What YouTube Can Do For You
This is a contribution from a patient.
To be clear: I am not a doctor or any related professional.
We are going to talk about YouTube. On and off, I have used YouTube videos for reasons I will go into here. I struggle with MS. ("The gift that keeps on taking." I stole that from Micheal J. Fox, fair and square.)
In many cases when I need an explanation or example I can find a related video. Where you see blue italics under a video that is my note.
Here is a trio of stocking-dressing videos. My starting search was "how to put on compression stockings." Of course, if you say "fast" and "easy" you get more attention, just like how McDonald's didn't call them "Sad Meals." 😉
using hands only, leg over knee, have used the technique
*Note: rubber gloves are not mandatory; if recommended for expensive, prescription stockings, buy a pair at your grocery store
using a wireframe donner, never used, but with enough mobility, might be good
new Scrabble® words — you 'don' and 'doff' your socks; so, don → donning → donner; doff → doffing → doffer
used one of these, good aid for stockings
When the subject turned to the topic of pain management through meditation I started by reading and watching Jon Kabat-Zinn. He (literally) wrote the book.
Jon Kabat-Zinn @ Google
(1 hr + long)
5-minute Guided Mediation with Jon Kabat-Zinn | MasterClass
Jon Kabat-Zinn, PhD – Mindfulness Meditation for Pain Relief (Audio)
And then I found some other pain and grief videos. The YouTube world is yours to look for your selections to keep in a playlist. Pain relief is a sub-set of all forms of meditation. Meditation for mourning is for short-term and chronic patients dealing with major shifts in their bodies.
You know how people say, "cross that bridge when..." or "...that's just a bridge too far?" My MS has pushed me to my next "bridge too far" over and over again. 'I don't need help' becomes 'I need some help' to 'Well, this needs massive help' and ultimately 'I must find ways to avoid needing this ever again.' Everyone living with me (my wife, our son) has to face the same bridge.
Pain Management Meditation
Guided Meditation for Pain Relief and Healing
10 min. Meditation after Death, Loss, Grief, Depression, Sadness
Tribute to Richard Dawkins: We Are Going to Die — nearly on repeat, this got me through my Dad's death
You can find videos about disability equipment of all kinds.
Guldmann Ceiling Hoist: Rehab - Standing Exercise
If you get a YouTube complaint just click Watch on YouTube
How to adjust the Aquatec Ocean Ergo Shower Chair
Offset or swing clear hinges to make a doorway wider
Swiss Ball Core & Back Strengthening Exercises (Basic) - Ask Doctor Jo
You can find videos on how a paraplegic puts on pants or sex tips for disabled people (how and if.) All of the videos below are from YouTube user WheelzOfFortune.
Getting Dressed (Wheelchair user) (Paraplegic)
I Smell Sex and Paraplegia (Wheelchair user) (Paraplegic)
Into / Out Of The Dental Chair?
Personally speaking, I use the Dental Clinic at the Glenrose (Edmonton's rehab hospital) — they have ceiling-mounted patient lifts
Adaptive Yoga - Lord Of The Dance OR Dancer Pose [Natarajasana] (Wheelchair user) (Paraplegic)
Late addition
Thriving with Multiple Sclerosis | Rob Cridge | TEDxKinjarling
I just watched this. If you have MS or another chronic condition or care for someone who does, this video is inspirational *A F*
🥲
You can find many explanations not in manufacturer manuals and seeing with your own eyes ("show, don't tell") can be more helpful. Life with a chronic condition can be a little less scary, less difficult, and less isolated.
NEVER EAT THIS FRUIT!
A warning about YouTube content: just like the rest of the internet, YouTube is filled with lies and the liars that tell them. I was once presented with two 'click-bait' ads side by side, reproduced to my ability to the left and right. Can you fight the urge to click on one or both ads? Click. Bait.
ALWAYS EAT THIS FRUIT!
I wish you the best of searching forever and forever, but you need to keep your wits about you.
This is a contribution from a patient.
To be clear: I am not a doctor or any related professional.