Share Your Story or Voice

Why Share?
Many families struggle for years to get a laryngeal cleft diagnosis and often feel alone. Sharing our experiences helps increase awareness, understanding, and hope.

Consider including:

- child's first name and general location (state, province, or country)
- symptoms, diagnoses, and treatments
- current health status and/or health challenges
- 1-8 photos/videos
- Anonymous submissions are allowed.

What to consider including in a Full Story:

Voices Videos gives members of the larygeal cleft community a chance to constructively share their experiences and insights.

Parents: consider sharing your name, child's first name and cleft severity/type, and general location.
Remain anonymous by filming non-identifying footage, then narrate in your own voice or send a script for captions.
End the video in any way you'd like or feel free to restate your topic followed by "... and this is my laryngeal cleft voice."
Example: "So that's my advice to parents new to this diagnosis, and this is my laryngeal cleft voice."
Speak on anything about a laryngeal cleft journey that resonates with you. Possible ideas:
- - The hardest part of our laryngeal cleft journey was…
  - Living with a laryngeal cleft has taught me…
  - Our road to diagnosis was difficult because…
  - One thing I'd suggest to providers, based on our experience, is…
  - For families new to this diagnosis, my advice is…
  - The person who has made the biggest difference in our journey is…
  - Looking back, I wish I had known that…
  - If I could do things differently, I would have…
  - One thing that surprised me about our laryngeal cleft journey was…
  - Something that made our journey easier was…
  - One thing our medical team did really well was…
  - A moment we celebrated along the way was…
  - Something that makes our child who they are, beyond their diagnosis, is…
  - Connecting with other laryngeal cleft families meant…
  - The biggest misconception about laryngeal cleft is…

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