SMA - as an adult

From the media, it may now appear as if it was a childhood illness only.
It's not.
With type 1, life expectancy is 2 years.
With type 2 it is 18 years.
But these are average numbers.
There are teenage type ones, and twenty, thirty, and forty-year-old type twos,  who pull the statistical average up.

We live, we are here, we exist.
We're stronger than the average, maybe smarter. We survived many things. We crossed our own borders.

We'd also need medicine, treatment. According to NEAK, it has not been proven to be effective for people like us. Interestingly, it is effective abroad for people like us.
It would work for us too, I think it's not country dependent.
If the state doesn't pay, we'll collect the money. We don't need 700 million HUF, much less.

That's why a foundation was called to life.  The way back - foundation for the cure of SMA . For ourselves, who are declined by the insurance company.
For adult SMAs. Because we're here.
It would be very, very good if people would listen to us. We have been struggling for two years to get a chance - a chance that was previously medically impossible. Now it's financially.

The way back - foundation for the cure of SMA
IBAN HU56162002231012563000000000