Lucas James Xavier Kolasa

Beyond the Diagnosis: Putting a face to children with rare diseasesShining a spotlight on children with rare diseases. An art exhibit does that, putting a human face to the 7,000 rare diseases.

CBS News Highlights the Faces Behind Rare DiseaseThe Committee on Energy and Commerce is the oldest standing legislative committee in the U.S. House of Representatives and is vested with the broadest jurisdiction of any congressional authorizing committee.

pressreleasesept2017 — DISORDER: The Rare Disease Film Festival

Putting a face on rare diseaseUpdate, February 2018: A traveling art exhibit featuring portraits of children with rare diseases returns to the Broad this spring to humanize and inspire research on these conditions.

Portrait Patrons 2019 | beyondthediagnosis

Putting a face on rare, incurable diseasesLucas Kolasa is an artist and curator of Beyond the Diagnosis, an exhibition of portraits of children facing illnesses for which there are no known cures

How Hasbro Children’s Hospital and a non-profit organization, Beyond the Diagnosis, help a young Rhode Islander and others living...oceanstatestories.org/logan-brown-a-portrait-in-perseverance/

Exhibit takes viewers ‘Beyond the Diagnosis’Persons with rare diseases are individuals, not cases. “Beyond the Diagnosis,” an art exhibit on display this month at the Alpert Medical School, showcases their humanity even as it also introduces students to their complex medical needs. The exhibit is open to the public during business hours.

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