Quality of life after transplant surveys
for solid organ transplant recipients

Survey testing - information for transplant recipients

Welcome

The 'Quality of Life After Transplant' study is being conducted by Dr Ben Rimmer and Miss Daisy Robinson, who are part of a research team led by Professor Catherine Exley at Newcastle University

This work is part of the Blood and Transplant Research Unit in Organ Donation and Transplantation at Cambridge and Newcastle Universities

This information has been written for people who have had a solid organ (heart, lung, liver, kidney, pancreas) transplant in the United Kingdom

We explain what is happening in this research study and how you can help

The pilot test is live

You can complete one or both of the surveys by following these links:

Quality of Life After Transplant Survey

Symptoms After Transplant Survey

Key points:

We would like to improve understanding of life after transplantation
To do this, we have designed two new surveys of quality of life and symptoms after transplant for solid organ transplant recipients
These surveys ask you about your day-to-day life and any symptoms you might have experienced after transplantation
We are looking for transplant recipients to help test the surveys. Each survey takes about 10-15 minutes to complete
We invite people who live in the United Kingdom, aged 18 years or older and have received a solid organ transplant 12 months ago or more to take part
You do this by filling in the surveys online. You can choose to test one or both of the surveys
Your answers will be completely anonymised

For full information on what is involved in taking part,
you can access the Participant Information Sheet as a PDF by:

clicking on the "pop-out" box on the top right of the image (desktop)
clicking anywhere on the image (mobile device)

Participant information sheet (Pilot)_Transplant recipients.pdf

For more information or if you have any questions,
you can contact the research team or visit the study website:

📧ODT.experiences@newcastle.ac.uk

🌐https://odt.btru.nihr.ac.uk/research/theme-6/

Expand this section for links to external organisations and groups
who can be approached for support*

A list of NHSBT Heart transplant support groups can be found here: https://www.nhsbt.nhs.uk/organ-transplantation/heart/living-with-a-heart-transplant/heart-transplant-support-groups/
A list of NHSBT Lung transplant support groups can be found here: https://www.nhsbt.nhs.uk/organ-transplantation/lung/living-with-a-lung-transplant/lung-transplant-support-groups/
A list of NHSBT Kidney transplant support groups can be found here: https://www.nhsbt.nhs.uk/organ-transplantation/kidney/living-with-a-kidney-transplant/support-and-emotional-wellbeing/
A list of NHSBT Liver transplant support groups can be found here: https://www.nhsbt.nhs.uk/organ-transplantation/liver/living-with-a-liver-transplant/support-and-emotional-wellbeing/

*These are external organisations whose details are publicly available online. We cannot take responsibility for the conduct of these organisations and groups.

Click the logos below to find out more about the organisations that are supporting this research

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Quality of life after transplant surveys for solid organ transplant recipients