This site was built for the purpose of identifying existing resources for individuals with brain injuries, highlight the pathways to these, and expose the gaps in services on both a state and federal level. The current system is siloed and does not promote success. During my capstone experience, I worked with an individual with a brain injury (from 20+ years ago) to navigate the Oregon resource maze. I left our weekly meetings feeling overwhelmed, drained, and unaccomplished. The current siloed system was extremely difficult for me to navigate and I don’t have a brain injury. How can we expect individuals with a disabled brain to gain access to the things they need/want? We can't. That is why the Brain Injury Association of America (BIAA) reports that 95% of all persons with head injury DO NOT receive services they need to establish personal sufficiency (BIAA, n.d.).
The goal of this website was to create supporting evidence to advocate for improvements in support and services for individuals with brain injuries in Oregon. This website is far from comprehensive and will continuously need to be updated with the latest information. But it is a start.
Have any questions? Comments? Or known of any resources? Check out the bottom of the page to learn how to contact me.
Before we can look at some of (or lack of) the services/resources available to this population, we must first consider some of the deficits that occur following brain injury. Brain injury results in physical, emotional, cognitive, and behavioral impairments. Many of these create exponential barriers to getting the services they need/want.
Initiation
Problem solving
Judgement
Inhibition of behavior
Planning/anticipation
Self-monitoring
Motor planning
Emotions/personality
Awareness of abilities/limitations
Mental flexibility
Speaking (expressive language)
Sense of touch
Differential of size, shape, and color
Visual perception
Memory
Hearing
Vision
Understanding language
Organization & sequencing
Balance
Swallowing
Coordination
Skilled motor activity
Breathing
Heart rate regulation
Arousal/consciousness
Sleep/wake cycle
Attention/concentration
If you struggle with any of these, how would you navigate getting the services you need/want?
What does potential look like after a brain injury?
Consider how one's life might change before/after an injury and the life-long process that follows. Most injuries result in temporary loss of function. For example, if you sprain your ankle, you rest and allow it to recover. But what about a brain injury? Brain injury is a chronic life-long condition.