Information about PCOS is actively shared online, and a significant proportion of patients diagnosed with PCOS are between the ages of 18 and 44 ².
One study analyzed PCOS-related content posted on social media platforms (e.g., TikTok, Instagram, etc.) to observe how media influences perceptions of PCOS ¹.
Based on engagement with the content, they found that TikTok-related videos received approximately 1.8 million views. These posts emphasizes weight and dieting, with account that appeared to be medical professionals covering only about 30% of the total PCOS content ¹.
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Quotes to remember for those who blame themselves for changes in their physical appearance due to illness ³.
India, Pakistan, Bangladesh, etc.
In South Asian culture, femininity is defined as motherhood ⁴.
According to Indian studies, PCOS itself is not directly related to social and cultural factors ⁴, but one of the main symptoms, menstrual irregularities, has social implications, making it difficult to rule out the possibility of stigmatization ⁵.
In conservative families, there is a possibility of hiding the PCOS patients ⁶.
Some people hide their condition for fear of being judged by others ⁶,⁷. However, one study reported that there are no contraindications and that PCOS patients can be treated freely ⁶.
In some parts of Pakistan and India, women are treated differently based on their fertility ⁷.
Women are treated more respectfully when they have children ⁷,⁸. If pregnancy is impossible, the husband can take another wife ⁸.
This is why PCOS patients living in South Asia tend to hide and underestimate the symptoms of PCOS ⁸.
A study conducted in India found that PCOS patients found symptoms for the first time and on average took about a year to receive medical assistance ⁹.
The Influence of Religion on PCOS:
Hinduism
Many Hindu women tries Ayurvedic medicine & yoga ¹⁰ to relieve symptoms
Ashwagandha & herbs are commonly used along with cinnamon, and turmeric ¹⁰.
Yoga promotes hormonal balance through psychological stability, and these methods are preferred due to its cultural familiarity and accessibility ¹⁰.
Islam (Pakistan & Bangladesh)
Muslim women tend to visit shrines for treatment (wears taweez or reciting prayers) ¹⁰.
Islam emphasizes childbirth, and some believe that prayers and rituals should be performed with medical treatments ¹⁰.
Sikhism
Some Sikh women experiencing hirsutism (excessive hair growth) due to PCOS faces a religious dilemma ¹¹.
They have to choose between hirsutism treatment or adhering to their religious beliefs ¹¹.
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Nigeria, Oman, Ghana, Sierra Leone, etc.
In this region, the social value of women is also linked to their ability to have children. Women who cannot conceive may be socially isolated ¹².
Anovulation, the main symptom of PCOS could lead to infertility, and many women suffer from this stigma ¹², ¹³.
In remote areas, the situation is considered a personal problem ¹³.
In Nigeria, when women have difficulty conceiving, there are cases where they believe that their uterus is damaged by spiritual issues or abortion ¹³.
They also believe in a spiritual being called a 'spirit husband' and look for the cause of all situations as the woman's personal problems ¹³.
These social perceptions and stigmas of infertile women can delay diagnosis ⁸.
They experience loneliness, low self-esteem, and jealousy toward other mothers due to PCOS and their infertility ⁸.
In the case of Oman, PCOS patients reported feeling 'inferior' to women who have given birth ⁸.
Join WhatsApp Support Group for PCOS!
In Nigeria, help is being provided through WhatsApp ¹³. The goal is to help women understand and overcome PCOS ¹³.
The group focuses on Nigeria, Ghana, and Sierra Leone, protecting them from misinformation ¹³.
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China, Korea, Japan, etc.
East Asia diagnoses women's health from the perspectives of Oriental & Western medicine ¹⁴.
Although PCOS is more common in China than elsewhere ¹⁵, the Confucian and conservative environment makes it socially taboo for women to talk about their condition with others ¹⁶.
In a study in the U.S., it was shown that Chinese-American groups were more afraid of the social perception of infertility, and were less likely to receive treatment when compared to other Asian-American groups ¹⁶.
Traditional Chinese medicine diagnoses PCOS as a symptom that can be corrected, and records were found of herbs being prescribed to PCOS patients in Beijing ¹⁷. These are called 'herbal medicines' and showed minimal effects ¹⁴, ¹⁷.
Acupuncture is also an important part of Oriental medicine, and scholars say that patients may benefit from a combination of the two treatments ¹⁴, ¹⁸.
In the West, a large proportion of patients are in the upper BMI range, and studies have shown that obesity increases the risk of PCOS ¹⁹.
In contrast, East Asian patients tend to have a relatively low BMI ¹⁹, ²¹ and higher abdominal fat. The degree of hirsutism also varies. Hirsutism was measured by the mFG score* ²⁰, and East Asians had lower scores, while South Asian, Middle Eastern, and Hispanic patients had higher scores and experienced more severe hirsutism ¹⁹, ²⁰. However, despite these BMIs, East Asian women were more likely to have diabetes than women of other ethnicities ²¹.
*The mFG score is a unit based on hair growth in nine body parts that are affected by androgens ²⁰.
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North, Central, South America
In North America, awareness has increased through various organizations such as PCOS. Together and PCOS Awareness Association, and through increased media use ²².
However, in a culturally diverse society, social stigma can arise due to cultural differences ¹⁶.
According to one study, women of African and Asian descent felt that the social perception of PCOS was more detrimental to them ¹⁶.
There are also studies showing that ethnic minorities living in the U.S. are culturally comfortable with PCOS treatment ²⁴.
For example, there are findings that health care in Native American women with PCOS from tribal cultures is influenced by religious beliefs ²⁴. Some may prefer traditional healing methods or guidance from tribal elders ²⁴.
In North America, there are many campaigns to raise public awareness about PCOS ²². Currently, September is designated as PCOS Awareness Month.
In Latin America, efforts are also being made to explain the correlation between PCOS and obesity, talk bout psychological problems, and eliminate negative social perceptions ²³.
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No.
Not all PCOS patients experience infertility. It is essential to consult with your doctor first before worrying about infertility ²⁵.
There are ways to help (e.g., vitro fertilization) ²⁵.
No.
PCOS is more common in people who are overweight ²⁵ (40-80% higher risk ²⁶), but it can also occur in healthy people or in people who are malnourished and lean ²⁵.
No.
There is no definitive cause of PCOS. It is influenced by genetics and environmental factors, such as lifestyle, and habits (e.g., poor diet, lack of sleep, stress, etc.) ²⁵. Being diagnosed with Type 2 Diabetes may increase your risk of PCOS ²⁵.
As seen in the previous page, PCOS patients can experience anxiety/depression / negative self -image /emotional instability due to increased androgen levels ²⁷.
These symptoms can vary in severity from person to person, but can lead to significant anxiety and loss of interest in the individual ²⁸.
This can interfere with daily life and sometimes requires professional help ²⁸.
The reason for these effects is not yet clear ²⁹, but theories are gaining ground that it is due to hormonal influences and physical symptoms of PCOS ²⁹. People often feel socially inadequate and experience a disconnect between their self-image and social expectations ³⁰.
PCOS patients experience self-consciousness due to physical changes ³¹.
For example:
Acne ³²
Hair loss ³²
Hirsutism (abnormal hair growth) ³²
Weight gain ³²
Male pattern baldness ³²
This leads to an unhealthy diet ³¹.
A study from the University of Wisconsin found that people with PCOS are at significantly higher risk of developing bulimia nervosa (regardless of their BMI) ³³-³⁵.
Are you struggling with mental health symptoms due to PCOS? Get the help you need here:
PCOS is not simply a biological condition. Various environmental factors (pollution, urban living, diet, etc.) affect hormonal imbalances, which can affect the onset and symptoms of PCOS ³⁶.
Urban pollution can increase EDCs (endocrine disrupting chemicals) and affect hormonal imbalances, which can lead to PCOS ³⁷.
Food deserts and increased consumption of processed foods can contribute to insulin resistance, a common cause of PCOS ³⁸.
Access to healthcare is important to properly treat, diagnose, and raise awareness about PCOS ³⁹.
Geographic and socioeconomic factors hinder people with PCOS from receiving necessary medical services ³⁸ and developing healthy lifestyle habits ³⁹.
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