We are seeking to talk to a spouse or adult child who has had discussions with their relative living with Alzheimer’s disease or a related dementia about accessing MAID. We are interested in speaking to both caregivers with a relative planning to receive MAID or has already received MAID and caregivers with a relative who decided not to go ahead with the intervention. Please note that anyone participating in the study needs to be over the age of 19.

Participating in our study involves taking part in an in-person or Zoom interview with a member of our research team to talk about MAID and the motivations in considering access to this intervention. This will take 60 minutes of your time or less. You may wish to involve your spouse or parent with Alzheimer’s disease or a related dementia in the interview as long as they can provide informed consent. Please note that their involvement is entirely optional. The information you provide will remain completely confidential and seen only by research team members.

If you participate, we will send you a $50 Visa gift card in appreciation for your time.

We are hoping the study will generate insight into the complex thoughts and concerns related to MAID and decision-making in the context of the lived experience of Alzheimer’s disease or a related dementia. We want to know whether the decision to contemplate MAID might be influenced in part by concerns over insufficient community support for family caregivers and worries over conditions in long-term care facilities that may undermine the dignity and well-being of the person in care. Findings in this regard could help refine existing services to better support caregivers and persons living with Alzheimer’s disease or a related dementia in forming realistic expectations about the risks and benefits of long-term care and to actively communicate with their doctors about their concerns and options. The results also reaffirm the importance for individuals in long-term care to be attended to without loss of self-respect and in a way that allows them to continue playing meaningful roles.

This study is generously funded by the Alzheimer Society of Canada and the Brain Canada Foundation.

Please visit this page to learn how to join our study:

Participate in the Study