Exploring Outcomes and Characteristics of Myasthenia Gravis 2 (EXPLORE-MG2) If you have a clinicial diagnosis of myasthenia gravis (MG) you may be eligible to participate in the EXPLORE-MG2 study, which is a multi-center natural history study of myasthenia gravis (MG), a rare autoimmune disease characterized by weakness of the voluntary muscles. The primary purpose of this project is to create a network repository of data and biological samples to help researchers learn more about myasthenia gravis.
New Paid Study Opportunity
Hello MG Hope Community! We have partnered once again with Just World Wide research to bring you another limited paid study opportunity. Be sure to act fast as spots will go quickly. You will need to complete the screener to verify your diagnosis before you can move on to schedule the interview portion and be paid. It is a 60 minute interview and if accepted, it will pay $150 as a thank you.
We appreciate your continued participation in research opportunities that help us connect research teams to real time patient assessment and better clinical understanding of the reality of treatment!
Qualifications - All MG patients who have recently used (in the last 12 months) or are currently using one of the following:
1. Soliris /Eculizumab
2. Ultomiris/ravulizuma
3. Vyvgart / efgartigimod alfa fcab
4. Rystiggo/ rozanolixizumab-noli
Just World Wide Research is looking to interview a small group of patients for an hour. All who participate and verify their diagnosis will be paid $150 as a thank you. If you are interested, please send an email to Rebekah@mghope.org Time and space is very limited and spots will go quickly. Once again, thank you for participating in ongoing research that helps move our community forward!
Blessings, Rebekah Dorr, Director of Clinical Patient Advocacy rebekah@mghope.org
Hello MG Community - Below is a flyer for an MG study in Irvine, California, by Dianthus, which was referred to me by Dr. Habib of UCI. The age for participants is 18 - 59 and participants are NOT injecting themselves (or anyone else)--they will simulate injections into injection pads. If qualified, compensation is $500.
Thank you,
Connie DiPasqua
MG SoCal Support Group Leader
ME&MGopen
The ME&MGopen research study is still recruiting subjects in USA and Canada (and soon Germany). MGFA held an online presentation by this research group in September and you can watch the entire presentation on YouTube HERE. (Note: the speaker has a strong French accent and you might find it easier to follow using the closed caption setting.) You will be paid up to $500 USD for your time participating. The entire study is done online; you don't have to go anywhere. I, your "webmaster", am enrolled and highly recommend it.
STUDY ALERTS!!
LAA RESEARCH: Are you interested in contributing to Myasthenia Gravis research but unsure how to get involved? Are you looking for a quick side hustle or gig? If you love sharing your input and want to earn some extra money, we have an exciting opportunity for you!
IAA is currently seeking individuals diagnosed with Myasthenia Gravis, as well as caregivers of people with Myasthenia Gravis, to participate in a research study. Your valuable insights and opinions are needed, and in return for just 60 minutes of your time, you will receive a payment of $250! The best part is, you do not have to take any medication to participate.
This is a great way to make the most of your time while contributing to the advancement of Myasthenia Gravis research. To participate, simply send an email to iaaresearch@gmail.com. Feel free to share with your MG friends who might be interested in participating as well. Spread the love and opportunity. Thank you for considering this opportunity, as your participation will have a meaningful impact on the lives of others with MG
(Note: Possibly due to a recent merger with Selecta Biosciences, the U.C. Irvine links below for Cartesian Therapeutics are not landing on the appropriate web pages. They do say to contact them at trials@cartesiantx.com. The Carlsbad link, fortunately, is still working. As of 1/14/2024 the trial is still open for enrollment)
Hi, Everyone! On July 24 you received an email regarding an ongoing and groundbreaking research study in MG, sponsored by Cartesian Therapeutics (https://cartformg.org/), involving RNA. Currently it is in Phase II and will soon be starting Phase III of the clinical trials.
Cartesian is actively recruiting MGers here in Southern California! The local sponsor of the study is U.C. Irvine, and I think the testing site is at the UCI Manchester Pavilion in downtown Orange, CA (right in the middle of Orange County). Those interested can apply online at https://cartformg.org/university-of-california-irvine/. (If this link doesn't work then just go to https://cartformg.org/ and choose "FIND A STUDY CENTER"; it's the first site listed.)
There's also another study site (also recruiting) farther south in Carlsbad at the Neurology Center of Southern California (https://cartformg.wpengine.com/research-center-of-southern-california/) which might interest those living closer to, or in, San Diego.
There are some restrictions (e.g., no Ocular-only MGers; a few of the current drug therapies; etc.) but I think most group members who have active MG might qualify. Click the appropriate link(s) above if you are interested in finding out more info or to see if you might qualify for the study.
(Note 8/17/2023: In a recent online presentation the speaker from Cartesian mentioned that subjects must be taking less than 40mg Prednisone daily as a qualification.)