Publications: articles

MacQueen, K. M, Auerbach, J. D. (2018) It is not just about “the trial”: the critical role of effective engagement and participatory practices for moving the HIV research field forward. J Int AIDS Soc. 21(S7):e25179 [Available at: https://onlinelibrary.wiley.com/doi/full/10.1002/jia2.25179]

MacQueen, K. M., Eley, N. T., Frick, M., and Hamilton, C. (2018) Using theory of change frameworks to develop evaluation strategies for research engagement: results of a pre‐pilot study. J Int AIDS Soc. 21(S7):e25181 [Available at: https://onlinelibrary.wiley.com/doi/10.1002/jia2.25181]

Costenbader E, Mangone E, Mueller M, Parker C, MacQueen KM. (2018) Rapid organizational network analysis to assess coordination of services for HIV testing clients: an exploratory study, Journal of HIV/AIDS & Social Services 17:1, 16-31. [Available at: https://doi.org/10.1080/15381501.2017.1384779]

Tolley EE, Guthrie KM, Zissette S, Fava JL, Gill K, Louw CE, Kotze P, Reddy K, MacQueen K. (2018) Optimizing adherence in HIV prevention product trials: development and psychometric evaluation of simple tools for screening and adherence counseling. PLOS One 13(4):e0195499. [Available at: https://doi.org/10.1371/journal.pone.0195499]

Govender E, Mansoor L, MacQueen K, Abdool Karim Q. (2017) Secrecy, empowerment and protection: positioning PrEP in KwaZulu-Natal, South Africa. Culture, Health & Sexuality 19(11):1268-1285. [Available at: https://doi.org/10.1080/13691058.2017.1309682]

MacQueen KM. (2017) Young people, HIV, and life goals. Journal of the International AIDS Society 20:22267. [Available at: https://doi.org/10.7448/IAS.20.1.22267]

Stalter RM, Tharaldson J, Owen DH, Okumu E, Moench T, Mack N, Tolley EE, MacQueen KM. (2017) Attitudes and perceptions towards novel objective measures of ARV-based vaginal ring use: results from a global stakeholder survey. PLOS One 12(7):e0180963. [Available at: https://doi.org/10.1371/journal.pone.0180963]

Okumu E, Jolly DH, Alston L, Eley N, Laws M, MacQueen KM. (2017) Relationship between human immunodeficiency virus (HIV) knowledge, HIV-related stigma, and HIV testing among young black adults in a southeastern city. Frontiers in Public Health 13 March 2017. [Available at: https://doi.org/10.3389/fpubh.2017.00047]

MacQueen KM, Eley NT, Frick M, Mingote LR, Chou A, Seidel S, Hannah S, Hamilton C. (2016) Developing a framework for evaluating ethical outcomes of good participatory practices in TB clinical drug trials. Journal of empirical research on human research ethics: JERHRE 11:203-213. [Available at: https://doi.org/10.1177/1556264616657452]

MacQueen KM, Warren M. (2016) HIV vaccine awareness day: sustaining the momentum. Journal of the International AIDS Society 19:21202. [Available at: https://doi.org/10.7448/IAS.19.1.21202]

Stalter RM, Moench TR, MacQueen KM, Tolley EE, Owen DH. (2016) Biomarkers and biometric measures of adherence to use of ARV-based vaginal rings. Journal of the International AIDS Society 19:20746. [Available at: https://doi.org/10.7448/IAS.19.1.20746]

Jolly DH, Mueller MP, Chen M, Alston L, Hawley M, Okumu E, Eley NT, Stancil T, MacQueen KM. (2016) Concurrency and other sexual risk behaviors among black young adults in a southeastern city. AIDS Educ Prev 2016; 28(1):59–76. [Available at: https://doi.org/10.1521/aeap.2016.28.1.59]

MacQueen KM, Dlamini S, Perry B, Okumu E, Sortijas S, Singh C, Pillay D, Majors A, Jerome S, Watson S, Abdool Karim S, Abdool Karim Q, Mansoor LE. (2016) Social context of adherence in an open-label 1% tenofovir gel trial: gender dynamics and disclosure in KwaZulu-Natal, South Africa. AIDS Behav 20:2682-2691. [Available at: https://link.springer.com/article/10.1007/s10461-016-1339-4]

MacQueen KM, Bahn A, Frohlich J, Holzer J, Sugarman J., Ethics Working Group of the HIV Prevention Trials Network. (2015) Evaluating community engagement in global health research: the need for metrics. BMC Med Ethics 16(1):44. [Available at: https://doi.org/10.1186/s12910-015-0033-9] PubMed PMID: 26126899.

MacQueen KM, Chen M, Jolly D, Mueller MP, Okumu E, Eley NT, Laws M, Isler MR, Kalloo A, Rogers RC. (2015) HIV testing experience and risk behavior among sexually active black young adults: a CBPR-based study using respondent-driven sampling in Durham, North Carolina. American Journal of Community Psychology 55(3):433-443. [Available at: https://doi.org/10.1007/s10464-015-9725-z]

Isler MR, Brown A, Eley N, Mathews A, Batten K, Rogers R, Powell N, White C, Underwood R, MacQueen K. (2014) Curriculum development to increase minority research literacy for HIV prevention. Progress in Community Health Partnerships 8.4:511-521. [Available at: https://doi.org/ 10.1353/cpr.2014.0059]

Succop S, MacQueen KM; van Loggerenberg F; Majola N; Abdool Karim Q; Abdool Karim SS. (2014) Trial participation disclosure and gel use behavior in the CAPRISA 004 tenofovir gel trial. AIDS Care: Psychological and Socio-medical Aspects of AIDS/HIV 26:12:521-1525. [Available at: https://doi.org/10.1080/09540121.2014.938014]

Headley J, Lemons A, Corneli A, Agot K, Ahmed K, Wang M, Odhiambo J, Skhosana J, Tharaldson J, Van Damme L, MacQueen KM. (2014) The sexual risk context among the FEM-PrEP study population in Bondo, Kenya and Pretoria, South Africa. PLoS ONE 9(9) e106410. [Available at: https://doi.org/10.1371/journal.pone.0106410]

MacQueen KM, Tolley EE, Owen D, Amico KR, Morrow KM, Moench T, Friend D, Friedland B. (2014) An interdisciplinary framework for measuring and supporting adherence in HIV prevention trials of ARV-based vaginal rings. Journal of the International AIDS Society 17(Suppl 2):e19158. [Available at: https://doi.org/10.7448/IAS.17.3.19158]

MacQueen KM, Chen M, Ramirez C, Nnko SEA, Earp KM. (2014) Comparison of closed-ended, open-ended, and perceived informed consen comprehension measures for a mock HIV prevention trial among women in Tanzania. PLoS ONE 9(8) e105720. [Available at: https://doi.org/10.1371/journal.pone.0105720]

MacQueen KM, Weaver MA, van Loggerenberg F, Succop S, Majola N, Taylor D, Abdool Karim Q, Abdool Karim S. (2014) Assessing adherence in the CAPRISA 004 tenofovir gel HIV prevention trial: results of a nested case–control study. AIDS and Behavior 18(5):826-832. [Available at: https://doi.org/10.1007/s10461-014-0753-8]

Mansoor LE, Abdool Karim Q, Yende-Zuma N, MacQueen KM, Baxter C, Madlala BT, Grobler A, Abdool Karim SS. (2014) Adherence in the CAPRISA 004 tenofovir gel microbicide trial. AIDS and Behavior 18(5):811-819. [Available at: https://doi.org/10.1007/s10461-014-0751-x]

Mansoor LE, Abdool Karim Q, Werner L, Madlala B, Ngcobo N, Cornman DH, Amico KR, Fisher J, Fisher WA, MacQueen KM, Abdool Karim SS. (2014) Impact of an adherence intervention on the effectiveness of tenofovir gel in the CAPRISA 004 trial. AIDS and Behavior 18(5): 841-848. [Available at: https://doi.org/10.100/s10461-014-0752-9]

Crockett K, O’Shea J, Buckingham F, MacQueen K, Chen M, Simpson K. (2013) FATHOMing out interdisciplinary research transfer. 2013 Institute of Electrical and Electronics Engineers (IEEE) Symposium Series on Computational Intelligence (SSCI), Singapore, Conference Proceedings, pp 84-90. [Available at: https://doi.org/10.1109/CIES.2013.6611733]

Woodsong C; MacQueen K; Amico R; Friedland B; Gafos M; Mansoor L; Tolley E; McCormack S. (2013) Microbicide clinical trial adherence: insights for introduction. Journal of the International AIDS Society 16:18505. [Available at: https://doi.org/10.7448/IAS.16.1.18505]

MacQueen KM. (2011) Framing the social in biomedical HIV prevention trials : a 20-year retrospective. Journal of the International AIDS Society 14(Suppl 2):S3. [Available at: https://doi.org/10.1186/1758-2652-14-S2-S3]

Mack N, Robinson ET, MacQueen KM, Moffett J, Johnson LM. (2010) The exploitation of “exploitation” in the tenofovir PrEP trial in Cameroon: lessons learned from media coverage of an HIV prevention trial. Journal of Empirical Research on Human Research Ethics 5(2):3-19. [Available at: https://doi.org/10.1525/jer.2010.5.2.3]

Guest GG, Shattuck D, Johnson L, Akumatey B, Clarke EEK, Chen P-L, MacQueen KM. (2010) Acceptability of PrEP for HIV prevention among women at high risk for HIV. Journal of Women’s Health 19(4):1-8. [Available at: https://doi.org/10.1089/jwh.2009.1576]

MacQueen KM, McLoughlin K, Alleman P, Burke HM, Mack N. (2008) Partnering for care in HIV prevention trials. Journal of Empirical Research on Human Research Ethics 3(4):5-18. [Available at: https://doi.org/10.1525/jer.2008.3.4.5]

Guest GG, Shattuck D, Johnson L, Akumatey B, Clarke EEK, Chen P-L, MacQueen KM. (2008) Changes in sexual risk behavior among participants in a PrEP HIV prevention trial. STD 35(12):1002-8. [Available at: https://www.ncbi.nlm.nih.gov/pubmed/19051397]

Karp DR, Carlin S, Cook-Deegan R, Ford DE, Geller G, Glass DN, Greely H, Guthridge, Kahn J, Kaslow R, Kraft C, MacQueen K, Malin B, Scheuerman RH, Sugarman J. (2008) Ethical and practical issues associated with aggregating databases. PLoS Medicine 5(9):e190. [Available at: https://doi.org/10.1371/journal.pmed.0050190]

MacQueen KM, Alleman P. (2008) International perspectives on the collection, storage, and testing of human biospecimens in HIV research. IRB Ethics & Human Research 30(4):9-14. [Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4413897/]

MacQueen KM, Johnson L, Alleman P, Akumatey B, Lawoyin T, Nyiama T. (2007) Pregnancy prevention practices among women with multiple partners in a HIV prevention trial. JAIDS 46(1):32-38. [Available at: https://doi.org/10.1097/QAI.0b013e31813e5fa5]

MacQueen KM, Namey E, Chilongozi DA, Mtweve SP, Mlingo M, Morar N, Reid C, Ristow A, Sahay S, HPTN 035 Standard of Care Assessment Team. (2007) Community perspectives on care options for HIV prevention trial participants. AIDS Care Journal 19(4):554-560. [Available at: https://doi.org/10.1080/09540120601035284]

MacQueen KM, Abdool Karim Q. (2007) Adolescents and HIV clinical trials: ethics, culture, and context. The Journal of the Association of Nurses in AIDS Care (JANAC) 18(2):78-82. [Available at: https://doi.org/10.1016/j.jana.2007.01.002]

Kegeles SM, Johnson MO, Strauss RP, Ralston B, Hays RB, Metzger DS, McLellan-Lemal E, MacQueen KM. (2006) How should HIV vaccine efficacy trials be conducted? Diverse U.S. communities speak out. AIDS Education and Prevention 18(6):560-572. [Available at: https://doi.org/10.1521/aeap.2006.18.6.560]

Woodsong C, MacQueen KM, Namey E, Sahay S, Mlingo M, Morrar N, Mehendele S. (2006) Women’s autonomy and informed consent in international microbicide clinical trials. Journal of Empirical Research on Human Research Ethics (JERHRE) 1(3):11-26. [Available at: https://doi.org/10.1525/jer.2006.1.3.11]

Grant RM, Buchbinder S, Cates W Jr,, Clarke E, Coates T, Cohen MS, Delaney M, Flores G, Goicochea P, Gonsalves G, Harrington M, Lama J, MacQueen KM, Moore JP, Peterson L, Sanchez J, Thompson M, Wainberg MA. (2005) Promote HIV chemoprophylaxis research, don’t prevent it. Science 309:2170-1. [Available at: https://doi.org/10.1126/science.1116204]

MacQueen KM, Cates W Jr. (2005) The multiple layers of prevention-science research. American Journal of Preventive Medicine 28(5):491-5. [Available at: https://doi.org/10.1016/j.amepre.2005.02.020]

Vanable PA, McKirnan DJ, Buchbinder SP, Bartholow BN, Douglas JM, Judson FN, MacQueen KM. (2004) Alcohol use and high-risk sexual behavior among men who have sex with men: the effects of consumption level and partner type. Health Psychology 23(5):525-532. [Available at: https://doi.org/10.1037/0278-6133.23.5.525]

MacQueen KM, Buehler JW. (2004) Ethics, practice, and research in public health: a case-based review. AJPH 94(6):929-932. [Available at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1448365/]

MacQueen KM, Shapiro K, Abdool Karim Q, Sugarman J. (2004) Ethical challenges in international HIV prevention research. Accountability in Research 11:49-61. [Available at: https://doi.org/10.1080/08989620490280230]

MacQueen KM, Abdool Karim Q, Sugarman J on behalf of the HPTN Ethics Working Group. (2003) Ethics guidance for HIV prevention trials. BMJ 327:340. [Available at: https://doi.org/10.1136/bmj.327.7410.340]

MacQueen KM, Sugarman J. (2003) Back to the rough ground: working in international HIV prevention research as ethical debates continue. IRB: Ethics and Human Research 25(2):11-13. [Available at: https://www.ncbi.nlm.nih.gov/pubmed/12833902]

McLellan E, MacQueen KM, Niedig J. (2003) Beyond the qualitative interview: data preparation and transcription. Field Methods 15(1):63-84. [Available at: https://doi.org/10.1177/1525822X02239573]

MacQueen KM, McLellan E, Metzger DS, Kegeles S, Strauss RP, Scotti R, Blanchard L, Trotter RT. (2001) What is community? An evidence-based definition for participatory public health. AJPH 91:1929-1938. [Available at: https://doi.org/10.2105/AJPH.91.12.1929]

Strauss RP, Sengupta S, Kegeles S, McLellan E, Metzger D, Eyre S, Khanani F, Emrick CB, MacQueen KM. (2001) Willingness to volunteer in future preventive HIV vaccine trials: Issues and perspectives from three U.S. communities. JAIDS 26:63-71. [Available at: https://doi.org/10.1016%2Fj.ypmed.2006.12.007]

MacQueen KM, Vanishseni S, Kitayaporn D, Lin LS, Buavirat A, Naiwatanakul T, Raktham S, Mock P, Heyward WL, Des Jarlais DC, Choopanya K, Mastro T. (1999) Willingness of injection drug users to participate in an HIV vaccine efficacy trial in Bangkok, Thailand. JAIDS 21:243-251. [Available at: https://doi.org/10.1097/00126334-199907010-00010]

MacQueen KM, Milstein B. (1999) A systems approach to qualitative data management and analysis. Field Methods 11:27-39. [Available at: https://doi.org/10.1177%2F1525822X9901100103]

Scheer S, Douglas JM, Vittinghoff E, Bartholow BN, McKirnan D, Judson FN, MacQueen KM, Buchbinder S. (1999) The feasibility and suitability of targeting young gay men for HIV vaccine trials. J AIDS & Human Retrovirology 20:172-178. [Available at: https://doi.org/10.1097/00042560-199902010-00010]

Vittinghoff E, Buchbinder SP, Douglas J, Judson F, McKirnan D, MacQueen KM. (1999) Per-contact risk of HIV transmission between male sexual partners: results from the CDC Collaborative HIV Seroincidence Study. American Journal of Epidemiology 150:306-311. [Available at: https://www.ncbi.nlm.nih.gov/pubmed/10430236]

Heyward WL, MacQueen KM, Goldenthal KL. (1998) HIV vaccine development and evaluation: realistic expectations. AIDS Research and Human Retroviruses 14(Suppl 3):S-205--S-210. [Available at: https://www.ncbi.nlm.nih.gov/pubmed/9814945]

MacQueen KM, McLellan E, Kay K, Milstein B. (1998) Codebook development for team-based qualitative analysis. Cultural Anthropology Methods 10(2):31-36. [Available at: https://doi.org/10.1177%2F1525822X980100020301]

Bartholow BN, MacQueen KM, McKirnan DJ, Buchbinder S, Judson F. (1997) The dynamic decision to participate in HIV vaccine efficacy trials: an assessment of willingness among homosexual and bisexual men at-risk of HIV infection. AIDS Research and Human Retroviruses 16:108-115. [Available at: https://dx.doi.org/10.1016%2Fj.vaccine.2013.08.080]

Heyward WL, MacQueen KM, Jaffe HW. (1997) Obstacles and progress toward development of a preventive HIV vaccine. Journal of the International Association of Physicians in AIDS Care 3(8):28-34. [Available at: https://www.ncbi.nlm.nih.gov/pubmed/11364630]

MacQueen KM, Nopkesorn T, Sweat MD, Sawaengdee Y, Mastro TD, Weniger BG. (1996) Alcohol consumption, brothel attendance, and condom use: normative expectations among Thai military conscripts. Medical Anthropology Quarterly 10(3):402-423. [Available at: https://www.jstor.org/stable/649131]

MacQueen KM, S Buchbinder, J Douglas, F Judson, DJ McKirnan, B Bartholow. (1996) Required HIV antibody testing, social risk, and HIV vaccine efficacy trials. AIDS and Public Policy Journal 11(2):87-95.

Hennessy M, MacQueen KM, McKirnan DJ, Buchbinder S, Judson F, Douglas J, Bartholow B, Sheon A. (1996) A factorial survey study to assess the acceptability of HIV vaccine trial designs. Controlled Clinical Trials 17(3):209 220. [Available at: https://doi.org/10.1016/0197-2456(95)00155-7]

Buchbinder S, Judson F, McKirnan D, Bartholow B, Douglas J, Katz M, MacQueen KM. (1996) Feasibility of human immunodeficiency virus vaccine trials in homosexual men in the U.S.: risk behavior, seroincidence and willingness to participate. Journal of Infectious Diseases 174:954-61. [Available at: https://www.jstor.org/stable/30129640]

Hennessy M, MacQueen KM, Seals B. (1995) Using factorial surveys for designing intervention programs. Evaluation Review 19(3):294-312. [Available at: https://doi.org/10.1177%2F0193841X9501900304]

Sweat MD, Nopkesorn T, Mastro TD, Sangkharomya S, MacQueen K, Pokapanichwong W, Swawengdee Y, Weniger BG. (1995) AIDS awareness among a cohort of young Thai men: exposure to information, level of knowledge, and perception of risk. AIDS Care 7(5):573-591. [Available at: https://doi.org/10.1080/09540129550126236]

MacQueen KM. (1994) The epidemiology of HIV transmission: trends, structure and dynamics. Annual Review of Anthropology 23:509-26. [Available at: https://www.jstor.org/stable/2156024]

MacQueen KM, Buchbinder S, Douglas JM, Judson FN, McKirnan DJ, Bartholow B. (1994) The decision to enroll in HIV vaccine efficacy trials: concerns elicited from gay men at increased risk for HIV infection. AIDS Research and Human Retroviruses 10(suppl 2):s261-s264.

MacQueen KM, Leslie PW. (1984) Patterns of supplementation, nursing behavior, and lactation: a simulation analysis. Medical Anthropology 8:274 291.