'. Maryanne had a few bites of each and exclaimed she was full, quickly. She then asked for chocolate. She ate a kit kat and a Hershey's milk chocolate mini. She loved it. She had some "Diet Coke", Coke Zero and we started Bad Santa. Maryanne loves this film. We laughed and for the first time in 10 days, Maryanne seemed to be at peace. She was focusing on the film, laughing out loud, and dozing off in between. She didn't cry. She didn't wince. She simply, watched, and chilled.

Today was a good day. I am truly sorry but we are unable to host visitors at this time. This decision has been made primarily to protect all of you. Maryanne would NOT want you to see her as she is. This has nothing to do with you. This is all Maryanne, me, Tyler, and Madison. Things are touch and go. We have to do what we must to ensure Maryanne is protected and that her wishes are honored. I know you guys understand. Right!?

Thank you so much for your patience. Thank you so much for your support. Thank you for the little things. Thank you for the bigger things. But most of all, thank you for being here for us and thank you for being a Warrior For Maryanne! We love you!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne
Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 4, 2025

Greetings, Warriors! I hope your Thursday was fantastic. I spent some time today meeting with Dr. Henderson, the Practitioner, the Social Worker, the Rehabilitation Team and Maryanne's assigned RN for this afternoon/evening. I advised everyone of my concerns and requested that each of them give me feedback regarding their experience with Maryanne. This includes her state of mind/mental state (happy, sad, confused, scared, over stimulated), her physical therapy (arm/leg movement, standing exercises, fine motor skills, etc.), her wins/losses across the board. Is she excelling at eating on her own? Drinking on her own? Is she improving with regard to her overall healing? Is there anything I should focus on? Work on? How can I help you? There were many more questions but this is a significant sampling of the exchange I had with the people who are caring for my Angel.

The antibiotic injections Maryanne is receiving to address the UTI and Pneumonia, continue. Today she received her 2nd of 5 injections. She has no fever and her BP/BPM/O2Saturation are normal. Dr. Henderson confirmed today, the antibiotics are dialed in as the two previous prescriptions didn't do much. I hope to see some serious results in the coming days.

I also consulted one-on-one with Dr. Henderson following the clinical meeting. I expressed my concerns regarding Maryanne's restless legs. That's what we're calling it. She is moving more and more. Her muscles are healing and as a result, they hurt. She makes this clear, constantly. We need to get this under control so we can move forward with the work she needs to put in. Dr. Henderson recommended a small increase in dosage of the medication Maryanne's already getting to calm her legs. Tomorrow we will find out if there are improvements resulting from this change.

Maryanne was in good spirits today. She's awake all day. She's eating but I would like to see her eat more in the form of food with value. Tonight, I stopped by the grocery store and picked up some chicken, broccoli, and potatoes. I am not a meal-prepper but I realized today that I can spend a couple of hours when I get home, to make some food for the kids and Maryanne. I split everything up into individual containers and put a mini post-it on each container so the kids know which one is theirs. This is something Maryanne did all the time. I just realized that. Cheers, Angel!

Today is December 4, 2025. Today marks 3 months since Maryanne fell victim to this terrible event, on September 4, 2025. I find it difficult to wrap my head round this. 3 months. Wow. That's 90 days. That's a probationary period at a new job. That's the turn around time on a passport application. For me, it's 90 days of tests. It's 90 days of challenges. It's 3 months during which I get to spend every single moment possible, with my beautiful, magnificent, and amazing Wife. She's my very special person and 90 days is nothing. We got this!!!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy

PayPal: lzzrdboy@gmail.com

Venmo: @lzzrdboy

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 3, 2025

Hi, Warriors. I realized tonight I have been kind of vague with regard to details in my updates, as of late. I apologize. Maryanne is struggling. I don't wish to cause worry or doubt so I have to be careful with how I relay this information. In true form, I will simply be direct as only I can be.

We knew Maryanne had a UTI. We now know she also has Pneumonia. She is on injectable antibiotics for the pneumonia and pills by mouth for the UTI. The hallucinations combined with the emotional trauma, is a lot to deal with. Stimulation plays a significant role at this time. The wrong TV show causes Maryanne to obsess about characters, or the story line. Although she loves music the image of the iHeart radio image on the TV is too stimulating. Conversations in her suite cause her to repeat, constantly, numbers and significant points she recalls from said conversations. She is pulling things from all types of sensory stimulation and obsessing about the same.

Tonight I turned everything off, except for her sound machine. It's currently set to play the sound of a brook slowly trickling down through a mountain valley. The water ripples over the rocks and calms Maryanne. She immediately changed emotionally and began to express how tired she was. Maryanne was up and alert all day today. It makes sense she is tired. I asked her if she would like to say our goodnights. She replied that she would. So, we did.

I met with the Social Worker, and the Head Practitioner this afternoon. I had some things I wanted to discuss. I won't go into details but I ensured my concerns are addressed. Change is afoot. Know this.

Tomorrow we get together after the clinical meet up with staff in the morning. I'm scheduled to receive a complete update on Maryanne and the state of her care. I now recognize I need to be more involved with the "back end" of all this. The logistics, if you will. From this point forward, I will know all the things.

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for December 1, 2025

Good evening, Warriors. I'm sorry for my lack of update last night. Yesterday was dedicated to replacing the water pump on one of our cars. Madi and Tyler spent the day supporting Maryanne so that I could get our vehicle back up and running. Regretfully, I underestimated the project and needed a 2nd day to complete the work. I'm happy to report the water pump issue has been resolved and the car is back in service. Thank you to Sheri and Steve for letting me borrow their car while repairs were made to the Buick. You guys are simply awesome!

Maryanne continues to battle on. The impact of the second stroke combined with the cocktail of medication, is tough. Maryanne is doing the best she can. We are here for her. As are you. Thank you for that!

Tomorrow I meet with the Physician and the Talk Therapist. I will once again, stress the importance of addressing this imbalance we're seeing. Something must be done! I will follow up after and let you all know what the plan is.

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for November 30, 2025

Today was a good day. That's all I have to say about that. I will follow up later. I promise!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboyPalzzrdboy@gmail.com

Venmo: @lzzrdboy

GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for November 28, 2025

Maryanne and I had a date day today. Just the two of us. We ate some lunch while Maryanne relaxed in the recliner. YES! I said that. She is no longer in the wheelchair while in her suite. It's not really a wheelchair it's more of an orthopedic wheelchair. Regardless, she was quite comfortable in the recliner.

I asked Maryanne if she could have anything for dessert, what would it be. She requested cheesecake with cherry sauce and extra cherries. I took off to Maddie's Cakes and returned in a flash. The look on her face when she took the first bite, was pure joy. She just sits, chews, and nods. Lots of nodding. We enjoyed a few more mouthfuls and Maryanne asked if I was trying to make her fat. I ensured her this was not my motivation but reassured her she could use the extra calories. She agreed and enjoyed the last bite.

We snuggled up for a few hours. I love the larger bed. She does too. Maryanne wanted to start the last season of Stranger Things but I was reluctant. That's a lot of stimulation. She insisted and we watched the first two episodes. After that, she was done. She was getting frustrated she was not able to keep up with all that was happening on the TV. It happens. I turned off the big lights, put on some eighties tunes and held Maryanne's hand while she ran her fingers through my hair. It's like when we first met. This is what we would do.

I feel a little guilty about this but I am really benefiting from the level of intimacy we are sharing. Just lying next to each other and talking to each other is fantastic medicine for my soul. I can feel her body become more still when we embrace. I'm not trying to get mushy I'm only recognizing the impact all the tiny things are having. I feel like I'm looking through a microscope and I need to step back for a moment. The details and specifics are small yet numerous.

Maryanne enjoyed some chicken fried steak with a baked potato for supper. The Italian flat beans were a bonus. And of course, we had some cheesecake for dessert. Today was a great day for me, especially. I needed some us time. This woman is my fuel and the more contact I have with her, the more energized I feel.

Thank you all for your Thanksgiving and Anniversary messages. The last two days have been wonderful. Progress is moving a little faster. Of course it is. This is Maryanne, after all!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for November 27, 2025

We sincerely hope all of you had a wonderful Thanksgiving. Ours was fantastic. Our Anniversary, Thanksgiving, it was all, just great. I'm tired and will keep this short. Tomorrow I will provide some details regarding Maryanne's progress. Thank you for your understanding!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

CashApp: $lzzrdboy
PayPal: lzzrdboy@gmail.com
Venmo: @lzzrdboy
GoFundMe: https://gofund.me/9091f0c1d

#WarriorsForMaryanne
#TeamMaryanne
#AVMAwareness

Official Website: https://sites.google.com/view/warriorsformaryanne

Sean's TikTok Channel: https://www.tiktok.com/@lzzrdboy.2

Maryanne's Journey - Evening Update for November 26, 2025

Happy Thanksgiving Eve, Warriors! I was at home today while the kids hung out with Maryanne. She's still fighting and still recovering. She stood up with the aid of the parallel bars, today. This is HUGE! She was able to put so much weight on her right leg and it was magnificent. She continues to blow our minds. Although Maryanne's mind is still healing, she's focused. She knows what she needs to do to keep moving forward. She is truly an inspiration.

Tomorrow we celebrate our 26th wedding anniversary. We celebrate Thanksgiving. We celebrate 35 days in rehabilitation. We celebrate the wins and underscore our mission. Maryanne is ready. We are ready.

Thanks to Tom and Keli we will erect a Christmas tree tomorrow. I would like to decorate this tree with ornaments which illustrate something significant between you and Maryanne. If you would like to contribute an ornament, let me know and I will provide you with a mailing address. Each ornament will be labeled with the name/date of the person who sent said ornament. We will present each one to Maryanne and ask that she place it, upon the tree. If you are local, you may drop off your ornament in our carport. Just reach out.

I wish all of you a wonderful Thanksgiving. I wish you all a wonderful day of football. But most of all, I wish you all a wonderful time with family, friends, and those who bring you love and happiness! Give all the hugs, kisses, and affection you wish. It means more than you know.

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey/Sean's Journey - Evening Update for November 25, 2025

Only Two Days until Maryanne and me celebrate 26 glorious years of marriage, Warriors! I am so excited. I keep talking to Maryanne about what we should do on our big day. She has made it clear she wants to prioritize Thanksgiving. After all, she chose the date in 1999. The meal will be Thanksgiving themed. The room however, will be CHEERS TO 26 YEARS themed! It will be a fabulous evening, I'm sure! All four of us will be together to celebrate with my Angel.

We just want Maryanne to have some fun and recognize she is still very much in this game of life. She needs to know things are moving along just as they always have. Routine is important. Holidays are still holidays regardless of the location, state of well being, or what ever it is which causes you to get creative.

Today was filled with a lot. I still can't get into details but know that my primary reason for this is because I don't want to cause anyone to feel bad things. Maryanne is facing some challenges emotionally, and mentally. We are with her. We are supporting her. We are keeping the Physicians and Neurosurgeons updated. We are monitoring Maryanne in every single way, every single day. It's just a lot. Although Maryanne is continuing to heal, this is among the hardest and most challenging parts we know we have to face. Let me be clear! Face it, challenge it, and beat it, we will!

I began taking my BP meds along with the Zoloft today. It's been interesting. I would like to give it a few more days before I officially chime in. I don't feel bad or strange, or anything like that. I feel chill and somewhat as if I'm stuck in a slow-motion video. Now that I type it, I realize that's pretty strange. Overall, my experience during the last 6 hours has been positive. I am not able to sight anything negative as a result of taking the new meds, as of yet. Let's hope it stays that way.

We had an incident with Madi's Buick Lacrosse today. The temp gauge shot up to "H" when they pulled into the carport. Steam then spewed from the beneath the hood. This is just exactly what I needed to hear today. I will troubleshoot the issue tomorrow and hope to only have to address the problem of a fucked up thermostat. Hopeful! Yes, that's the word.

Thank you for your love and support, Warriors!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey/Sean's Journey - Evening Update for November 24, 2025

A wonderful Monday I wish to you all, Warriors. Today was a long one. I sprang to life at 7AM to head to my medical appointment (8AM) but I nearly immediately received a call from the provider asking if they could move my appointment to 2PM. I was in complete agreement, hung up, and returned to my slumber. I think I hit the hay around 5AM this morning so tired, I very much was. I eagerly awoke at 11AM, cleaned myself up, and headed to my destination.

I completed quite a bit of research on the Physician I ultimately chose to be my PCP. His name is Dr. Hirata and he is a rock star. His patients have unanimously praised his ability to listen to his patients. His willingness to take everything into consideration and include his patients, and their feedback, when planning their paths to becoming better/healthier is something which stands out when you read the thoughts of his previous and current patients. My experience with Dr. Hirata was fantastic. He asked me for information spanning decades. He was obviously building an image of my life over the past 40 years. I've not met a Doctor who did this, before today.

I completed a comprehensive physical, an EKG, a blood draw, UA, and obtained my height/weight. I'm down 1 inch in height since 2005 and I'm weighing in at 185lbs. On Sept. 3, 2025 I was 228lbs. I know I'm gobbling up calories and I know I can do better to compensate for this consumption. I thought today that I need to reach out to Jay's wife, Shelley. She works for Peloton and I bet she could help me to understand what I need to keep up with physically, activity-wise, to ensure my body is capable of supporting the efforts I am challenging it with. I'm meeting with a nutritionist in two weeks. I know this meeting will yield fantastic results. However, I want to get a jump start. I want to start doing all the things I need to do to be better, be ready, and be exactly what I need to be, for Maryanne!

Today was a great day for Maryanne. She ate well. She had a magnificent bed bath by Gabby. She received a full body massage along with all the fantastic-smelling lotions. She then fell fast asleep. No joke, y'all. She. Is. Out! Mouth open, eyelids free of movement, and hands/fingers completely still. This kids came by to visit but Maryanne was persistent. She is done. Mondays...am I right?

I will provide all of you fantastic people with a much more detailed update tomorrow. I feel like change is afoot. We shall see. Please share the Website (https://sites.google.com/view/warriorsformaryanne), please support this cause, and please continue to be a fabulous #WarriorForMaryanne!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 23, 2025

Greetings, Warriors. This Sunday was a day, for sure. Maryanne ate quite a bit of breakfast and dinner. She had a chest Xray this afternoon. Now that we know the UTI is a very real thing, other concerns are starting to surface. Maryanne is struggling to understand why she feels the way she does. We are supporting her in every single way. This is a marathon. We are locked in. I'm so sorry but I need a day to get my shit together. This is tough.

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 22, 2025

Good Evening, Warriors. Today was a good day. Maryanne ate well, I bought for her some individually wrapped chocolates. She is loving them. I lotioned her up, worked on her leg muscles, talked with her about all the things. The hallucinations are out of control. We learned upon leaving that Maryanne has a UTI. At 9PM the Nurse administered Antibiotics. Maryanne will be okay. This too, she will overcome. I had no idea women over 45 can experience hallucinations as the result of a bad UTI. Mind=Blown.

I will provide some more information tomorrow. I'm just tired. Going to bed now.

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 21, 2025

Good Friday, Warriors! Tonight's update will be shorter with regard to Maryanne, specifically. Maryanne did well today but due to the reemergence of a wound, she was bed-bound. No chair today. That's okay though. We still had a fantastic time. We snacked, had some chicken and dumplings for lunch, balled up a tissue and threw it back and forth. Yes, she is catching it with her right hand from around 4 feet away. She insisted we keep score and she won, obviously. I love this woman so much. The late afternoon was tough. We got through it because Maryanne is so damned strong. Sleep has been somewhat of a problem so when Maryanne crashed hard around 6:30PM, I let her be. She was so obviously out cold I just knew she was exhausted. I did try and get her to have some supper a few times but she was having nothing of it. I told her all the things, updated the Nurses so they can provide some food if she gets hungry, and headed home.

Today I heard something I am surprised I did not previously have knowledge of. I know what a Taoist parable is but I did not know of this particular one. All of you probably have heard it. Still...

~A Chinese farmer in a small village loses his horse in the middle of the night.

~His neighbors come and tell the farmer, "It's so sad you lost your horse", but the farmer simply shrugs and says, "Maybe".

~The next day, the horse returns, bringing twelve wild horses with it.

~The neighbors congratulate the farmer, but he responds with his characteristic "Maybe".

~His son breaks his leg while taming one of the new horses, and the neighbors express their condolences saying, "It's so sad your son broke his leg". The farmer again says, "Maybe".

~The country declares war, and the army comes to conscript all able-bodied young men. The farmer's son is spared because of his broken leg, which saves him from certain death in battle.

Myself, Madison, and Tyler have experienced all of this since September 4, 2025. If you've read my updates from the beginning, you already know this. Although the most traumatic and terrifying of events took place, the milestones which followed and were crushed, the resounding success of her brain surgery, the speed with which Maryanne is moving forward, her ability to face a 2nd stroke and still push through every single day... All of these things are representative of the challenges this journey has faced, will continue to face, and will continue to OVERCOME! The losses evolve into wins. The setbacks evolve into recoveries. The challenges will undoubtedly evolve into VICTORY!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 20, 2025

Hi there, Warriors. I apologize for the lack of update last night. It was a very long day. Know that Maryanne is responding to the new medications but each hour is different, after meds are administered. We will continue to fine tune the "cocktail".

Today I spent the day playing Maryanne's favorite music. I met with the Physician and updated her regarding all the new information we received on Monday while at the hospital meeting with Dr. Wolfe. Dosage was lowered for one of her meds and for the first time in the past 48 hours, Maryanne was able to stay awake and alert all day and into the evening. Otherwise, the Doctor is still quite happy with Maryanne's progress. She continues to tell Maryanne how well she is doing and Maryanne is starting to actually believe the same.

Maryanne enjoyed some Birria Tacos along with some Tortilla Chips and Salsa. She then had some Chocolate Cream Pie. She then asked for some more chocolate but also asked that I surprise her. I fetched some peanut M&Ms and she munched on a couple while smiling from ear to ear. We rocked out some more and Maryanne insisted I dance for her. However, she asked that I do it without clothing. I reluctantly, informed her I did not feel comfortable doing this as one of the staff may come in to check on her. She agreed that may be a bad thing so we danced with our clothing still on. Her sense of humor is a tad more twisted than it was previous to this event, obviously. LOL!

Maryanne had a hot shower tonight and she absolutely LOVED IT. We met with one of the Talk Therapists just before bed and she did such a wonderful job explaining to Maryanne what is happening in her head. It's difficult to explain but Maryanne is now completely aware of what is happening with her body. She is feeling all the things both physically, and emotionally. It's hard for her to grasp and she simply doesn't understand why she feels like she does. This is why we constantly remind her that her brain is healing and that even the things which cause her frustration and irritation, are positive signs that her brain is doing exactly what it needs to.

Tomorrow is a new day. Next week we will celebrate our 26th wedding anniversary. She is really excited about this and I have plans which are sure to make our day a very special one and one we will both remember as fantastic.

Thank you once again, to you all, for your support, your messages, your love, your reassuring words, and all that you continue to do to show your love for Maryanne and our little family!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 18, 2025

Tyler and I spent the day with Maryanne, today. If you read last night's update you know today was the day Dr. Wolfe's medication administration changes were implemented. There are a lot of changes/modifications and we are optimistic these changes will yield positive results.

Maryanne had some breakfast and completed a round of OT/PT/ST. Although the therapists indicated Maryanne did well, they also noted she was again, quite sleepy. The increase in the dosage of Gabapentin is most likely the culprit here. I have relayed today's observations to the Neurosurgery team at WFBMC and am awaiting their response. Keep in mind however, today is the first day since these changes were made. There may be an adjustment period. I'm simply unsure. Maryanne was in her chair and alert for a few hours but after moving her back to the bed, she became quite exhausted. She had some lunch, a frosty from Wendy's, some chocolate pie, and then she crashed. Hard. Like she refused to respond to any type of stimulation.

It took 3 of us to get Maryanne to open her mouth for her evening medications. 15 minutes of trying resulted in her reluctantly, choking down all of the pills. Thank goodness. Immediately after she resumed operation deep sleep. She wanted nothing to do with supper. I'm not concerned as she consumed more than enough calories during the daylight hours. Maryanne continued to sleep soundly for several hours. She's snoring which is strange, but still an indication she is out of it. I will send another update to the surgical team at the end of the day tomorrow.

We met with the talk therapist this afternoon. She spent her time focusing on me, my mental state, my health, and all the other things related to me. I reassured Megan I'm on top of my issues and explained in detail, my intentions to address the hypertension. She seemed happy I am doing that which I have to do, regarding my well being. I love Megan. She's a champion and incredibly easy to talk to. This may bite me in the ass later but at this time, I am an open book when it comes to her and her questions/concerns. Don't be mistaken. We talked about Maryanne too. Megan spoke with Dr. Cook (the psychotherapist) and passed along all the new information I gave her regarding Maryanne, the information Dr. Wolfe provided, and the changes to Maryanne's meds.

Tomorrow we take even more notes and then communicate all of the things to the surgical team at WFBMC. Now that we are aware Maryanne fell victim to another stroke, we have to ensure we support her in all the ways and continue to ensure she is protected from events which may cause yet another traumatic brain injury. Every single team member; every warrior for Maryanne, must be on the same page. I have no doubt Maryanne will overcome this but we have to be careful with the steps we take. She's fragile. She's vulnerable. We are her shield. We are her support. Get through this, she will!

On a personal note, I'm aware my update post last night was quite angry and direct. I'm pissed. I have made it clear from the beginning, medical professionals are directing my every move. Our every move. Maryanne's blood pressure and heart rate are the most important measurements we care about at this time. I am no longer focused on the actions taken by the unwelcome visitor. I'm focused on how we address that which caused Maryanne's vitals to soar. I care about how we fix it. This is a RECOVERY MISSION. Period. I will admit, last night, I sent some text messages to the person who caused this trauma. I said some very not nice things. I don't regret the same but I do recognize my actions were completely unnecessary and have no benefit for Maryanne. I just had to let this person know the damage she caused. I am human and I have reactions like all humans. But, I'm going to try and do better. I need to do better!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 17, 2025

Good evening, Warriors! If you're keeping up you know today was full. Full of appointments at Wake Forest Baptist Medical Center (WFBMC). First up was a CT Scan to check on Maryanne's brain's progress with regard to healing, neural pathway reconstruction, etc. Next was an office visit with Dr. Wolfe to discuss the results of the scans and assess Maryanne's current state with regard to the progress she is making in rehabilitation and recovery. Lastly we stopped by the Vascular Surgery office for some Ultrasound scans of her legs and arms. We're checking on the status of her known blood clots and any which may be new/unknown.

I arrived early so I could ride along with Maryanne. She had pancakes for breakfast and was dressed to impress as our limo arrived right on time. I completed E-Check In so all we had to do was show up for each appointment. After the CT Scan we were taken to an exam room where we eagerly awaited Dr. Wolfe's arrival. Dr. Wolfe and her team examined Maryanne. They worked with all her parts and established a new baseline as to her current state of recovery. Dr. Wolfe spoke with me regarding Maryanne's new challenges resulting from the trauma she's been dealing with emotionally. She reviewed Maryanne's current regiment of medication and made adjustments she felt confident would yield a more positive, and beneficial result. The changes she implemented were not minimal. A lot is changing and based on the explanations provided by Dr. Wolfe, said changes are imperative. Dr. Wolfe once again, exclaimed how impressed she was with the progress Maryanne has made. Moreover, the speed with which Maryanne is recovering. The milestones set in place are being crushed. This woman is a fucking rock star! Do you get me?!

The Best News Of The Day Is This...
I advised Dr. Wolfe we are in a constant battle with Maryanne over her PEG (Percutaneous Endoscopic Gastrostomy) tube. Feeding Tube. Maryanne's "Crazy Hand" continuously attempts to remove this foreign body from her belly. Dr. Wolfe asked if Maryanne was eating and drinking. I responded with "YES! A LOT! ALWAYS!". "Then let's take it out", replied Dr. Wolfe. I had no idea it was so straight forward. Dr. Wolfe called a General Surgery dude she new personally and asked that he come by. He arrived in minutes and said "Hey, let's take this thing out." And he did. He braced the tube and pulled that damned thing right out of Maryanne's belly. The backside, in my mind, was going to be some contraption which may cause Maryanne pain. Nope. It's a small collapsible silicon cuff which popped right out. Maryanne barely flinched. For the first time since September, Maryanne is TUBE-FREE! This is so wonderful because not only do we no longer have to worry about Maryanne harming herself by tugging on the damned thing, we no longer have to worry about Maryanne needing tube-fed medication or supplements. What a fantastic day!

If you are here for the good stuff only, I wish you a good night and ask that you click out. If you are here because you want to know what Maryanne is struggling with and endeavoring to overcome, read on. This includes details related to the not-so-good updates we received today.

Very early on, it was made incredibly clear to us (Myself/Madi/Tyler) that emotional trauma can manifest in a way which impacts Maryanne's vitals. Primarily her Blood Pressure and her Heart Rate. We have repeatedly been made aware increases in either of these measurements should be closely monitored and addressed, as required. Negativity, unrealistic behavior, bad news, mean/hateful comments, too much exciting or overwhelming information/news, unusual or strange commentary regarding events or people, things which are outside of the normal day-to-day life of Maryanne pre-stroke... all of these things are potentially dangerous. In particular, since Maryanne's discharge from WFBMC on Oct. 21, one single event has taken place which carries with it all of the markings which align with all of the warnings we received.

On or about two Thursdays ago, Maryanne's recovery took a sharp turn in the most undesirable of directions. As a result of this event, psychotherapists, physicians, practitioners, talk therapists, social workers, and neurologists have met with our family on several occasions in an effort to determine what needs to be done to address the damage done. Today, we learned that Maryanne fell victim to a right-side frontal lobe stroke following her discharge. However mild, THANK GOODNESS, still damaging it was.

While the medical professionals work to determine the extent of the damage done when this event took place , the evidence left behind is substantial and caused Dr. Wolfe enough concern to prompt her to ask me if there was anything unusual/potentially damaging which may have impacted Maryanne's emotional state and/or emotional reactions/stability in the past few weeks. As I have maintained a written timeline of each and every day, I read to Dr. Wolfe my notes regarding the unwelcome visitor (on November 6) who visited without my permission, the phone calls to people this person initiated without my permission, the unknown words this unwelcome visitor spoke to Maryanne during her 3+ hour visit, against my wishes! I described to Dr. Wolfe the inconsolable version of Maryanne her Children and I struggled to reassure and calm. Every single day since that day has been the most taxing. The counting, whaling, crying, destructiveness... This is not Maryanne. This is the result of a selfish, uneducated, unconcerned, ill-willed, uninformed, and oblivious human, intent on nothing more than glorifying herself, while ensuring she causes the most harm possible, to Maryanne's family. Dr. Wolfe acknowledged this, was most likely the cause of the latest stroke.

FUCK YOU! YOU HAD NO RIGHT! You Are Pure Evil!

From Day 5! DAY 5! I have made it super clear. ONLY positivity. ONLY good! Only all that which will lift Maryanne up. Aid in her Recovery. Bring her home Safe! Why is this so difficult?!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 16, 2025

Friends! Warriors! Happy Sunday! Saturday was a fantastic day. Tyler and I took Maryanne for a stroll and enjoyed some much needed sunshine time. The wind was insane but we bundled Maryanne up and toughed it out for nearly an hour. I found some "sticky balls" that fell from a nearby tree and told Maryanne & Tyler my story of how me and my cousins earned $.10/bucket for picking up the sticky balls in our Grandparent's backyard. I still know not what these things are. I am attaching a photo of the sticky balls to this update. Comment what the hell they are, please!

Maryanne enjoyed an iced malted mocha thing from Caribou Coffee upon our arrival. We gotta' let her live a little. It was just a few sips. She was upright in the chair for a few hours. We ordered some Italian from the local family restaurant. It was super good. Tyler had wings. We watched a movie, talked about all the things, and I reminded Maryanne of her big plans for tomorrow. Tomorrow we travel to Wake Forest Baptist Medical Center (WFBMC) for some follow up appointments. Included in the agenda are a CT Scan, an office visit with Dr. Wolfe, and an office visit with the Vascular Surgery team. I'm unsure who will be representing that team.

While preparing for tomorrow and gathering all the things I will need, I thought of Chaplain Dane. If you read my updates regularly you will understand the significance of Dane in my life; our lives. I reached out to see if he will be working tomorrow and he responded nearly immediately. I will do my best to connect with him while we are in the building. The progress Maryanne has made since last she interacted with him, is massive. I'm so excited.

Tyler and I said our good nights. Maryanne was quite calm this evening. We are making progress and moving beyond the recent setback. We're good. Maryanne is good. It's going to be alright. I told her all the things I tell her before I kiss her goodnight. She smiled, kissed her son, and we drifted away.

Today was a great day!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 15, 2025

Happy Sunday, everyone. Today (Saturday) was a wonderful day. I arrived to visit and found Maryanne to be wide awake, quite happy, and ready to enjoy a terrific Saturday. I updated her on all the things happening since yesterday. I asked her about breakfast, Lunch, pain, discomfort, and various other unmentionables. She responded positively to all of my questions. Today was a fantastic day.

Maryanne had two very special visitors today. Last night she finally agreed it would be nice to have some visitors. I asked her again this morning. She was still onboard. If you have been following our updates, you know Maryanne has been struggling with visitors and phone calls. NOT TODAY! COMMENCE VISITATION! It was grand. Maryanne smiled, laughed, had a few bites of an Arby's Gyro (one of her favorite fast-food items), enjoyed some chocolate cake, kissed the faces of her friends and genuinely benefited from all of it! You really have to be present in the room to understand the impact these interactions have upon Maryanne. She becomes a different person and with that I mean this; Maryanne thrives when talking with her tribe. She does best while hanging out, as she always did/does, at the local watering hole, or at Sunday supper, or during a break mid-week and yes, even over a burger at Broad Street. For, and with, her tribe.

Maryanne has always prioritized her tribe, her people. Even now, during moments of quietness, Maryanne will occasionally ask, "How is Erin?, How is Cindi?, How is Brittany?, How is Joanna? Willie and Alexis? Eric? Bryan? (no mention of me, by the way). Is that kid okay? Did you pay the thing? Please make sure the water is set to drip so the pipes don't freeze. What happened with that thing at the place on that day?" I think this is the best way I know of which illustrates what is happening in Maryanne's beautiful head. Maryanne is still concerned about all of the things. I continue to assure her everything is okay and taken care of. Neuroplasticity is a very real and manageable thing! I know this! Make this challenge less difficult, it does not.

I want to let you all know, once again. I have but ONE SINGLE MISSION.

(1) KEEP Maryanne Safe, Ensure She Recovers, and Bring Her Home!

It really is just that simple. Those of you who are already #WarriorsForMaryanne and #ChampionsForMaryanne are more than aware, this is not a fly-by-nite operation. We are set to Educate, Prepare, and Protect, those who would otherwise have no idea. Maryanne is going to endeavor to make as many humans as possible, aware of the risk that is the rupture of an AVM, or at the very least, the existence of an AVM.

I would like to say the following in closing. That was stupid and I should not have said it. What I mean is that I need to communicate something which is very important. The family who visited with Maryanne today are among the most genuine and kind humans I've ever had the pleasure of knowing. Maryanne would tell you, "of course" because she knows. Now I know. Thank you! Your support means more than you will ever know, or understand!

Good night my fellow Warriors! I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 14, 2025

Good evening, Warriors. Last night completely got away from me as I spent the evening cooking some real food for both the kids, and Maryanne. Before I knew it I was exhausted and therefore, I crashed. However, I don't really have anything new to report. We're still working on getting the medication cocktail dialed in. Maryanne continues to eat and perform well in therapy. Today Maryanne stood upright for 16 minutes, with assistance. That's a new record.

We continue to work hard every single day, to reverse the damaged caused a week and a day ago. I honestly did not think it would take this much time or require this much effort but we are now able to confirm, the emotional trauma is much more difficult to "fix" than the physical trauma. Regardless, we're on it and this too, Maryanne shall overcome.

It was mild and beautiful out today so I wheeled Maryanne outside to enjoy some sunshine and gentle breezes. Each time I asked if she wanted to go back inside she answered, "NO!" So we enjoyed quite a long visit with the outdoors.

This weekend will be all about friends, continued healing and continued PT/OT performed by us as the rehab folks have the weekend off. I continue to be humbled by your incredible support of our little family. Know that our gratitude is boundless and we are so very grateful for all you have done, and continue to do. THANK YOU so very much, each and every single one of you.

Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 12, 2025

Good news! Today I have some wonderful news. It's been a minute so this is exciting. Maryanne started her new "cocktail" of meds today. The aim here is to get her mind to a place of peace so she may continue to put in the work needed to get her better. Newly prescribed meds have already begun to have a positive impact. Maryanne killed breakfast and performed wonderfully for the OT/PT/ST team.

Maryanne was sitting up on the edge of the bed. She stood for 3 minutes with support while stepping forward with her right leg. Her left leg still needs support but her right side is responding better than any of us could have hoped for. This is the first time Maryanne has been moved from the bed to the chair without the aid of a sling lift. This is simply incredible. She is working very hard and we are commending her and letting her know how very proud we are of her progress. These small milestones are celebrated with praise, chocolate pie, diet coke (coke zero), shoulder massages and a shower of kisses and affection.

Maryanne didn't really care for lunch but when Tyler mentioned he was going to get some food around 3PM, I asked Maryanne if she would like something. She responded with, "if it's from Taco Bell I do.". Tyler indicated Taco Bell, it was. Maryanne requested a Mexican Pizza and when Tyler returned, Maryanne proceeded to devour the thing. She loved it. We loved it, too. This too, is stimulation. Touch, TASTE, sight, smell, sound... we need all of it in the most positive of ways.

As the evening progressed Maryanne became agitated. She struggled to gain control of her thoughts but Tyler and I supported her and ensured she got through it all, safely. At 9PM she was administered the Trazodone ordered by her Psychotherapist. This nearly immediately provided relief and put Maryanne in a place of pure calmness. She wasn't even stroking her sopher. Tyler and I said our good night and left Maryanne to enjoy some very well deserved down time. Sleep has eluded her for the past 5 nights. I know tomorrow is going to be even more magical. This champion of females is doubling down and we are going to continue to be her Warriors for every single step of this Journey!

As a follow up to the updates posted during the last 2 days, all is well. Maryanne is fiercely protected. No action has been taken which would put her at risk. No unwelcome person has attempted to visit her. As of this time, the damage done last Thursday has been addressed. Maryanne will overcome and will no longer be at risk of becoming a victim to something similar, in the future. Of this, I am confident!

Thank you for your love and support. This would not be possible without you. Know that! Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 11, 2025

Good evening, Warriors. Today was full. Lots of consultations, lots of ideas and lots of planning. All three of us (me and the kids) met with the Psychotherapist and I had a one-on-one with the Talk Therapist who is also a Psychotherapist. We discussed the event, the issues which led to Maryanne's surgery, her journey since that day, her recovery and what it will look like moving forward, and how best to medically treat the challenges she is facing in her mind. I have notes. Thank goodness.

I began my morning by answering a call from the facility. The social worker called to give me some disappointing news. One of the individuals who is bent on sabotaging our mission, called the facility. Please know I am not surprised by this; I am simply saddened. This person identified herself and continued the conversation without ever mentioning Maryanne by name. She informed the social worker she knew Maryanne was a patient. She knew she was in the room she is in. The social worker advised her she was not permitted to enter the property. The person calling told the social worker Maryanne was being held hostage by the patient's husband and the staff at the facility. She also told the social worker Maryanne had called her several times since she was admitted, asking that this person come see her. MARYANNE DOES NOT MAKE PHONE CALLS. SHE IS INCAPABLE OF DOING SO. She told the social worker she was going to contact law enforcement and would be visiting Maryanne. The social worker advised the caller Maryanne is not being held hostage. She advised the caller Maryanne is being severely cared for and protected. She advised the caller Maryanne is unable at this time, to make decisions related to her care and safety and that due to that fact, her husband was the primary decision maker. She further informed this individual I have made it clear she will have no contact with Maryanne until Maryanne is mentally and emotionally capable of making a decision on her own, regarding who she has contact with. She also invited her, gracefully, to show up with law enforcement in tow. Do you guys have a clue as to how many documents I have signed? I didn't just show up and take control. The government is quite involved in matters such as this. I endure regular screening and am constantly prompted to provide all the things. I am in no way adverse to any of this. I just want my Angel to get better and come home.

I am in contact with the on-site social worker multiple times each day. We are not just on the same page. We are reading the same sentence, at the same time. She let me know the person who called was constantly trying to bait her. She recognized this, obviously. She reacted appropriately and squashed the failed attempt by the individual bent on putting obstacle after obstacle in front of us. The social worker provided the caller with nothing which would support her ridiculous accusations. Primarily because they are FALSE! STUPID! LUDICROUS!

Now that I know 100% the visitor last week is the cause of all of this trauma, a wall of protection I have erected. The difficult part is coming up with a plan which allows for Maryanne's tribe to visit, call, and continue to be a part of this mission from the front lines while also ensuring Maryanne is kept safe from those who prioritize their sickening agendas over all the things which will benefit Maryanne and her Journey to Recovery! No worries however. I've got it covered. Message/call/text me directly and let's set up a date/time. Maryanne needs you. I need you. The kids need you.

If you are a positive force and are dedicated to the goals of this mission, please reach out. I have not forgotten about those of you who made plans previously and were forced to postpone the same due to this anomaly. I will be reaching out to you personally to get you some face time.

Thank you for your love and support. This would not be possible without you. Know that! Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 10, 2025

This is getting ridiculous, Warriors! Just when I believed the damage done had revealed itself fully, I find myself fooled. Today was unlike anything we've experienced. Maryanne has slept approximately 2 hours in the last 48. Her mind is scrambled and struggling to find a path to peace. I believed I had an understanding of what to expect as Maryanne's brain heals. I was wrong. Very wrong. The Neurostorming is a very real thing. Maryanne is fighting through it but it's extremely difficult. I continue to tell myself. If anyone is strong enough to face this challenge, it's Maryanne. Right!?!?!

Neurostorming, also known as paroxysmal sympathetic hyperactivity (PSH), is a sudden and intense surge of activity in the sympathetic nervous system that occurs in individuals with severe brain injuries.

Causes: Traumatic brain injury (TBI), Stroke, Brain tumors, and Other neurological disorders.

Know that my meeting with Dr. Henderson this afternoon, was fantastic. We spoke about the issues. We spoke about what Maryanne needs RIGHT NOW. We agreed upon a plan which ensures Maryanne's mental health is cared for in a way which supports her physical health. Starting tomorrow, Maryanne will be administered Klonopin. I had hoped we would avoid this very thing but we have no choice at this point. The Ativan was working fantastically but it only addresses the cause. It's good for 30 minutes and then it's shit. The Klonopin will carry Maryanne and allow her to maintain mental control for hours. She will be able to complete therapy, eat, remain awake, and interact. We need her to react positively to stimulation of all sorts. This is what she needs. STIMULATION!

Klonopin is the brand name for the generic drug clonazepam, a prescription medication belonging to the benzodiazepine class. It acts as a central nervous system (CNS) depressant and is primarily used as an anticonvulsant and an anxiolytic (anxiety-reducing agent).

I feel justified in insisting I have a "pow-wow" with every single visitor. I have to brief folks so they are aware of Maryanne's "triggers", if you will. I'm struggling to find words. As I continue to consult the providers, I learn more and more. We (myself, Madi and Tyler) know what to say and what not to say. If you are unaware, you may trigger an episode. That's what I will call it moving forward; an episode. As the healing continues, Maryanne finds that the connections are there. They are working. However, she has no clue when it comes to how to cope with the process that creates those connections. Let me be clear! Your presence is NEEDED! Loved! Appreciated! We just have to be strategic about how we move forward.

Thank you for your love and support. This would not be possible without you. Know that! Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 9, 2025

As I prepare for the week before me, Warriors, I find myself doubting my strength. Doubting my conviction. Even if ever so slightly. The last 4 days have been extremely difficult. I'm speaking selfishly right now. I'm talking about me. Maryanne is struggling and every thought she has is relevant, relatable, and completely justified and understandable. But me, I'm finding it difficult to find my way. Thoughts are not as organized as they have been. Sleep is not great. Eating has become secondary. My temper is beginning to surface when I speak to others. I will correct my path. I will be okay.

My goal remains unchanged, however. We will support Maryanne's Recovery. We will protect her and keep her safe. We WILL BRING HER HOME!

I am going to work on the selfish part more. I still recognize all of you are impacted by the challenges of Maryanne's Journey just like me. I just need to make sure I keep that thought at the front of my brain. When Maryanne is ready, and I tell her about all of the wonderful humans who joined this mission and became a part of the movement to protect her and support her recovery, in the most magnificent, and dedicated way, she will be elated. But she will also not be surprised.

This is what unconditional love, support, caring, and friendship look like! Until now, I only saw this in Maryanne and my Children (my deficit). You, my friends, my rocks, have shown me humanity lives and continues to thrive in so many. It's sad it takes tragedy to open our eyes but I'm thankful as my eyes are more open than ever.

I wish I had more positive news. I am hopeful tomorrow's meetings go well and together, myself and Maryanne's providers can put together a plan which will ensure this mission continues to succeed!

Thank you for your love and support. This would not be possible without you. Know that! Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 8, 2025

Hi, Warriors. Please accept my apology. I simply don't have the energy to provide a detailed update tonight. Today was hard. Really hard. The damage done on Thursday as a result of the selfishness of the person previously referenced, continues to hinder Maryanne's progress. I spent the majority of our visit comforting Maryanne and requesting assistance from staff to aid Maryanne in finding slivers of peace and quiet, within her mind. This journey has been delayed as we all work hard to "fix" what has been done.

I will provide more information in tomorrow's evening update. For now, I have to regroup, reset, and work on a new plan to ensure Maryanne gets back on track and regains focus. I know she will. Of this I have zero doubt. This is not defeat. This is simply a setback. Overcome it, we will. SHE WILL!

Thank you for your love and support. This would not be possible without you. Know that! Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 7, 2025

Warriors! Today was the third most challenging since we learned of Maryanne's brain damage and multiple Pulmonary Embolisms. Today was all about damage control. The unwelcome visitor who entered Maryanne's room at her Rehabilitation Facility yesterday, has caused an extreme abundance of trauma. I know she has no idea of the impact her words and actions had. I know she wanted to see her friend and tell her things she thought to be beneficial. I know she put Maryanne on the phone with people Maryanne did not wish to speak with (although Maryanne says it, she has no idea what she's saying). I know she believed the words Maryanne spoke to her. I know for a fact, she is acting in a way which illustrates completely, her lack of knowledge with regard to what Maryanne needs at this very moment. She has spoken to none of the medical professionals currently advising our family. Those people who are most competent. The professionals we rely on to be Maryanne's Greatest Warriors.

I also know she has no idea when it comes to the state of Maryanne's mind and the status of her recovery from this catastrophic event. I have had multiple conversations with this person and not once; ONCE, has she asked about Maryanne's current cognitive condition/state. She understands not, the role Neuroplasticity and Neural Pathway Healing play in this recovery. But I also know she had no idea that her actions would be this detrimental. Staff spent more than 4 hours trying to get Maryanne to a place where she felt peace in her mind, this morning. The attending Physician was called in on her day off to assist. Dr. Henderson ordered Ativan be administered to combat the damage done by this person who is focused primarily on derailing Maryanne's recovery.

Ativan (lorazepam) is a prescription benzodiazepine medication primarily used to treat anxiety disorders, insomnia caused by anxiety or temporary stress, seizures, and alcohol withdrawal. It acts as a central nervous system (CNS) depressant, producing a calming effect by enhancing the activity of the neurotransmitter GABA in the brain.

HOW DARE THIS DESPICABLE HUMAN PUT MY WIFE AT FURTHER RISK?!?!?! I don't hate people. I don't wish harm upon people.

But, this is among the most evil of things I have ever experienced. What would cause a person to choose to intentionally harm another human who is fighting to heal and recover from such a traumatic, tragic, event? This person is a fucking flight attendant. Her existence consists of walking aircraft isles, checking in/out of hotels, and filling bag after bag with face masks packets and granola-oriented hemp and coconut crap. She is among the most ill-equipped in every single way, to provide Maryanne with anything which would resemble care, support, love and/or guidance.

Maryanne took a break for the remainder of the day. She is physically and emotionally exhausted. Thankfully, and as most of you know, Maryanne is so strong. She will complete the journey to the other side of this disaster. She will continue to recover. She has no choice!

My Children are my greatest supporters. Without them I truly believe I would be losing my mind. We are 3-STRONG at our core! But it's not just us. Behind us are more than 200 people who will fiercely defend this mission. Nearly all are people who have been positively impacted as a direct result of having Maryanne in their life! These are our #WarriorsForMaryanne!

This is Maryanne's Army! If this person, or any person for that matter, attempts to sabotage this movement in the days ahead, no amount of thought or prayer will protect you. Of this, I assure you!

Thank you for your love and support. This would not be possible without you. Know that! Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 6, 2025

Today was very much, a day. I arrived for my appointment with the therapy team and discovered a very unwelcome person was in Maryanne's room. I have no idea how this person discovered Maryanne's location. I have no idea why this person has positioned herself to be against all that ensures Maryanne recovers, remains safe, and comes home to us. I did however, tell this person to leave. I repeatedly told her to get the fuck out. I stressed to the two therapy nurses and the physician assessing Maryanne's current state, this person needed to be removed immediately. This person gathered her things and left. She did state that Maryanne wanted her to visit her. This was a false statement as Maryanne has no idea who this person was. After speaking further with Maryanne's care givers I discovered this person attempted to aid Maryanne in exiting her bed and going to the restroom. This person has no idea of the progress Maryanne has made. She has at no time asked me, or the kids, if Maryanne is able to make decisions on her own. She sided with selfishness and chose to put her goals, and her ideas, ahead of that which ultimately benefits Maryanne.

This person made phone calls and connected Maryanne with persons she did not wish to speak with. She made decisions which are only permitted to be made by our family. She has the most evil of intentions and will stop at nothing. As a result of all of this, I have no choice but to place severe restrictions on visitation for Maryanne.

This is the last thing I would ever wish to do. Maryanne needs her Warriors NOW, more than ever. She is doing fantastic and needs the support of those she loves. Make no mistake! I am a Fierce Protector. I am vigilant. I am vindictive. I am a Champion for Maryanne. First! Period! But I am above all, Maryanne's biggest fan! Will you join me? If you are a true friend, a true Warrior, I know you will be just that!

Thank you for your love and support. This would not be possible without you. Know that! Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Maryanne's Journey - Evening Update for November 5, 2025

I feel really bad about it but I stayed home today. I had to make a lot of calls, and get my shit together. Tyler and Madi spent the day with their Mother, in my place. Madison got Maryanne to work with her activity books doing some coloring. This is fantastic. I got a call from Ashley (PT) and agreed to meet with her in the morning to put together an updated plan for Maryanne's OT/PT/ST moving forward. Since Maryanne doesn't get gym time on Saturday and Sunday, it's vital we keep working her.

I will admit. It's hard for me. When Maryanne tells me she is hurting, I get anxious and I become much more gentle. This is not helping. She's my Angel. I know I need to push harder but it's difficult. Continue to be her Champion, I will. Push through? I will!

Thank you for your love and support. This would not be possible without you. Know that! Good night. I wish you a wonderful sleep, fantastic dreams, and I can't wait to talk to you tomorrow.

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Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for November 4, 2025

Today was a great day. Maryanne was awake and alert. We watched a movie, had some food, enjoyed some massages with lotion on our hands, arms, calves, and feet. It was wonderful.

Maryanne continues to eat and drink on her own. She asked to brush her teeth and in true Maryanne fashion, she brushed for 5 minutes. Maryanne really loves brushing her teeth. I noticed as I snuggled next to her in the bed, she was scratching her head. All over. I asked her if she would like me to wash her hair. She replied, "I would like that very much". Commence washing, then massaging, then washing, then rinsing, then massaging... you get the picture, I'm sure. I dried her hair and gave her all the smooches. She was visibly quite happy.

While massaging her and applying lotion, I'm actually working on her arms, hands, legs, and feet. I'm stretching her and moving her arms & legs back and forth. I know she's on to me but I have realized she wants to move. She just needs someone to support her in a way which doesn't feel like support. I almost feel stupid for not realizing this sooner. I'm pretty sure Maryanne is going to get nightly massages for the remainder of her life. I can't wait! I think I'm getting more out of all of this than she is!

Sadly, I have to stay home tomorrow. I have umpteen phone calls, two office visits and a ton of other crap I have to take care of. The kids will be with their Mom and I'm so thankful for that. Not gonna' lie. Things are getting harder and I need the help. This team of 3 will tag team the shit outta' this. I have no doubt!

Maryanne expressed today that she is okay with having phone calls. She may feel differently in the future but for now I'm encouraging anyone who wishes to do so, to reach out and I will ensure you connect with Maryanne. Having said that, please know Maryanne's voice has changed. This is partially a result of her tracheostomy. She's still healing. She will talk with you but her voice is a higher pitch and is quite monotone. Know this however, she is still all of her fantastic self. She just has a different sound. That's all.

I wish you all a wonderful sleep full of fantastic dreams and I can't wait to talk to you again tomorrow!

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Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for November 3, 2025

Good evening, Warriors! I would like to apologize for neglecting to post an update yesterday. This happened one other time early on and I feel terrible about it. With all the cooking I was doing I completely forgot about what was happening for a bit and as a result, I didn't think to post an update. Please know Maryanne is well and being her fantastic self.

Tyler spent the day with Maryanne yesterday and I cooked up her favorite pot stickers, some spätzle with the yummy mushroom gravy, and a ton of birria stuff. She can have tacos or bowls or just eat this stuff right out of the Tupperware. I know she will enjoy it all.

Madison and I spent the afternoon with Maryanne today. She got to work in the gym this morning and is continuing to eat on her own with little assistance. Same goes for drinking her water and "diet coke" (we secretly switched her to coke zero). She ate all of her lunch and really enjoyed the Swedish meatballs with egg noodles she was served for supper.

I again asked her if she would be up for some phone calls but she wasn't feeling it today. We both noticed Maryanne was quite comfortable today, temperature wise. Until now we've been keeping the A/C on and sometimes, set below 70, all in an effort to keep her cool. Hot flashes, y'all. They're real and a PITA.

Again, we are so very grateful for your support. Without our Warriors this journey would be far more difficult, not to mention stressful. We love you and continue to tell Maryanne about all the things you are doing to keep this mission on track. The Amazon Wish List has been updated again thanks to some very generous friends. You know who you are! Thank you!

I wish you all a wonderful sleep full of fantastic dreams and I can't wait to talk to you again tomorrow!

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Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for November 1, 2025

Today was a good day. Maryanne was a little tired but this is to be expected. We watched a film and enjoyed a malted mocha frozen treat. She really loved the treat!The supper menu was less than inspiring so I suggested we eat out. Maryanne asked for a pulled pork sandwich, Mac-N-Cheese, and Tots. I fetched the same and we enjoyed some illegal food. It was wonderful. I spent most of the afternoon chilling with Maryanne, holding hands, whispering all the things, and getting all the smooches. Like I said, it was a good day.

My video update includes some additional details related to Maryanne's decision to cut her hair. I urge you to view the same. It's linked in my personal post and I will try to post it here as well. Thank you for your support. Thank you for your love. And thank you for being a Warrior For Maryanne, and our family!

I'm going to sleep, now.

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Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 31, 2025

As we close out #AVMAwarenessMonth, I am so appreciative for the information I've been exposed to and absorbed. At 52 years of age, I'm shocked this is something I never previously knew existed. My eyes are open and my mind is focused. A force for positive change, we will be!

Happy Weekend, Warriors! Today was a fantastic day. Sydney Ann came to visit Maryanne today. Maryanne was loving it. Sydney hopped up on the bed and made herself at home. The other patients and even the staff, got unlimited chances to shower Sydney Ann with all the pets.

Everything went well today. Maryanne hit the gym first thing after having some eggs and bacon. She killed her workout and chilled in her chair for a spell. Maryanne had a bean burrito from Taco Bell this evening. She also enjoyed some of her supper from the grill. I reminded her we still had some chocolate pie. She said, "that, yes". She had 4 bites of pie and proclaimed she was full.

Maryanne became frustrated with her hair today. We knew this was coming. Her hair is quite matted and tangled. The Nurses have done all they could to aid in keeping Maryanne's hair in check but after the surgery, not much could be done. I reminded Maryanne I was prepared to "fix" her hair. I let her know what we needed to do and asked her if she was okay with the same. Although I am the "decision maker", Maryanne will be making decisions regarding her care every chance we get. She asked that I proceed. I sweetened the deal by offering to give her a soothing shampoo and rinse. Maryanne was onboard. I did all the things I told her I would do. She's much more comfortable and she made it quite clear she would like me to dye her hair pink. This too, I will make happen!

Thank you friends, family, Warriors! As I spend time with Maryanne I continue to see what is happening to our fellow human beings. I want to find a way to be involved in a way which provides food for those who are at risk of losing their nutrition funding. This shit makes me sick to my stomach!

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Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 30, 2025

Good evening, Warriors. Today was a day. Lots of ups and downs but know this. Maryanne did fantastic in rehab this morning. She's making strides in eating on her own, correcting her posture, improving on her eye-hand coordination, and much more. We are so proud and are making her very aware of how amazing these achievements are. Each day continues to have its peaks and valleys. This is expected and we have prepared for it.

The advice from all of you along with that from the medical professionals guiding us on this journey, is so greatly appreciated. Please understand that your input is vital and I cherish it. We cherish it.

As a reminder, we are focusing on raising funds at this time. If you are able (this government shutdown/snap benefits crap is simply evil, by the way), and I mean ABLE, please contribute. We also are thankful for your shares.

This mission continues. Nothing has changed. Maryanne will win the day and continue to be there for every single human who may need her. Thank you for your dedication, love, and support. Good night!

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Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 29, 2025

Today was a fantastic day. Maryanne was alert and encouraged and ready to tackle all that which lay before her. Then reality set in. We took a break today and didn't to go the gym. The PT/OT team visited with Maryanne and determined she was in pain and was "lethargic". As a result, PT/OT was conducted from Maryanne's bed. She still performed great and enjoyed an afternoon nap. Maryanne is more aware of what is happening. Please be patient.

When Maryanne awoke, I presented her with Supper and we enjoyed some food, or so I thought. Maryanne craves flavor and she's not getting it. She's eating but it's obvious she is not enjoying what she's consuming. I am going to fix this. Pot Stickers, incoming with ginger-soy, hot! Chicken Marsala. Lombardy. All that. It's coming.

It was a good day over all. Thank you for your support. Thank you for your love. It's go time!

#WarriorsForMaryanne
#AVMAwareness
#AVMAwarenessMonth
#TeamMaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Friends and Warriors For Maryanne! I am reaching out in desperation. Maryanne is on track to come home in the coming weeks/months. We need to ensure she has a home to come home to. I will be her primary care giver effective immediately, when she WALKS through the front door. I will receive benefits as a care giver and will be permitted to work, finally, for a humble income, ensuring Maryanne remains eligible for medicaid coverage. This is so very important! Until that moment arrives, we need your help.

If you can donate $10 and share this post with others, we may have a fighting chance. I am with Maryanne every day. I am learning what needs to be done when Maryanne comes home. I am motivated to be her champion for as long as she needs. Tyler and Madison have put their lives on hold and are focusing on doing all they can to support their Mother's recovery.

Although Maryanne's Journey to Recovery will be long and challenging, her family and her army of Warriors are ready to face that challenge. We just need a little help to get there. If you would prefer to donate privately and without the application of fees, you may send your love via PayPal, to my account: lzzrdboy@gmail.com.

THANK YOU for your support. THANK YOU for your LOVE.

Thank you for being a Warrior for Maryanne!

https://sites.google.com/view/warriorsformaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Maryanne's Journey - Evening Update for October 28, 2025

Good evening, Warriors. Although I got a late start today Maryanne was awake and alert when I arrived. Know that Maryanne is motivated and continuing to make positive progress. She performed well during her PT/OT/ST. She was upright and in a chair for 3 hours today. She's not eating as much but we are providing her with protein and nutrient supplements to ensure she's getting all she needs to continue to put in the work. Tyler came to see his Mom and Maryanne was elated. Today was a great day!

You! Our Tribe. Maryanne's Tribe. You are so very appreciated. Please know I continue to tell Maryanne all of the wonderful things her people are saying and doing. I continue to read her messages, show her your social media posts, videos, and photos. She visibly enjoys see her Warriors doing what you all do. We Love You and we thank you for your unwavering support!

#WarriorsForMaryanne
#AVMAwareness
#AVMAwarenessMonth
#TeamMaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 27, 2025

Greetings, Warriors! Today was another good day for our mission to support Maryanne's recovery. Maryanne enjoyed some eggs with toast this morning and had some of her favorite Vietnamese coffee. She worked hard today. PT/OT/ST was early, and it was intense. She performed fantastically. She's frustrated she can't do more but she has no idea, even as I constantly remind her, the massive amount of progress she's making in such a short period of time. We continue to tell her how proud we are of her. We continue to support her when she expresses displeasure with her progress. She's quite vulnerable right now. Not because she lacks strength. It's because she wants to do more (she doesn't need to do more) and she feels incapable. We are now in a place where we gently motivate, reassure, and encourage her focus, while acknowledging her emotional discomfort. So that is what we will do!

As of today, I am suspending visitation. This decision is not the result of anything anyone did, or did not do. It is simply a decision which has to be made. As Maryanne's neural pathways continue to heal, she struggles to grasp an understanding of pretty much everything. Those things/instances which are obviously positive indicators are not interpreted by Maryanne in the same way we would interpret them. I'm unsure how better to explain this. Feel free to comment if you have a more clear way of communicating this phenomena in a way that expands on the meaning of neuroplasticity. I will let you all know when Maryanne is open to hosting visitors. Please know we all sincerely appreciate your understanding.

Thank you again for the love, encouragement, support, and wonderfully kind messages and words. This community of supporters is steadfast and committed. I feel it! I know it! Only together, will we win the day! I am so proud of each and every one of you and I cannot wait for the day to come when I get to show Maryanne the incredible amount of Love being poured out for her. Thank you!

#WarriorsForMaryanne
#AVMAwareness
#AVMAwarenessMonth
#TeamMaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 26, 2025

Good evening, Warriors. Please understand while today was a good day, I'm not prepared to provide a detailed update. Maryanne's brain is continuing to heal and as a result, she's recognizing more and more, what is going on. I will provide more information tomorrow. Maryanne had another dedicated Warrior visit her today. Maryanne enjoyed the visit but was also very tired today. We had some food, watched some TV, and listened to some music from Maryanne's playlist while she sang along. Today was a good day.

Thank you again for the love, encouragement, support, and wonderfully kind messages and words. You are the fuel which powers this movement. You are the people Maryanne holds closest... we hold closest! You are a Warrior For Our Family!

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 25, 2025

Today was a very lovely day. I arrived to find Maryanne resting with her eyes closed and her eyeballs still. We can tell when she's genuinely asleep as her eyes don't move under her eyelids. I feel like this should be a given but I've not given much thought to this prior to the event.

Lunch was roasted turkey breast with candied yams, long grain rice, and a cherry parfait. I tasted all the things and told Maryanne they were all great. She ate quite a bit and asked that I keep the cherry parfait she didn't eat, for later. I ensured her I would. Here's a funny. Maryanne said she did not enjoy the whole cherries "squirting" in her mouth. I reminded her of Freshen Up chewing gum. She smiled. If you're old enough you will get the reference. "Exactly", she exclaimed.

I grabbed the nail file and worked on Maryanne's fingernails. She keeps trying to chew on them and I am now aware it's because they are "picky". I fixed that problem and then picked up one of the many bottles of lotion. I coated my hands and worked with her feet, calves, thighs, forearms, upper arms, and hands. Her skin is quite dry so we do our best to keep her moisturized. The room smells fantastic, by the way. I asked her if I could wash her face and hands and she agreed this would be refreshing. I used the gentle soap stuff from the hospital with a hot cloth and she thanked me for taking such good care of her. I reminded her she is the one taking care of me, and the kids. She smiled.

Maryanne is doing fantastically. She is becoming more aware she is recovering from this event. She is irritated and frustrated with herself. This was expected. I talked with Dr. Wolfe about this very "thing" 5 days prior to Maryanne's discharge from WFBMC. It may seem like we're sliding back but the brain is still working to establish new pathways. Even now, when Maryanne encounters a speed hump, healing is happening. Maryanne is doing fantastically!

This is the end of tonight's update. The next paragraph is unrelated to her journey to recovery.

We are severely aware there are human beings who feel as though we (myself and our Children) are strong enough to handle additional challenges. You have our thanks for your faith in our little tribe. We know there are those who feel the need to place before us, barriers and obstacles meant to derail us from our path. We sadly, possess the knowledge that people who once claimed to be genuine; people who once represented themselves as honest interlocutors and true allies, were in fact, simply erroneous. Yes, we were deceived. You stood back and took a good look at what we are experiencing; what Maryanne is experiencing. You then made the conscious decision to put upon us, more. My Focus. My Children's focus. Maryanne's Tribe's focus. It remains unchanged. It remains steadfast. It remains the one, single, priority we all endeavor to champion for every single day. If you are going to focus your efforts in a manner which counteracts/contradicts anything which may be interpreted as positive to this movement, take a fucking seat. You will be here for a very long time! You WILL NOT succeed in your efforts! In the end, it will not be us who reveals this fact to you. It will be Maryanne herself. She will make very clear to you, exactly what she thinks of you and your behavior following this most traumatic event.

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 24, 2025

Good evening, Warriors! I hope each and every one of you had a fantastic day. I know I did. I recognize now that every day I get to go be with my Angel, is already fantastic.

I began today by reminding Maryanne Haleigh and Gracie were coming to visit from Wake Forest Baptist Medical Center (WFBMC). She was excited to be reminded.

The wound care doctor came by today and I received an update which was simply wonderful. Maryanne's wounds are healing and in a week or so, she should be completely pain free from said wounds. Not gonna' lie, PT/OT is tough when you're hurting as a result of things which are not related to PT/OT. I took a look at the wounds and I am able to confirm they are looking just great.

There was a fall festival today in the courtyard out back today. I learned there would be flame grilled hamburgers, hot dogs, ice cold beverages, games, and ALPACAS! I advised Maryanne we would be taking a stroll to pet on some Alpacas and she lit up. The staff migrated Maryanne to the chair and I wheeled her outside to enjoy the sun, the cool air, and some furry little very strange looking animals. Seriously! Who designed the Alpaca? Their names were Peanut and Amber. We took some photos with Peanut and enjoyed a few soft pets. The Alpacas make this constant humming sound. It's funny as it seemingly never stops. Kinda' cute. Madison arrived so we fetched her and brought her back to check out Peanut and Amber. It was just a great time outside.

Haleigh and Gracie arrived with flowers, a pink balloon, a tear-inducing card, and a Hershey's Chocolate Creme Pie. WHAT?! This was the first time we have seen them out of their scrubs. We all knew they were beautiful young ladies but my goodness. They both are truly just as beautiful outside as they are on the inside. They spent some time talking with Maryanne. They spent some time talking with me and Madi. They gave us some valuable advice. They weren't just there to visit as Maryanne's newest Warriors. They were there to check things out, give Maryanne a once over, ask some health-related questions and provide their knowledgeable feedback regarding their observations. I never thought about this. I was so thankful. Madison was too. Maryanne made it obvious she loved the fact they came to visit her. They are part of her tribe after all! Thank you, Haleigh & Gracie! Your presence has meaning beyond that which you are aware. We can't wait to see you both again soon!

Madison headed back to Statesville and I spent the evening caressing Maryanne's forearm. If you're reading my updates you know why I do this. Maryanne wasn't really feeling the TV tonight but she enjoyed a tasty grilled cheese sandwich with piping hot tomato soup for supper. She ate a good bit and after she'd had enough, we both enjoyed some Hershey's Chocolate Creme Pie. It was fantastic. The Nurse administered some pain medication and Maryanne got super tired, super fast. I told her all the things I always tell her before I wish her a good night. I cleaned up her room. I Refreshed her water supply. I dimmed all the lighting, and I hit the road destined for the house I live in.

My Golden Girls greeted me as I entered the doorway. I love seeing them because they love seeing me. I never wash my hands when I leave at the end of the day. I do this so Sydney, Elsa, and Bella can smell Maryanne's scent when I get home. They all sniff, and lick my hands, and wait for their scratches. I provide said scratches, wash up, and get to work on this evening's update.

#WarriorsForMaryanne
#AVMAwareness
#AVMAwarenessMonth
#TeamMaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 23, 2025

It's Friday, Warriors. I haven't enjoyed the last day of the work week in quite some time. But today, I'm enjoying it for so many reasons. Maryanne has begun Phase 3 of her recovery. She performed fantastically during her first full morning of PT/OT/ST. The Speech Therapist is very happy with Maryanne's progress. Work on her left hip and leg has already yielded some very promising results. She's not comfortable. It hurts. But she knows the end game is our primary focus and she's motivated to cross that line!

Maryanne was surprised by two very special visitors today. As always, I withhold names, but feel free to recognize yourselves. Maryanne was overjoyed with the visit. She got to munch on some of her favorite flavors which were lovingly prepared by our visitors. We laughed as Maryanne cracked jokes and brought the come-backs the entire time. I just love how her sense of humor is so intact. She gets so much enjoyment out of making her people giggle. It's quite cute. As we sat in the round and talked about past visits, events and future surprises, everything felt so very familiar. The "Decktogethers". IYKYK! I don't know why I failed to think of this but her visitors brought her a plant. Not a potted plant but a plant suspended in water. The green life is a fantastic addition and it adds warmth to the room. Thanks, you two! LOVE YOU!

Our special visitors departed and Madison & me refocused our attention on Maryanne. The latter part of the day was littered with speed bumps. I won't get into details but Maryanne is now having to put in the work and it's leaving an impression, if you will. She's got some pain. She's got some reservations. But best of all, she's got her tribe behind her, supporting her, and pushing her up this hill she will ultimately crest! We all know this.

The Attending Physician came by today. This is so cool. The Doctor is a FEMALE! I need to get birthdays and play the lottery. We talked about Maryanne's pain and came up with a solid plan which will ensure Maryanne is able to complete her daily rehab goals while experiencing as little pain and discomfort as possible. I think we nailed it. The Doctor is fantastic and is now 100% up to speed on Maryanne's current medical state. Know this!

I had a few calls and Madison had some supper with Maryanne. Maryanne so-so enjoyed the lasagna but seemed to Digg the purple pie. We are still unsure what that was. Like I said before, it's about the flavor. Most of this food needs all the things to have taste. Maryanne is not a fan of sweets and sugar. But in this instance, she is craving flavor and the only items providing that are the sweet snacks.

You know how I always talk about the positive impact Maryanne has on the lives of humans she doesn't know? Today I received an email from Haleigh. Haleigh is one of the Nurses who cared for Maryanne in the Neuroscience Tower at WFBMC. She reached out to me to ask if she could come visit, with Gracie (another of our favorite caregivers). I was overwhelmed at first. These ladies make me emotional when they talk to Maryanne. They are so sweet it's sickening. Haleigh and Gracie are part of the incredible team of supporters and caregivers at WFBMC. Maryanne will tell you these two young ladies are members of her tribe. They are steadfast Warriors and without their expertise, comfort, understanding, and love, Maryanne would truly not have progressed as quickly as she has. At the risk of sounding creepy, I truly love these two young ladies and I know with all that I am, they are going to be fantastic forces for goodness, positivity and healing as they continue to provide the most magnificent of care for those who need it. As I age, I recognize the severity of the impact those around me have on my life. Maryanne and I have discussed this. Haleigh and Gracie have left an unimaginable impact on my being. I am forever changed in knowing these warriors do what they do because they genuinely care. This is a rare find, my friends. Shower these humans with all of the wonderful things they deserve. I am forever grateful to these amazing heroes!

With all of that, I bid you goodnight. Today was... a day. Tomorrow will inevitably be another "day". This is our reality. This is our motivation. This is our Mission. We will win the day!

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 22, 2025

Good evening, Warriors. I'm sorry last night's update was not as thorough as previous updates. I was simply exhausted and needed to check out for the evening.

Today was a great day. Maryanne began PT/OT/ST today and although it was extremely tough, she did a fantastic job. In just 2 short hours she made significant progress. Range of motion with her left leg is improving and her neural pathways are healing fantastically. She was understandably uncomfortable following her "work out" but she's committed and so are we.

For the first time in 45 days Maryanne got the chance to feel the sun shine upon her beautiful face. Madison and I rolled her out to the outdoor seating area and sat for a spell. Within minutes Maryanne exclaimed, "it's hot". As we've been saying, she's still the Maryanne we all know and love. We retreated to the covered area and sat on a bench with Maryanne while she enjoyed the cool autumn air wisping across her face. We chatted for a bit and returned to Maryanne's room when she was ready.

Madison cared for Maryanne's nails and decorated her room. I set up some tech and resolved some power source issues. We now have enough juice to keep all the comforts of home running in her new space. Madison headed out to work and I spent some time hanging out with my Wife. It was a good time. I can finally sit next to her and just chill. In the hospital standing was the only option if I wanted to hold her hand or lay my head next to hers on the pillow. Now I can get right up next to her and we both really enjoyed it.

Maryanne had some lunch, a ton of water and when I let her know I was headed to Mickey D's for some fries, she asked for the same and a chocolate shake. I obliged and we both enjoyed our favorite fries and a sweet treat.

Maryanne drifted off for a bit and I used the time to sign all of the things. Warriors, the documentation required for this type of thing rivals that required when closing on a new home. I read through everything and signed those documents I was in agreement with.

Maryanne and I spent some time watching Desperate Housewives of New Jersey after she awoke. She had a chicken Caesar salad for supper and became quite tired after. We cuddled a little and I said my goodnights as I always do. She thanked me for being patient and helping her, as she always does. That's simply who she is. I thanked her for being so strong and for making us so proud.

It's just me with the dogs tonight so I headed home to give the furry kids some love. During my 45th day of driving back, I pondered quite a few things which have been weighing heavily on my mind. Warriors, if you have family who show up and support you and/or your vulnerable loved one, no matter what challenges you are facing, no matter what disagreements may have caused you to grow apart, no matter how many days it's been since you last spoke, hold those family members close. They are special and they are worth your time, not to mention your love and admiration. It seems this is a rare thing during these highly uncertain times. We need to find a way to do better. Especially when it comes to our relationships with those we should feel the most genuine connection with.

As of this evening, Maryanne is still not comfortable with talking to folks on the phone. I asked her why she doesn't want to hear from her people and she quietly told me, "I'm just not ready for that". Please know that although she was open to take calls previously, her mind was just starting to heal. In the last few days she is more aware of what is happening than ever before. She's expressing frustration with her physical limitations and it seems as though she feels she is a burden. I repeatedly reassure her the friends who wish to speak to her don't care about any of that and that they just want to talk to her. When she is ready, I will encourage all of your calls.

#WarriorsForMaryanne
#AVMAwareness
#AVMAwarenessMonth
#TeamMaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 21, 2025

Good evening, Warriors! Today was a very full, very trying, and very gratifying. I know that makes not much sense but that's the only way I can describe it. I'm not going to provide a detailed update tonight but that's mostly because there aren't a lot of details to share.

Maryanne is doing great. Her vitals are right where they need to be. She was transported to the Rehabilitation Facility this afternoon and she's ready to start Phase 3 of this epic journey. Madison came to check on her Mom after work this evening. Maryanne had quite a bit to eat and drank a ton of water. I greeted all of the staff who will be interacting with my Angel. I advised all of them of our expectations and made sure they were aware of all of the things they need to know regarding Maryanne and her status as of today. I informed everyone of what Maryanne prefers, likes, dislikes, enjoys, and what makes her comfortable. I met with the Director and communicated to her all of the same.

Tomorrow I return bright and early with Madison. Tomorrow we get to work. Please know I will provide some more details after tomorrow's visit. For now, I'm just done and need a break.

Thank you to all of you for your support, your understanding, your willingness to help us, and your love for my little family. You aren't just Warriors for Maryanne. You are Warriors for all four of us and that makes you part of our family, always!

#WarriorsForMaryanne
#AVMAwareness
#AVMAwarenessMonth
#TeamMaryanne
Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 20, 2025

I headed out earlier than usual today because I knew not when the insurance provider might approve our claim. When I arrived I found Maryanne leaning far right. This was unusual because she favors her left side heavily. I asked to straighten her out. She was okay with it and as a result, she was upright enough to support me giving her some food. Sadly, she was not down with eating. It's expected. The tube feeds are keeping her full even though they have been reduced. Tonight, Dr. Wolfe stopped by and said she was halting feedings. Maryanne needs to get hungry enough to keep eating real food. No more milkshakes. I took a lot of minutes with Dr. Wolfe. I asked her a lot of questions but best of all, Madison got to meet her. Madison had yet to meet her. It was fantastic! We're leaving so I had to say all of the things. This woman saved Maryanne's life. She is a Super Hero. Period.

Madison visited with us after work and Maryanne lit up, as usual. We also had two more special visitors. Keep in mind, all of Maryanne's visitors are special. It's because you are Warriors! Maryanne immediately became so much more animated. She was talking loudly. She was laughing out loud. Seriously. Like, chuckling! It was absolutely fantastic. She was so happy and it was clearly evident my notions were correct. Maryanne needs her people. She draws her power from YOU! You are the energy that fuels all she does, and wants to do. As of late, Maryanne has not been willing to communicate. I ask her every single day if she would like to speak to her friends. She continues to tell me "In a minute. Not yet." For now, I'm honoring her request. I am thankful for your patience!

I "fetched" Savannah today. I knew she was working but she was not assigned to Maryanne. I still don't know why but I feel this strange connection to this young lady. She has been such an amazing caregiver to Maryanne and I learned tonight, she was new to the floor when she was assigned to Maryanne back in the day. Savannah is OG and is a true Warrior. I'm going to stop rambling and tell you this...

Within the next 48 hours Maryanne will be transitioned to a Rehabilitation Facility. She is no longer being medically cared for at WFBMC and therefore, she's ready to give her bed to the next patient so that they may heal and recover just as Maryanne has. Maryanne is doing fantastic. Her recovery is moving at an exponentially positive pace and she is ready to do all the things she needs to do to get where she needs to be.

Do you guys recall me talking about how Maryanne has to get to work? Rehab? It's a bitch. We all know it. Now is that time. It's go time. Are you a Warrior For Maryanne? I know you are! Thank you all, so much for giving us all that we need to keep going. You have no idea!

Tyler, Madison, and myself are doing well. It's a journey but we all know that. Thank you to all of you for your support, and your love!

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 19, 2025

I visited with Maryanne for several hours today and we had a wonderful time. Maryanne was awake and responsive when I arrived but quickly fell asleep. Megan, the Charge Nurse, told me Maryanne had a busy morning. Ruth came by a few times. They repositioned Maryanne and made her much more comfortable. She had quite a bit from her supper tray. She nearly consumed all of her apple sauce. This is fantastic. She had a few bites of meatloaf and potatoes and drank some orange Gatorade. Scroll down to learn more about the Gatorade fix.

Maryanne will be transitioning soon. I look forward to helping her take the next step and start to put in the hard work. She's ready. She's motivated. You can literally feel it when you are around her. It's go time, my friends. So! Let's Go!

Tyler, Madison, and myself are doing well. It's a journey but we all know that. Thank you to all of you for your support, and your love!

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 18, 2025

Good evening, Warriors. I completed two tours (1 virtually) today and made my final decision, along with Madison's blessing, on the facility we will be sending Maryanne to for her inpatient rehabilitation. She should be transitioned within the next couple of weeks. If you would like to visit Maryanne at said facility, please message me directly.

When I wrapped my tours I headed to WFBMC and greeted my Angel as I always do. Good Morning. I missed you. I love you. I hope you had a good sleep. She was alert and super-talkative. We had the best time. Every day I ask her a series of questions. These are the same questions the Nurses and Doctors ask her. She had some interesting answers today. She's thinking with the front of her brain right now. This is how it was explained to me. Short term memory needs a little more time to heal. We are getting there though. Maryanne recalled her full name and birth date today. That was huge.

To those of you who have asked to speak to Maryanne over the phone. For 3 days she has responded the same way to this question. Maryanne, there are friends who want to talk to you. Jana, Carrie, Tonya, Georgi, Derek, Abi. They all want to call you. Her response remains the same. In a minute. Tomorrow I may simply take/make calls and put you folks in her ear. I know she highly dislikes video calls but voice calls should not be a problem. I know she needs to hear the voices of her people. Bare with me guys and I'll make this happen.

Vitals, progress, awareness, range of motion stuff... it's all good for the most part. Maryanne continues to do fantastic. Thank you again to all of you for your support, encouragement, and uplifting nature. Let Phase 3 Begin!

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

#WarriorsForMaryanne

#AVMAwareness

#AVMAwarenessMonth

#TeamMaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 17, 2025

Hi, Warriors. Today was a very chill day. Madison and I toured a rehabilitation facility and visited with Maryanne. She continues to be progressing and achieving her milestones. We worked hard today to get Maryanne to eat. We had some meatloaf, rice, pot roast, apple sauce, orange sherbet, vanilla and chocolate pudding, green beans, and carrots to choose from. The choices were numerous because I placed an order for supper after the nurses did. Therefore, Maryanne got two meals. After running through all of the options, Maryanne said this. "I would like some cake." Simple as that. Madison leapt into action and asked what kind of cake her Mom would like. Maryanne expressed no preference at all. Madi took off and texted from the cafeteria that the options would include red velvet, strawberry shortcake, and chocolate pudding. Maryanne chose red velvet. When Madi returned Maryanne enjoyed some cake. She had several bits. Hey, it's food! Shhh. Don't tell anyone.

Vitals and progress expectations are all golden. Maryanne is ready to go. I will be touring two more facilities tomorrow and will communicate to the Case Management team my preferred facility. It's go time, friends. As I said previously, Maryanne is now going to need to get to work. We know she can and she will. I have zero doubts. But with your support, she is going to sail through this challenge in record time with record results.

Megan was part of the care team again today. She's been on vacation for the past week. I was happy to see her and talk with her about all of the progress Maryanne has made since she left. Although I loved reconnecting with Megan, I'm still sad we have to leave the care these amazing people provide. I know Maryanne has left a very lasting positive impression on the staff and for that, I am very thankful.

That's all for tonight.

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Thanks to the My Chart App, we are able to send messages to the staff.

My message to Maryanne's Nursing Care Providers in the Neuroscience Tower (Ardmore) at Wake Forest Baptist Medical Center:

All of you have cared tremendously for my Angel. I will never be capable of expressing to you the gratitude I have for the most loving of care you have provided.

Many of you have come to understand slightly the significance this amazing woman holds in my life. I have shared probably too much with most of you fantastic humans. I call you humans because everything you are doing to ensure people have the opportunity to contribute to the magnificence of humanity is exactly what you are meant to do. You are Humanists. You are Champions for those who have yet to rediscover their voice. You. Are. NEEDED! You are valued. You are most highly respected. And you are loved. By all of us. Without your support, my Angel may have been called away.

Thank you for making it possible for her to remain with me, even if it's only 1 fantastic moment! I truly love each and every one of you amazing people.
Thank You with all that makes me the husband I am!

Maryanne's Journey - Evening Update for October 16, 2025

Good evening, Warriors! Today was another wonderful day for all of us who are rooting for Maryanne and supporting her recovery. She continues to progress at a speed only Maryanne could achieve. I'm going to start being more focused when it comes to my updates. I recognize I can get quite detailed and in some instances, the message I'm trying to communicate may be lost among what I now realize is a form of therapy for me. I love writing and I have been typing the words as they come into my mind. With this new focus I hope to continue to keep you all informed but minimize the fluff, if you will.

Having stated that, Maryanne's vitals were great up until 6:30PM-ish. Her BP started to drop and the team leapt into action, as expected. The Attending Physician evaluated Maryanne's symptoms and STAT ordered a drip intended to bring Maryanne's BP up to an acceptable level. I was asked to leave the room so I did. Upon my return Maryanne was upright, repositioned and watching TV. She saw me, smiled and began answering my questions. We're all good, folks.

Maryanne had a few bites of roast beef, rice, and green beans for lunch. She enjoyed a few bites of chocolate pudding and downed a full cup of orange Gatorade (her favorite flavor). I tried to give her a few bites of her supper but she wasn't having it. She is now down to feedings for no more than one hour, every four hours. We're hoping she starts to get increasingly hungry now that she's not receiving PEG feedings 24/7. I will try and get her to eat some breakfast tomorrow. I continue to tell her she can eat when she's ready. I constantly reassure her she is behind the wheel of this journey.

Although today was an alone day for us, Savannah and Kayleigh were in the room quite a bit. Today is their last day working until next week and they wanted to make sure they spent extra time with Maryanne. Maryanne could be discharged prior to their return to work. It was so sweet watching their interactions with Maryanne. She calls them both "baby". She tells them she loves them. She tells me they are now part of our pride. Maryanne continues to put so much love out that it positively influences every single person who encounters her. She is infectious in all of the best ways.

Tomorrow I tour two more facilities and hope to find the strength to make a final decision. It's time to get Maryanne moving on to Phase 3. As the final topic in tonight's update, I'm very happy to share that we have obtained full approval from the WellCare folks (thanks in all parts to the Neuroscience Board and Department Heads) to admit Maryanne to a facility which would normally require a down payment. As her Providers have championed for her in the most amazing of ways, WellCare will be waiving the down payment and allowing Maryanne's admission. We still have some out of pocket costs but nothing near what we were initially told. For this, we are all very thankful. I have removed the posts indicating a $5000 deposit is required. Any funds received will continue to support our efforts and our goal of getting Maryanne safely back home. Everything continues to fall perfectly into place.

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 15, 2025

My Warriors! I hope all of you had as fantastic of a day as I did. I got to spend the entire day with my Angel. That's hard to match, in your defense. I arrived early today and Maryanne was in the "pink chair". I immediately knelt beside her, made eye contact and asked if she was okay and comfortable. She told me she was okay and comfortable. I asked if she wanted or needed anything. She asked me for water. I fetched a cup of ice water and presented her with the bendy straw. Why do we only get bendy straws in hospitals? We need to do better. Maryanne slurped away and smiled while she chewed on the straw. I'm unsure why she does this but she loves chewing on things. Perhaps this is because she's not chewed on anything aside from oral sponges in 41 days. Who knows.

Savannah popped in and her presence made me immediately content. You guys don't understand. Savannah is one of the few Nurses Maryanne obviously loves. Maryanne smiles every time Savannah comes into her line of sight. Maryanne talks to me about Savannah when she's not in the room. These Nurses are all in, my friends. They don't just care for the patient and the family, they care for themselves. I genuinely believe Savannah is a better person as a result of being assigned to care for my Wife. I think Savannah would say the same if I'm being blunt. These two have a connection and I adore it. If I'm being 100% transparent, Savannah is also one of my new most favorite humans. She is going to have such an amazing positive impact on the lives of so many people and this fact brings me enormous amounts of joy. I dare say I feel a genuine love for this young lady.

The team transitioned Maryanne back to her bed, sat her up a bit, and invited me to offer her some lunch. I tried and tried but Maryanne simply did not want to eat. I do not believe this was the result of discomfort or issues with swallowing. I believe she is just full. The PEG is constantly providing her with nutrients and as a result, her tummy is happy. I asked the Nurses if we could request a change in the feeding schedule. Nurses confirmed the order was approved and they disconnected Maryanne's PEG. She is now receiving nutrients via her feeding tube every 4 hours, for a total period of 1 hour. Before, she was getting a constant feed 24x7. This should make Maryanne crave a little more sustenance. At least I hope so. Supper arrived at 7:30PM. I ordered for Maryanne after going over the menu with her and helping her pick some things she could not only handle, but also enjoy. I don't want them to bring just anything. I would like Maryanne to be able to choose what she wants. Supper was home-style meatloaf, whipped potatoes with gravy, green beans, and chocolate pudding. Maryanne LOVES orange Gatorade so that's what she got as a beverage. She sucked the Gatorade down in 10 seconds. She had 2 bites of the loaf of meat, a spoonful of the "salty" potatoes, a bite of "stringy" beans, and passed on the pudding. We're getting there, folks. Patience is the key.

Madison came by around 1PM and visited along with Maryanne's mother. Madison was so awesome to watch. Maryanne shines when Madi is talking to her, holding her, and stroking her hands/arms. I swear this child is Maryanne's clone. Every day I think I couldn't be prouder. Then, I am. It's quite something to have this feeling. I sat quietly in the comfy chair and responded as needed. It was a great day and Maryanne continues to be doing so much more than is expected of her. She's committed, my people. This woman will win this war! I have no doubt!

As I have said previously I AM FIRST, a Protector. This is my primary function. All of the other duties, functions, responsibilities... they come after or later. I will not allow Maryanne to be subjected to anything which may impact her vitals in a manner which would raise the risk of the possibility of another traumatic event. The likes of which could put her LIFE AT RISK! I sincerely hope I am making this crystal clear. If you have questions or require clarification, please reach out to me directly.

Dr. Wolfe stopped in at 7:50PM. I was alone with Maryanne and was so pleasantly surprised to have a moment with Dr. Wolfe. Dr. Wolfe expressed to me how pleased she was with the updates she received while out of town. She said she was surprised to hear that the Speech Path team was ready to order the trach to be removed. She and I talked about a lot of details. I got a lot of fantastic new information. Dr. Wolfe is like the fuel for my car. She fills me up and allows me to drive around in my mind (and on the interwebz) confirming all the things I think I should know. I make mental notes about those things I want to talk about with the team. I make mental notes about the things I want to remember to do and say when I'm with Maryanne. I record names, titles, and job roles in my head. I try to keep up with medications but Madi is on top of that so, not so much. Dr. Wolfe communicates in a very interesting manner. She is direct, honest, humbling, but locked in and focused on what you're body is saying. Not just your mouth. I feel like her experience with the inside of the brain has given her a leg up when it comes to experience with all the parts outside of the brain. I am aware this sounds stupid but it's what I picture. She is just fantastic. That's what you should take away from this mess of words.

I'm going to call it a night. I hope to tour 2 long term rehab facilities on Friday, along with Madi. The paperwork has already been submitted and management teams at both facilities are reviewing Maryanne's case. It's go time, y'all. I know I'm ready. Are you?

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

#WarriorsForMaryanne
#AVMAwareness
#AVMAwarenessMonth
#TeamMaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 14, 2025

Madison and I headed to the hospital when she got off work at 1PM. When we arrived Maryanne was upright in the ortho chair (the pink chair). Nurses said she had been in the chair since 10:30AM. When we asked Maryanne confirmed she was comfortable and relatively free from pain. In the coming hour staff moved Maryanne back to her bed and gave her a bath. Madi and I gave her some privacy.

When we went back into the room I noticed a document taped to the whiteboard. It indicated Maryanne had passed her swallowing test and was approved to receive ice chips followed by liquid water. It also indicated she was approved to move on to soft foods in small, supervised bites. This was something I did not think would happen for a few days. It seems everything is moving really fast. We greeted Maryanne again and talked to her about drinking water and being able to have some food. She expressed that she enjoyed the water. She did not want anything to eat, however.

Maryanne had just been moved from the chair to the bed, bathed, repositioned and now she was exhausted. We let her rest and talked to each other about how amazed we were. Ms. Lisa came by and informed us Maryanne was now approved to have her trach removed altogether. Dr. Wolfe arrived in Winston Salem today but she's not at the hospital. She should be back on site tomorrow. At this time they are simply waiting for her order to proceed with removal of the trach.

REMOVE THE TRACH? WHAT? I knew this was something on the horizon but I honestly thought it would be 5-6 months before this was even considered. Needless to say, Madison and I were both elated to hear this news. I fetched some Sausage and Lentil soup from the cafeteria and Madison enjoyed her catered lunch as part of Veterinary Appreciation Week. Her employer is just awesome. They regularly feed their people. It's a great thing. Staff continued to come by and introduce themselves. I find it a humorous we have been here for 44 days and we still meet Nurses and Doctors we have not previously encountered. Lots of folks work here it would seem.

Dr. Keith (Brian) knocked on the door and stepped in. I just know the look on my face was one of a super-fan leaning over the railing at the front of the pit. I think I said something like "are we going to do it?" Brian nodded and confirmed Dr. Wolfe gave the go ahead to remove Maryanne's trach. This is a bedside procedure and we both got to watch. It was fantastic but I'm a little weird when it comes to this kind of stuff so most folks probably wouldn't think it was fantastic. I recorded some video to show Maryanne if she ever wants to see it. Dr. Keith slapped on a bandage and that was it. Maryanne slept through it all. She didn't even flinch. Hilarious.

When she started to slightly wake up, we told Maryanne that she was now trach-free. We tried to explain, as best we could, what all of this meant. I told Maryanne she is now ready to leave the hospital and move on to the next step. She asked me what the next step was. I detailed for her, the plan moving forward. I talked about long term rehabilitation. I talked about managed care. I let her know there is no financial stress involved. Maryanne would be very concerned with the cost of all this. I assured her she would be able to swim in the heated pool and relax in the Jacuzzi. I told her all about the type of facility she will be headed to when she is discharged. Maryanne is understandably, a little confused about all this. She's knows very little when it comes to the details regarding why she is where she is. She knows she had a stroke. She knows she had brain surgery. She knows she has to receive therapy to aid her in regaining control of her legs, arms, neck, etc. She's onboard but I can only imagine what a challenge it is to accept all of these things as your new immediate reality.

This is why we support her more now than ever before. As I have said, sleeping for 3 weeks was the easy part. Now Maryanne has to put in some effort. That will be so much easier if she knows she has her favorite humans supporting her, motivating her, and pushing her to do all the things we know she is more than capable of doing. You all have been doing this from the beginning. We just need you to continue. And we know you will. Once again, now we RALLY!

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

#WarriorsForMaryanne

#AVMAwareness

#AVMAwarenessMonth

#TeamMaryanne

Official Website: https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 13, 2025

Tyler and I visited today but only after I had a few calls with admissions directors at Skilled Nursing Facilities. Sadly, the two new facilities I found do not support tracheostomy patients. If it's not one wall it's another. The walls come out of nowhere. I have a couple of folks helping me but it's quite difficult to find a facility with an available bed, and an available Medicaid bed at that, in addition to staff trained in tracheal care. I was informed of two new options today and I will be contacting them tomorrow. Fingers crossed we will find Maryanne a spot.

When Tyler and I arrived we discovered Savannah was one of Maryanne's Nurses today. Savannah was Maryanne's Nurse the day she was moved over to the Neuro side from the NSICU. This was prior to the operation. She is the sweetest and absolutely adores Maryanne. She told us the Nursing team often bickers over which Nurses will be assigned to care for Maryanne. She even said she sees Maryanne as a Mom-like patient. These people genuinely feel and experience the same Maryanne all of the rest of us have enjoyed for years. Even as Maryanne faces these incredible challenges, those caring for her are better for having known her. How many humans have you encountered in your life who have an impact such as this on their fellow people? Maryanne is going to be Maryanne no matter what!

Everything vitals-wise looks great today. Maryanne is doing fantastic. She continued to talk with us. She's talking more today than yesterday and the day before. She's smiling constantly. She's letting us know if she's uncomfortable, in pain, thirsty, needs to potty, wants to be repositioned, and when she wants me to tell her a secret. This is something she said to me today. As I bent over and leaned on the bed-rail just in front of her, I asked Maryanne what she would like to talk about. She said, "tell me a secret". I chuckled. But, I agreed and told her a secret. She laughed out loud. I then asked her if she would like to hear another secret. She replied affirmatively. I shared one more. She giggled in response. I love how much progress she has made these past three days. It's really something special.

Dr. Keith came by this afternoon and informed us he had received the order to test the tracheostomy cap today. Like, now. I was quite surprised. I let him know we only started testing the speaking valve on Saturday. He said he was aware. The cap will completely close off Maryanne's trach. She will no longer be inhaling through the cannula. This is a big deal. He asked if I had any problem with us moving forward and of course I told him I most certainly did not. Here's the process. Maryanne's trach is capped and if she can withstand it for 24 hours, she may be considered for removal of the trach altogether. This would be most awesome as finding a long term rehab facility with trach care is tough, as I said previously. While capped, Maryanne has a "sitter" in her room. Once the cap is installed, and the patient is not capable of removing it, someone has to monitor her at all times. If there were to be a complication, action would need to be immediately taken.

Dr. Keith came in and installed the cap after explaining in detail to Maryanne, what was involved with regard to the cap, and the purpose of installing it. Maryanne nodded at all of his questions, smiled and gave us a thumbs up. Dr. Keith installed the cap and Maryanne didn't flinch. For the next couple of hours, Maryanne did fantastic. No issues at all with breathing, swallowing, and coughing. She's now breathing 100% through her mouth and nose. I'm so proud of this amazing woman. She took a short nap, talked with me and Tyler for a few hours, and continued to kill it. As we prepared to depart we met the Night Charge Nurse, Tamara. She's awesome, of course. She informed us she would be assigning a Nursing Assistant to sit for Maryanne but until that time, she would be sitting with Maryanne and updating her chart every 15 minutes. Again, once the cap is installed 24 hour supervision is mandatory.

Tyler took a few minutes to say goodbye to Maryanne. He's headed back to NC State tomorrow. He's focused on graduation in December and we all LOVE HIM so much for that. I took my turn and told Maryanne all the things I tell her every time I leave.

"You're okay. I'm okay. The kids are okay. Mom's okay and your friends are okay. The dogs are okay. The house, cars, and bills are all okay. You know that you trust me so you know I will be honest with you and tell you all the things when you tell me you are ready. Your are my very special person. You are my beautiful Angel. I Love You so very much. I wish you a fantastic sleep and I can't wait to see you tomorrow. If you need me, just tell the Nurse and she will call me. Good night, my sweet Angel!"

Tyler and I headed home and talked about the day. It was yet another great day. Maryanne is making exponentially exceptional progress. The Doctors and Nurses agree this is something which is unique. Duh! This is Maryanne Knight we're talking about. I can't wait to visit tomorrow with Madison. We may give the new What A Burger a try. We may not.

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

#warriorsformaryanne

#AVMAwareness

#AVMAwarenessMonth

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 12, 2025

All three of us went for a visit this morning. It was chilly out and the sky was completely covered in clouds. Gloomy was the mood. But not for us. We were excited. We arrived and as we approached the room two of Maryanne's Nurses came down the hallway with super big smiles. They both started talking at the same time. They were really excited. Gracie and Kayleigh told us the Physical Therapy folks came by and began some range of motion exercises with Maryanne. They then transitioned her to the "chair". I don't know what else to call it. It's a chair that transforms into a bed. They slide Maryanne over and then crank some handles to put her in an upright sitting position. They rolled her over to the window and for the first time in 42 days, Maryanne got a chance to peer outside and enjoy a new view. She mostly looks at the TV, the ceiling, or us. Not much of a selection. Gracie took photos and shared them with us. Maryanne looked really happy. She was staring out the window and probably thinking some wonderful thoughts.

Gracie also informed us Maryanne was exhausted as they had just moved her back into the ICU bed. Moving her always wears her out. If you witnessed the process you would have a better understanding. We thanked them both for sharing. As we entered the room it was obvious Maryanne was sleeping deeply. She was snoring significantly. It was fantastic. Maryanne is showing us she is still Maryanne in every single way, more and more every single day.

We let Maryanne take a break and headed downstairs to grab some food. When we returned Maryanne was awake and ready to interact. Like yesterday, Maryanne continues to be super responsive. She continues to talk to us, sing when we play her favorite tunes, nod, make faces, and say the most Maryanne things at just the right moment.

I continue to tell her bits and pieces of what happened to her. I encourage Maryanne to lead the conversation. I reassure her I will not talk to her about anything she is uncomfortable talking about. As always, it's important to not say/do anything which may raise/lower Maryanne's heart rate and/or BP to dangerous levels. I also tell her this and make clear how her emotional state may impact her vitals. I think she's probably fed up with me giving her all the technical bits.

Maryanne had some additional visitors today. Two very special friends came by to say hi. I wish I had recorded some video because Maryanne became visibly excited when she saw their faces and heard their voices. Maryanne had her speaking valve in (see last night's update for details). She saw these two wonderful humans and immediately said, "My people. My Tribe." The kids and me gave Maryanne some one on two time with her tribe-mates. It was so evident she really enjoyed seeing them and interacting. Maryanne loves her people hard. Very hard!

I know I keep saying this but your presence, be it in person or on a call, has an incredibly positive impact on Maryanne. Again, I'm not trying to guilt trip. I'm simply saying that if you have the time, we would love to host you or have a call. We all know Maryanne feels more passionate about her connections with her people, than anything else. That's just who she is. And I absolutely love her for that, and all of the other fabulous reasons!

Tomorrow I will be having calls with two more long term rehabilitation facility representatives. I'm hopeful I will be able to make some progress. Look for that follow up tomorrow evening. I will also be speaking with Dr. Yeager tomorrow to inquire about some more consistent PT for Maryanne while she's remains in the care of Neuro. I'm sure he'll be on board. I also want to get things moving with regard to the swallowing testing. If Maryanne can pass testing she will be able to suck on some ice chips. For the past 3 days Maryanne has repeatedly asked for water. I desperately want her to have it. Tomorrow is going to be fantastic. I just know it.

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

https://sites.google.com/view/warriorsformaryanne

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 11, 2025

Today we headed for Wake Forest Baptist with Carrie and Ash in tow. You guys don't know how huge this is. Carrie was last here the day of Maryanne's brain surgery (Oct. 2). She had to leave before Maryanne was open to visitors after the surgery. She stayed long enough to get the call from Dr. Wolfe that the operation was a success, but she didn't actually get to see Maryanne after. Maryanne hasn't seen Ash since the Lady Gaga Concert in GA. That was years ago. Madison and I were so excited they would get the opportunity to see Maryanne and actually interact with, and stimulate her. We also knew this would absolutely make her day!

WE WERE CORRECT! When Ash came into Maryanne's line of sight her face absolutely lit up. It was fantastically inspiring. I felt so many things I thought I was going to burst wide open with joy. But, I kept my composure 'cause I'm "that guy". Just kidding; I'm a sap. Carrie and Ash both spent some time with Maryanne and today was the day Maryanne decided to talk and express herself more than we have seen since the Event. As a result of her increasingly stringent efforts at communicating, I asked the Nurse (Gracie) to reach out to the Speech Path folks and inquire about them coming by to test install the Passy Muir Valve. This is also known as the Tracheostomy and Ventilator Swallowing and Speaking Valve.

For those not aware, or simply curious: When you have a Tracheostomy, the stoma in your trachea (windpipe) provides a path for air inhaled and exhaled. Your vocal cords reside above said stoma. When speaking audibly, air is exhaled up and through your vocal cords and out of your mouth. We hear words. You hear words. When you have a tracheal device, that same air exits your stoma and therefore, very little air makes it to through your vocal cords. Hence no audible words.

The Passy Muir Valve is a one way valve. Maryanne is able inhale air through the valve after we attach it. But, when she exhales or forces air out, the valve remains closed and allows all of the air to flow up through her vocal cords and out of her mouth. It's so incredibly simple it's just silly. This device was invented by David Muir. Mr. Muir was diagnosed with muscular dystrophy and invented this device to not only aid himself, but to provide a simplistic, affordable solution meant to benefit all of those who came after him. What an amazing human, Mr. Muir was. Thanks to this man, I get to hear my Wife speak to me.

To our surprise, the Speech Path folks were available and came by. Madison and I were trained on how to install and remove the Passy Muir Valve. I asked if they had a document which indicated we were certified Passy Muir experts but they told me they didn't have one. Regardless, we are experts and got the opportunity to give Maryanne a chance to do something she has not done in 41 days; SPEAK! The first test was good. Maryanne was trying. It's hard. You have to understand that she has not used the muscles in her neck, throat, or for that matter, anywhere, in a very long time. The Doctors told us Maryanne would feel some discomfort when she started to use anything she had not used during this journey. The valve is no different. All that stated, we can now hear what Maryanne is saying to us. She's audible and she's so fucking talkative it's making me never want to leave her. Don't get me wrong, we can't leave this thing installed for longer periods of time just yet. We have to build up to that. For now, we install it when she's comfortable with it. Otherwise, we let her rest.

We removed the valve to give Maryanne a break and she was thankful. Later in the evening Madison asked Maryanne if she would like to practice using the valve some more. Maryanne initially stated she needed a few minutes and later indicated she wanted to give it another go. Her eagerness to make strides is something I think we all should be inspired by. We installed the valve again and Maryanne continued to communicate with us. Get ready for a few happy tears. Seriously, grab the tissues!

When I asked Maryanne if she wanted to say anything to me, Madison, Carrie, and/or Ashlyn, now that she could speak and be heard, she said this...

"Thank you all so much for your patience."

I checked out, grabbed a tissue and turned around. This is Maryanne Knight! This is the person who has suffered that which none of us could possibly imagine, yet begin to defend against, and she's thanking us! She's not thinking of herself. She's concerned with what we are experiencing. Myself and everyone else immediately told Maryanne no. We told her repeatedly that we were the ones who were thankful for her patience. We said lots of things but I honestly don't recall most of it. Perhaps Madison can comment and fill in the gaps. I was just so happy to see that my amazing Wife remains unchanged!

She continued to talk with Madison and me. She's asking questions. She's responding to everything we say to her. Sometimes she's pissed and she does not hesitate to let us know. Mostly, her words express happiness and content. Yes, she's uncomfortable. Yes, she has a little pain from time to time. But this is Maryanne. She is the one who hardly ever lets on that she is anything but happy and ready to make sure the rest of us are happy, too. Carrie and Ash had to head back to Charleston but Madi and I stayed to greet the night shift. We finally got to meet Malya (one of the Night Nurses). Malya has been with Maryanne many times and had some wonderful things to say. Not only about Maryanne but about us, as well. I must admit I love hearing that the staff is impressed with our family's steadfastness and dedication. For us it's just what we are doing. It's not something we're putting effort into. This is simply what we must do. But from the staff's point of view, we're doing a good job and that brings me gratification. It makes me feel good. I like feeling good and I think Maryanne likes it, too.

I forgot to mention Maryanne's vitals were all fantastic today. She's going potty on her own. The few wounds she has resulting from her time in a bed, are looking tremendously better. She's communicating what she wants, needs, and doesn't like. She's moving more. She's overall, getting much more active on all fronts. We are genuinely excited, motivated, driven, locked in, and ready to see this mission through to its end! We will WIN THE DAY! We have no choice!

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

#warriorsformaryanne

#AVMAwareness

#AVMAwarenessMonth

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 10, 2025

Madison, Tyler and myself headed to Winston Salem this afternoon when Madi got off work. When we arrived we found Maryanne looking fabulous. She was upright and centered on her pillow. The TV was on but I'm unsure if she was watching it. We took turns saying hello and Maryanne responded in kind. She was all about letting us know her thoughts today. She was mouthing words, nodding, shaking her head to indicate no, moving her arms all over. Too much so to be honest. She's starting to "play" with her tubes and stuff. Although we tell her she should not, she continues to do so. It's Maryanne after all.

I got my updates from the Nursing staff. Everything looks great. Maryanne got a bath this morning and we washed and kissed her face. I talked to her a little more about what happened to her but we agreed I would stop if she closes her eyes and takes a break. It's okay. I have plenty of time to talk to her. We played some music on the JBL speaker and Maryanne loved it. She was singing along to Cheeseburger in Paradise (Jimmy Buffet) and did the same when other songs played. We all know how much Maryanne attaches herself to musicians and their art. Overall I would say today was the day Maryanne chose to be the most responsive. Every day she makes progress but today was just different. She's telling us yes. She asked me for water yesterday. I felt horrible because she can't really have water. We tried a couple of oral rinses today but Maryanne won't stop biting the sponge. No matter how many times we ask her to let go, she refuses. The night Nurse came in this evening as her shift started. She told me that last night, Maryanne audibly stated "It hurts". She was referring to a wound she has on her thigh. Maggie (the night Nurse) addressed the situation as a result of Maryanne reaching out and asking for help. Maryanne has everything in her that she will need to get through this. She must!

We got some news from the Skilled Nursing facility I chose for Maryanne's long term rehabilitation. Sadly, they have no availability for at least 6 months. We will continue to research and see what we can find. I will continue though as I have no choice. Maryanne needs to transition and get on track to a complete recovery. Again, send me your thoughts and recommendations for long term rehabilitation. I'm forced now, to consider those facilities which may be outside of my preferred radius. I don't care. Give me all the information you have. And, thank you!

Today was a great day. Maryanne wants to do more and she is showing us! We want her to do more, too! It's all goodness because it has to be.

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

#warriorsformaryanne
#AVMAwareness
#AVMAwarenessMonth

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 9, 2025

Today was an alone day for Maryanne and me. I arrived to find her asleep and then I woke her up. I am a little selfish when it comes to seeing her each day. When I approach her face and tell her good morning and she opens her eyes and smiles at me I am immediately filled with all of the wonderful things. This woman is a beacon and a champion like no other. Maryanne was very responsive/reactive today. Lots of smiles, eyebrow raises, mouthing of words, gripping of hands, etc. She's doing all the things and we are encouraging her nonstop!

I am still actively touring and looking into long term inpatient rehabilitation but to be honest, I'm struggling a little. It's a lot. So much to consider and evaluate. But, I'm doing my best. If you have input, bring it. If you have experience in this realm, bring it.

Tomorrow is another day. We're good. Maryanne is good. We just need to keep moving forward!

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 8, 2025

This morning started off with calls with social workers, the finance team at the hospital, and all the others asking for $. Not a surprise. Not unexpected. Just not at the front of my mind, as of late. I had the talks, provided the required information, and asked all those I spoke with to please act with haste. Let's hope that happens. We need to do all we can to get Maryanne to phase 3.

Here are the details I referred to in yesterday's update. Dr. Wolfe is very happy with the progress Maryanne has made. Now that Maryanne has a reusable tracheostomy cannula she is cleared to be discharged to an inpatient rehabilitation facility. Please know this will NOT happen until I am ready. Until I feel Maryanne is ready. I have nothing but the most respect for Dr. Wolfe and her team of super heroes but I need a minute to gather myself and prepare for that which is coming.

Dr. Wolfe is happy with Maryanne's progress but Maryanne is still being a little uncooperative when it comes to responding to verbal commands. She grasps Madi's hand when Madi asks her to. She does not when medical staff ask her to. She smiles, nods, makes the smoochy lips and lifts her eyebrows when Madi and I provoke her but she does not respond in kind, when the Nurses ask her to. Although frustrating this is so very much Maryanne! I spoke to her clearly today and told her she needs to cooperate and do what is asked of her so that she can move on and continue to heal and get better. She rolled her eyes at me. When I state this is a Journey, I mean it!

I told Maryanne we would be alone together tomorrow. I told her I will be having a conversation with her and that I need her to step up. I told her I need her to respond to me in a way which indicates to me she is included in the upcoming decision making process. I want her to contribute to the future of her care. I want her to play a part in making the decisions which will result in her recovery. Of course she wants this too. I have no doubt. The problem is she needs to do all of these things while recovering, healing, and dealing with this very real strange reality which is now her normal. I can't imagine.

I spoke with Joanna and Eric (owners of The Watering Hole) tonight. They both are working very hard to put together an event/benefit/thing for Maryanne. They are putting together a few different options which will allow us to provide all of you with an opportunity to purchase raffle tickets for what are sure to be, some fantastic prizes! I too, am working with my contacts to add some value to the mix. If you are interested in providing anything in the form of raffle prizes, please let me know personally. This is not just about getting Maryanne better, this is about fueling the movement which will be Maryanne's motivation when she comes back. Maryanne is going to be driven to educate and equip others to prepare and protect themselves from this silent, and rare killer.

As always, I love you. Maryanne loves you. Our kids love you. Without your support, encouragement, and positive energy, none of this would be possible.

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 7, 2025

I arrived super early this morning. When I walked in I saw that Maryanne was asleep. Or so I thought. I put my stuff down and leaned over from her left side. As I got closer she opened her eyes and I told her good morning. She smiled and raised her eyebrows. I asked her to give my smoochy lips and she did. I kissed her a few times and started to tell her about the day. We had lots of information exchanged today.

I am sorry but I'm not going to get into too many details at this time. Dr. Wolfe has advised we have some decisions to make. Maryanne is moving forward and progressing at a faster than usual rate. This is good news but we have to be careful. I promise I will get into more detail tomorrow. Maryanne is okay. She's great. Today she was more responsive/reactive than ever. She's nodding, slightly moving her head from left to right to say no. When she wriggled her nose and upper lip I asked her if her nose itched and if she wanted me to scratch it. She nodded yes. She's here and she's ready to get this show on the road.

Madison and I will be making a surprise visit to an inpatient rehabilitation facility tomorrow. This organization has a wing which specializes in tracheal/tracheostomy care. Obviously, we like that very much. I have narrowed down the choices based on a few different criteria. Please know our final decision will be that which aligns most closely with the goal of this mission. I need Maryanne to get the very best care while being supported in her efforts to progress quickly. She is going to want to move faster than she should. I need her to be supported but also restrained as needed. I'm complicated. Sorry, y'all.

Like I said, I will provide a detailed update regarding the most recent developments, tomorrow. But before I sign off for the night, I need to type a few things.

I know there are many who misunderstand my insistence on having "rules" and guidelines defined by only me. Not the Hospital staff, Surgeons, Doctors, PAs, RNs, etc. To be staggeringly clear, when making decisions directly related to the continued health and well being of Maryanne, I rely for the majority, on the advice, input and expertise of Dr. Wolfe, her staff, her PAs, RNs, and the Respiratory folks. When COVID began to bloom in NC I asked these people how they would protect their loved one if that person were in Maryanne's situation. As a result, I made a rule. I knew at that time not only did I need to protect Maryanne, but I needed to protect the lives of every single human on that floor. How dare I put their lives at risk?!

I asked them what type of impact our words, thoughts, actions, emotions, tone of voice, etc. could have on Maryanne's recovery. We know we have to keep an eye on her blood pressure and heart rate. What I learned is that any type of emotional stimulation can impact Maryanne's recovery negatively. Too much fear, concern, worry, anxiety, happiness, joy... we have to watch it all. I want people to come and visit and talk to Maryanne and kiss her face and bring her all the wonderfully happy and positive things she needs. RIGHT NOW! But I need you all to realize I have but one goal. One priority. One Mission. That is to bring my Angel home and ensure she is healthy and safe enough to take this journey to the next level. I know she will want to. Now I just have to make it happen. With your help, I know we can and we will!

I beg you. Please understand, I have no animosity or dislike for anyone. If you are a champion for Maryanne you are my hero. Simple! I do what I do because I know with all that I am, this is what my Angel would expect of me. I come with faults. I come with many faults. This is not one!

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 6, 2025

Today was a fairly laid back day. I waited for Madison to get home and we both headed to the hospital around 1:20PM. We arrived to find Maryanne sleeping soundly. Nurse Megan was in the room and provided me with all of the information. Vitals, potty details, movement, etc. All good. When I arrived I knew there was something different. I feel stupid for not realizing it immediately. Maryanne's bandages have been removed. I can see all of her head for the first time since Thursday night. She looks great.

Madison and I took some time to clean her up a little. It's brain surgery, y'all! She opened her eyes and watched us. She pursed her lips and allowed me a few kisses. We grabbed some lunch and returned to the room to eat. Nurses came by and did what they do including suctioning and repositioning Maryanne. She really dislikes these activities. Who could blame her? We spent the day listening to her Youtube playlist, washing her face and head, combing her hair, and just enjoying our time. Today was a good day!

We Love You and Maryanne Loves You. Good night.

#warriorsformaryanne

#AVMAwareness

#AVMAwarenessMonth

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 5, 2025

I started off at 9AM this morning. I think I quit typing around 4AM but my mind was vomiting words and I had to put them into text. I ate last night before I slept so no worries there. I actually ate too much. We won't go into that. Madison is tending to the Veterinary Office/Kennel today so she will remain here while I head out to visit my Angel.

I arrived around 12:30PM to discover the Ardmore Tower elevator bank has fallen victim to some sort of elevator strike. One of 5 of the elevators was functioning. I walked over to the North Tower and took those elevators instead. To my surprise, Maryanne's room is less than a 1 minute walk from the elevators. I arrived to find her sleeping. I stowed my murse, raised her bed, dropped the upper bed rail and approached her magnificently bright red, right cheek. I told her good morning and I told her I was going to kiss her cheek. She smiled softly and I commenced smooching on this beautiful Angel of mine. I backed off and focused on her eyes, her lips, her ears (they're pretty much pinned up in her head dressing), checked out her tracheal device, humidified O2 feed, potty status and called for a Nurse using the remote control thingy. By the way, I raised the bed rail when I was done with my smooches. Just so you know.

THANK GOODNESS Megan is our day Nurse. Megan was with Maryanne during her brief stay over here prior to the operations. Megan loves Maryanne and tells me constantly. She has full on conversations with Maryanne when she's in the room. I just sit down and shut up and listen. It's wonderful. It's exactly what Maryanne would do if she were the Nurse in this situation. Megan advised me that Maryanne's vitals have been spot on. She's going potty on her own which is something we have been really looking forward to. Again, strange. Sorry. It's a move in the positive forward direction and that is what matters.

I grabbed a burger for lunch and realized immediately after entering Maryanne's room with said burger, I had made a mistake. Maryanne is a burger fanatic. I'm sure she can smell. I have now brought a freshly grilled cheeseburger to Maryanne's room and she can't have a bite. What the hell was I thinking? You all say I'm a great husband but I think I failed her today. I ended up leaving the room to eat my burger. But, I may have had a little something on my lips the next time I kissed her. Or, I may not have. Who knows?

Willie called this afternoon and let me know he was inbound. I met him by the sky bridge and led him to Maryanne's room. Maryanne really enjoyed seeing Willie. I lowered the bed rail again and told Willie to give Maryanne a smooch on the cheek. He did and he also said something to her. Maryanne's face lit up and she smiled at Willie. This is what I'm talking about, people. Maryanne NEEDS to hear the voices of those she holds most dear. She needs to see your faces.

Bare with me for a minute...

The first 3.5 weeks were the easy part. Maryanne was on paralytics and sedatives. The likes of which would have taken down an African Elephant. Although we were there, she was not. NOW, SHE IS THERE. She's craving interaction. She wants to see, hear and interact with her people. I don't think you guys get this. When she is stimulated by those people she loves and misses, she shows us she is happier. She reacts and responds accordingly. You guys are the key here. Not me. I'm sorry but not Madison and Tyler. Let's remember that Maryanne has been unconscious for 3 weeks, then subjected to multiple surgeries, followed by multiple days in recovery. For us, it's been weeks. For Maryanne, it's been days. She needs to know her life is following the path it always has. Where are the people she sees every weekend? When does she get to see all those faces she loves to see? I do not intend to guilt-trip anyone. I'm simply trying to make very clear the fact that ALL OF YOU ARE VITAL TO THE SUCCESS OF THIS MISSION! You are the missing puzzle pieces. If you are not able to visit, call me and I will put you on speakerphone/face-time with Maryanne. I just need you to talk to her so she knows her path remains unchanged. She will continue to hear from those who she holds most dear.

Thank you to each and every one of you. Maryanne had a great day today and she will continue to get better. She will continue to become stronger. She will continue to endeavor to become the Champion of this cause she does not yet know is going to be very dear to her.

We Love You and Maryanne Loves You. Good night.

#warriorsformaryanne

#AVMAwarenessMonth

Maryanne's Journey - Evening Update for October 4, 2025

I got a bit of a late start today but was determined to see my Angel. I called to get an update prior to departing. Maryanne's Nurse, Casey, advised Maryanne was pretty much unchanged as far as vitals, comfort, level of physical expression of pain. This is expected. We should start seeing more at the 72-ish hour mark. Casey further advised Maryanne was being moved to the Neuroscience wing. I was not happy to hear that news. She was in the NSICU for 1 full day. Come on, man. I know I have no control over these decisions and I remind myself repeatedly that Dr. Wolfe is driving this truck but I feel like I should have known Maryanne may be moved in 24 hours. I wanted to see Dr. Wolfe today but she was not on site. It's okay.

I found the new room, greeted Maryanne, held her hands, and kissed her face. She looked at me when I was in front of her. If I sit down she just keeps looking at the spot where I was previously. I'm not sure why this is but I'm going to ask. She still looks left and right but seems to prefer looking straight ahead. Perhaps there is discomfort with the eye or the eye muscle. That was the part of the brain which was attacked, after all. Still, I'm going to ask Dr. Wolfe about it.

I sat with Maryanne and stroked her forearm back and forth. I told her things and asked her questions but she didn't really respond to any of that. She still puckers when I go in for a kiss. She wriggled her nose once and we all are now aware that usually means her nose itches. So, we give her gentle scratches. Is that strange? I was going to read to her today but not long after I arrived, she slowly closed both of her eyes. In the past 24 hours at least one of her eyes is usually slightly open. This time, she was fully resting. We now recognize this type of behavior and so we stop talking, sit down, and keep things quiet. I don't want Maryanne's internal clock to suffer any more but if she can possibly get some actual sleep after everything she has been dealing with, I'm going to do all I can to support her. I can talk to her any time. We've got an eternity together. For now, rest.

Shift change arrived and I met with the night Nurse and communicated to her in a very respectful manner, my expectations. I let her know I would be calling throughout the night and that I would like to get updates on vitals, her potty progress, any changes to meds, neurological testing, and her responsiveness to stimulation. I also let her know she should address Maryanne as Maryanne and NOT Mary! I said my goodnights to Maryanne, packed up my crap and headed back to Statesville.

I want to be clear. I know Maryanne is where she is because she does not need to be in the NSICU. I'm aware of the reasons supporting the decision to move her. I understand the Nurses are caring for many patients and check on Maryanne as they are able or every 1 hour (which ever comes first). I always tell them I'm fully aware that Patient Care takes priority over everything. I LOVE that. Lastly I made clear the expectation of the level of quality of the care should not change when stepping down. All of the Nurses I've discussed this with, agree. Or at least they tell me they agree. I LOVE that, too!

I will be heading back tomorrow and will be kissing that Angelic face as much as possible. I'm looking forward to reporting back with a fantastic update.

Thank you again, for your love, your support, and your steadfastness. We're 30 days in! You have been a Warrior For Maryanne for a month! That's incredible. I can't wait to keep going. I'm getting stronger and more motivated every single day. It's fantastic and it fills me up!

We Love You and Maryanne Loves You. Good night.

#warriorsformaryanne

#AVMAwareness

#AVMAwarenessMonth

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Evening Update for October 3, 2025

Maryanne is recovering from her surgery well. I don't really have much to report. Honestly, I'm tired and ready for a little break. Vitals are great. The latest update from the night Nurse confirms Maryanne is right where she needs to be.

I will provide a more detailed update tomorrow. Thank you, Warriors!

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Surgery Update/Evening Update for October 2, 2025
This Battle has been WON!

If you read my latest Surgery Update, you're up to speed. If you did not, please go read that now before proceeding. And remember, all of the latest updates are available on the Official Website (https://sites.google.com/view/warriorsformaryanne). Now that my mind has a 3 day break before we begin phase 4, I'm going to finalize the move of the site to the new warriorsformaryanne.com domain. I will let you all know once that move is complete and the site is live. It should be done within the next few days.

We started at 7:30AM today. We knew Maryanne was scheduled to be transported to PreOp at 10:30AM. However, if Dr. Wolfe so chose, she could have rescheduled for earlier. Therefore, we wanted to be there early. I walked into her room and noticed she was fast asleep. The lights were somewhat dim. I leaned over the left side of her bed and got right up in her mug. I said "Good morning my beautiful Angel". She made the biggest smoochy face ever. Eyebrows up and lips completely pursed. Eyes still closed. I kissed her briefly but a little harder than I have been. I backed off and she opened her eyes and smiled at me. It was obvious the Nurses had repositioned her, bathed her, washed her face, and made her quite comfortable. I think they have finally figured me out.

Madison and Carrie filed in behind me and I told Maryanne all the things I say to her every day. I told her how much we enjoyed spending last night with Carrie. I told her we barely slept and it was only because we were all so excited for today to arrive. Madison and Carrie took their turns talking to Maryanne and stroking her arms while holding her hands. She was much more alert today than ever before. She was looking all around and focusing in on the person speaking to her. She's moving her lips more. She's turning her head from time to time. She can't yet hold her head up straight and after today's battle, it may be a few more days before we starting seeing results of rehabilitation but that's okay. I took some time to get my updates from the Nurses. Vitals were good. No fever. All the things I ask every day, all day, were right where they needed to be to get the final go-ahead to operate on Maryanne's brain.

I spoke to Maryanne for a good while and explained to her what was happening today. I told her a little about the plans yesterday but I wanted this to be fresh in her mind. I walked her through the process as explained to me and assured her we would be with her every minute of the 6-7 hour procedure. I'm always honest with my Angel but I don't get into the specifics. She continued to smile at me, raise her brow, and look around the room. She held my hand tightly and I kissed all over her face for as long as she could stand it. Madison and Carrie took some additional time with Maryanne and told her all the things she needed to hear.

The transport team arrived along with one of the Neurosurgeons who would be working with Dr. Wolfe. He fed me lots of information and answered all of my questions. I felt like I was now prepared to see Maryanne off and place all of my trust in Dr. Wolfe and her amazing team of Warriors! As they began to wheel Maryanne out of the room, the Dr. asked if I would like to accompany Maryanne to PreOp. "UH YES! I didn't know I could!" I think is what I said. I don't really recall but I'm sure it was stupid. He said "absolutely" and we headed to the special elevators that only work with the special access cards. We descended to the 4th floor (Neuroscience Surgery in the new Tower which I forget the name of). We navigated a few corridors and arrived at bay 08. Maryanne was setup with a mobile canister of O2 that flowed through a pipe and exited just in front of her tracheal device. The mobile canister is much louder than the one in the room. I continued to hold Maryanne's hand while new-to-me Nurses attached all the things and recorded all of Maryanne's vitals. They injected her with some stuff and Chad from Anesthesiology arrived to educate me on what his role would be in this battle. As I listened to Chad with my right ear and kissed Maryanne on her right cheek while taking a breath here and there to tell her everything I needed to tell her, Dr. Wolfe arrived.

I immediately got emotional. This super hero and magnificent representative of humanity has this affect on me. When you are face to face with the only human being capable of saving the life of your most special person, and SHE DID JUST THAT, it's extremely wrenching and impactful. I turned to Dr. Wolfe, grabbed her hand, looked at her deeply though the tears in my eyes and thanked her. I thanked her repeatedly. Excessively I'm sure. She calmed me as she always does. We spoke about prep for the operation. We spoke about what to expect. She explained in brief detail, the process she intended to follow to complete today's mission and win the battle. I asked her about taking home a piece of the AVM and if you read the last update, you know what resulted from that conversation. The little fucker is dead and gone!

I found myself full and incapable of absorbing more information. I know Dr. Wolfe and her team are the only ones who can achieve today's goal. I'm sure there are others who may be capable enough, but these Warriors have been with Maryanne since September 4, 2025. The day of the event. I returned to Maryanne's side as they advised she would be moving to the OR very soon. I got up in her mug once more and told her how much I loved her. I told her she is my very special person. I told her she is my beautiful Angel. I told her she is, and will be okay. I told her I was okay and that Madison, Tyler, Mom, and the dogs, are all okay. I told her the bills were paid, we have food in our stomachs, and a roof over our head. I told her we would always be okay because she was our Wife, our Partner, our Mother, our Caregiver, and our Preparer for all that which may challenge us in the coming days. I told her she would return to me and we would continue to talk about all of the wonderful things. Lastly, I told her that she trusts me and that because of this she knows everything I've said to her is the truth.

As I gave her one final kiss to say goodbye, her lips began to move. It looked as though she was mouthing words. Not just licking her lips or readjusting due to the dryness. The O2 feed was loud, if you recall. I asked Dr. Wolfe if we could turn off the O2 for a moment. She ordered it so. I placed my left ear (the one that works) just in front of Maryanne's mouth...
Maryanne whispered ever so quietly...
"i love you"

I nearly fell to my knees . Dr. Wolfe approached me and grasped my upper arm. I leaned down to Maryanne's beautiful and perfect face while pouring tears onto her cheek and said "I Love You Right Back. I will see you very soon, my Angel". I think I may have hugged Dr. Wolfe but I kinda' hope not as I hopefully wrongfully assume she may have been quite put off by that. I'm a wreck. The Nurse showed me how to navigate to the elevators and I returned to the NSICU waiting room, and to Madison and Carrie.

Madison, me, and Carrie headed to the cafeteria to grab some food. We took it back to the waiting room and enjoyed some noms while I'm pretty sure, I did all the talking. If you have not been around me lately, I am incapable of shutting up. I'm working on it. We received an update at 1:17PM indicating the first incision had been made. We continued to receive updates on progress at 2 hour intervals. In between we responded to texts, Facebook messages, and comments. Carrie tried to get some work done. At 3PM-something I got an update indicating we were approximately half way though the procedure. More texts, replies to comments, etc. I received a final update from the OR around 7PM. It could have been slightly before. I'm unsure. The update indicated Maryanne did well and was headed to the NSICU. I was advised Dr. Wolfe would either come see me, or she would call me. Moments later my phone rang and it was Dr. Wolfe.

She told me she was extremely happy with the results of the operation. She gave me an incredibly large amount of detailed information and to be completely honest, I'm still researching and trying to get a grip on the majority of it. The important message was that Maryanne's Brain Surgery was a Success. The AVM has been destroyed. The vessels were untangled. Blood and clots have been removed completely. There were zero complications. Nothing occurred which was not anticipated. The plan came together perfectly. Everyone was impressed with how well Maryanne fared. She had minimal blood loss, consistent impressive vitals during the entire procedure, and no need for major adjustments to anesthesia.

I thanked Dr. Wolfe profusely for all that she has done. I thanked her for being available the evening Maryanne arrived. I thanked her for putting together a team capable of making miracles happen. I thanked her for all of the things I couldn't remember to thank her for. She said to me, "You're welcome Sean. Go be with your Wife. When she's ready, I would love to enjoy a glass of champagne with the two of you". I promised her I would do all of those things and wished her a peaceful night. She then said, "Give them 20 minutes and go see her". I confirmed we most definitely would.

Dr. Wolfe will never know the impact she has had on my existence and view of the experience which is my life. I'm thinking differently. I'm acting differently. I'm prioritizing my health and my well being. I'm doing everything I need to do to justify to myself, the amazing and fantastic lengths to which Dr. Wolfe has gone to create Maryanne's miracle. It's my miracle too. It's my Children's miracle. I have no means by which to express to Dr. Wolfe the magnitude of my admiration, gratitude, loyalty, respect, and unworthiness of her gift. But what I do have is the drive to create change. The skills and the knowledge. The motivation to support Maryanne in all of the ways she will need to be supported. We are going to continue this mission and do all we are capable of doing to ensure awareness is amplified and spread to every single human. We are going to teach people how to save their own lives! This is going to be Maryanne's passion. And as a result, it will be mine. I truly hope it becomes something you will embrace, as well.

I returned to Madison and Carrie and gave them all of the fantastic news. The three of us embraced right there in the middle of the room while we all rejoiced loudly, passionately, and very emotionally. What an amazing moment to share with two of the people most responsible for providing me with all I need to be there in every single way, every single day, with all that I am, for my beautiful Angel. We all celebrated the win. We all spewed all of the love onto each other. I sat and continued to talk about the things Dr. Wolfe told me. I cried. I giggled and we sadly, said goodbye to Carrie. It was after 7:30PM and she's got a 5 hour drive ahead of her not to mention work in the morning. We hugged more and she headed for the parking garage.

Carrie has been a consistent positive force in not only Maryanne's life, but all of our lives. She knows not a negative inclination. She is the good Maryanne strives to spread. She is my backup Maryanne, if you will. Today, she showed up. Hell, she showed up last night solely with the intention of enabling me to get a full night's sleep in preparation for today's battle. She is selfless. She is all in, all the time, in all ways. Although temporary, Maryanne would be so proud to know Carrie is holding me up as only she is capable. I know without any doubt, Carrie is a very important part of that which has ensured Maryanne would WIN THIS DAY.
Thank you, Carrie. I Love You and I am so thankful for your existence in my life. You make me want to be better. I won't let you down!

Madison and I waited very impatiently and were finally invited to visit Maryanne. Maryanne had her eyes closed and seemed out of it. I got updates from Emma and Anna (our night Nurses) and approached Maryanne while Madi came at her from the other side of the bed. We caressed her face, arms, hands (she's in soft restraints again but that's okay). We spoke to her softly and she slowly opened her eyes. She looked at Madi, and then me. She was really active with her tongue. Not sure why. She would close her eyes for moments and then reopen them. She gave us a few frowns but Emma assured me she would be watching her very closely and if Maryanne winced or grimaced, Emma would be quick to evaluate her pain levels and administer what was needed, as needed. We love Emma and Anna. It's the NSICU so we love all of them. We spent some time talking to Maryanne and reassuring her she won the battle and was now ready to get better. No more surgeries. No more emergency procedures. Now we focus on the next phase and we get Maryanne better. I placed a few photos in the window sill and Madi & I agreed to complete our decor endeavors tomorrow. We said our goodnights, gave Maryanne all the kisses and all reassurances we could muster. We walked out of the room and around the Nurses station, to the exit.

Together, just like we entered on the evening of September 4, 2025 (28 Days Ago Today), Madison and I navigated our way through the hallways, sky bridges, and parking garage decks. But this time, we did so knowing Maryanne is going to be okay. After all, she has NO CHOICE!

Thank you, Champions! Thank you, Warriors! Thank you, Friends! And thank you to all of my fellow human beings who recognize each and every life is precious. Regardless of our differences, our beliefs, our challenges, our race, our disabilities, our failures, our successes, or our love, we all deserve to fulfill our purpose. We all deserve to have the opportunity to make our impact on the world and the people who call it home. We all deserve to have peace, happiness, and the freedom to do that which we know we have been called upon to do. We all deserve to have others be good to us.

I love you! We Love You! Maryanne Loves You!
Goodnight!

#warriorsformaryanne
#AVMAwareness
#AVMAwarenessMonth

Let's look forward to another positive update tomorrow. Love, Peace, and all good JuJu!

Maryanne's Journey - Surgery Update - October 2, 2025

Maryanne is in the NSICU in the same room. She did fantastically according to Dr. Wolfe. The Angiogram confirmed blood flow has been restored as planned. Dr. Wolfe is very happy with the results and sees nothing which should negatively impact Maryanne's journey to recovery and continued healing. She also confirmed there is no need for an additional operation! She got everything!

The best part according to Dr. Wolfe? They suctioned that little fucking bastard of an AVM out of Maryanne's brain. Dr. Wolfe gave the order to reverse suction and she shot the little fucker out onto the floor where her team destroyed it and threw it into a biohazard bag. This was done for us as I told her previously I wanted to have it so Maryanne could destroy it when ready. They can't give it to me so they did what they felt they could do to honor my request!

I will be posting so much more later but right now I have a date with my Angel!

Thank you Thank You, THANK YOU!!!

WE WON THE DAY! WE WON THE BATTLE! And You, Maryanne's Warriors, are our bravest of Champions! We Love You All!!!

#WarriorsForMaryanne

Maryanne's Journey - Evening Update, October 1, 2025

It's National AVM Awareness Month. Tell Everyone! Educate, Prepare, and Protect!

Madison and I arrived around 1PM today. Maryanne was in a rehab chair which is meant to keep her upright for a bit. 4 hours to be specific. Her head was low and leaning to the left. I called the Nurse and "fixed" the situation. Maryanne was not very responsive. She seemed very tired. I asked the Nurses to clean and suction her mouth, suction and clean her tracheal device and reposition her so that she is more comfortable. I left the room and Madison stayed. I returned to find they did that which I requested. I was slightly unhappy but I'm good now. As the day progressed, we had visitors. Amy, my cousin, came by on her break. She didn't get much time with Maryanne but she got to chat for a bit and Maryanne was receptive. As the day continued Maryanne became much more responsive. She began smiling more. When I approached her to kiss her she pursed her lips. FOR THE FIRST TIME, SHE KISSED ME BACK! I had to step away again after that. I came back and talked her more and more. Carrie arrived and got to interact with Maryanne resulting in more different types of responses. She started raising her eyebrows over and over. If you know Maryanne you know this is something she does all the time. She's not just responding and reacting, she's being MARYANNE! When asking her questions she nods and shakes her head. She has been winking which is super strange but so fucking cute, at the same time. Like really winking with her left eye!

Sorry, team. Yet another day with no goods and bads. Tomorrow is a massive day. Maryanne is facing the challenge of all challenges. But, if anyone has the built in stuff to get through this, it's Maryanne. I know the majority of you will not believe me. But I want to state this clearly and honestly, I'm okay. I know Maryanne will make it through this. I know she understands all I told her today. I took time today to tell Maryanne what is going to happen tomorrow. I have not yet told her about the event and the journey to date. But I have made sure she knows tomorrow is going to be her biggest challenge. She knows she is having brain surgery. She knows the risks. I have to be honest with my Wife; my partner.

Myself, Madi, and Carrie will be at the Neuroscience Tower first thing in the morning. Bells on. It's go time #WarriorsForMaryanne. This is our Zero Day. I spoke with the Surgical Team. I signed all the consent forms. I have put my trust, my faith, and my future & the future of my wife, my life, in the hands of Dr. Wolfe and her team of miracle makers! Rally! Pray! Put out all the best energy! Think the thoughts! And know always, Maryanne Loves You. We Love you! And we thank you for being the Champions we need right at this moment!