Spinocerebellar Ataxia Type 1 The Opal Lab is actively recruiting research participants/patients for the following clinical trials:
Clinical Research Consortium for the Study of Cerebellar Ataxia (CRC SCA) to Study Natural History and Genetic Modifiers in Spinocerebellar Ataxia (SCA).
The purpose of this study is to collect natural history data among ataxia patients in a cohort of SCA 1, 2, 3, 6 patients using clinic-based neurological rating scales and performance measures. Another study goal is to identify new measures of ataxia, cognition, and neurobehavior in comparison to traditional clinician rating methods. The gene analysis is expected to establish a relationship, if any, between age at onset of disease and disease progression rates.
If you are interested in joining a clinical trial, please navigate to our page in Northwestern Medicine's clinical research database: https://www.neurology.northwestern.edu/research/clinical-trials.html?id=STU00204294