Current Research

Our current research aims to determine the extent to which language may predict outcomes associated with fragile X-associated tremor/ataxia syndrome (FXTAS) and the FMR1 premutation. We are recruiting adults who do and do not have the FMR1 premutation between the ages of 30 and 65 years.

Information about Research Participation: 

Language, Executive Function, and Quality of Life in 

FMR1 Premutation Carriers 

Who can participate?

Males and females with and without the fragile X premutation aged 30-65 whose primary language is English may be eligible to participate. 

What will happen in the study?

If the individual qualifies and decides to participate in this research study, they will complete 1-2 hours of online tasks with an examiner.

The following is a list of some of the tasks that participants will complete during the study:

What are the benefits of this research?

There will be no immediate benefits to participating in this research. However, your participation may benefit other people in the future by helping us learn more about how language is affected among people with the Fragile X premutation.

Participants will be compensated for their time.

What are the risks of this research?

A potential risk of participation includes the potential for a breach of confidentiality, although the study involves protections to minimize such risks. In addition, participants may become embarrassed or anxious when they are asked study questions or are completing study tasks.

There may be other risks that we do not know about yet.

Will I be paid to complete this study?

Participants receive $50 for their participation in the study.