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Citation: Bunning K, Gona JK, Newton CR, Andrews F, Blazey C, Ruddock H, et al. (2020) Empowering self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Impacts and their underlying mechanisms. PLoS ONE 15(3): e0229851.

Self-help initiatives have been reported with a range of stakeholder groups in low and middle income countries, including caregivers of children with disabilities in Ghana [5]; mental health service users in Ghana [38] and Uganda [39]; economic and livelihood groups for women in South Asia [14, 40,41]; social support for adolescents with visual impairments in Jordan [42]. Reported benefits include financial support [38, 41]; social support and acceptance by other members of the family [5, 41,42]; growth in confidence for self-expression and reduction in domestic abuse [43] and improved family relations [44]. However, despite such positive outcomes, SHGs have been criticised for a lack of research rigour with insufficient detail on processes and activities underpinning the outcomes [40]. This resonates findings on other CBR/CBID initiatives [45,46].

The set-up of SHGs brought the caregivers together in a movement that was counter to their isolation. The process of identifying themselves in relation to a shared characteristic, that of being a caregiver to a child with disabilities, supported group formation, which was similarly observed in Ghana [5]. The facilitated intervention invited the sharing of personal narratives in a safe environment that was characterised by acceptance and shared experiences in common. A component of the empowerment process, speaking up, was indirectly linked to a developing self-concept and acting for change, consistent with Moran et al [30].

We would like to acknowledge the huge contribution of the caregivers to this work who came together so willingly to invest their time and energies in the development of self-help groups. We would also like to thank the community group members who helped to identify and mobilise the caregivers, many of whom continue to provide a supporting role to the SHGs.

You don't need to send a filled application form because we will have a new application procedure by that time. Our in-country teams will ask you a few questions to ascertain that your group fits with the RSWR criteria and, if it does, they will send you an explanation of our new application procedure.


We are sorry for this delay, but we are excited about the changes to our grant-making process, which we expect will help us increase the success of the RSWR project partners.

The project must be submitted by an organized group, motivated, who has a real need, and has already had to deal with communities. The project should be feasible based on the socio-economic context and include the necessary information and documentation indicated on the form.

Here you can find information on relevant tools for different ways to register your organisation. Please carefully consider, after reading all information, what type of registration is the best for your organisation. If, after reading, this is still not clear, consider asking professional advice, for instance from one of the specialised organisations mentioned under Key institutions and organisations.

This form of registration is appropriate for membership groups. Membership is open to those that meet the membership requirements (as explained in the constitution of the group). The registrar of Societies is in charge of registration of clubs, partnerships or any other association of ten or more persons. The registration process takes approximately two to three months and is subject to approval by the Registrar of Societies.

registration provides full legal recognition. This allows the group to meet, open a bank account, conduct its affairs, raise funds, take loans (this is bank specific), enter into contracts and own assets. The group is required to obtain a PIN certificate and submit tax returns to the KRA for PAYE and Withholding Tax.

To maintain registration, the CSO should submit annual returns to the Registrar of Societies using an official form documenting changes to officials and any changes made to the constitution of the association.

Community Based Organisations (CBO) are commonly defined as all such organizations, institutions or congregations of people, which have local area/ village-based presence, maturity and structural arrangements. These are owned and managed by members. They are formal, legal entity or informal registered organizations maintaining separate books of accounts, systems & ways of working. They have group identity- membership and are also referred to a Self Help Groups (SHG). They act at the grass-root level and are formed by common interest groups to solve issues within their community or village.

How many people are in each group?

For our drop-in groups, we do not limit the number of people who can register, since all people who have registered do not attend each meeting. However, as our groups have grown, we have learned that capping participation at 15 people is best. Therefore, if more than 15 people attempt to drop-in to a meeting, we may have to lock the meeting to prevent overflow. Other groups, such as our special workshops and series, will have different registration caps.

How are support groups facilitated?

Each SASS group is facilitated by at least one SASS staffer, volunteer, or intern (usually two SASS facilitators are present). Facilitators ensure the comfort and safety of all participants, help to facilitate discussion, and present materials to spark conversation. Each group typically includes an ice-breaker, a topic-based discussion, free share time, and a closing ritual.

Please be aware: there are times when, due to circumstances beyond our control, a support group meeting may have to be canceled with short notice. On those occasions, we update our calendar and post notices to our social media platforms (Facebook and Instagram); you may also always call our business line (541-484-9791) to verify the schedule of our meetings.

2. FOR NATIONAL LEVEL DPOs:

a. You must provide a completed application form.

b. You must provide a certificate of registration as an NGO with the relevant government authority.

c. You must provide a copy of your constitution.

d. You must provide evidence that at least 30% of your membership is made up of PWDs or parents of PWD and 60% of your management committee and either the Chairperson or the CEO is is either a PWD or a parent of CWDs. e24fc04721

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