This page is live and content is subject to change without notice. This page presents a selection of resources focused on meeting the health needs of people who have a Learning/Intellectual Disability.

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Essential reference texts

All about Learning Disability - overview from Mencap.

Learning Disability and Autism NHS England resource

American Psychiatric Association (2013) DSM-5 Diagnostic and statistical manual of mental disorders. London : American Psychiatric Publishing

DH (2001) Valuing people: a new strategy for learning disability for the 21st century: a white paper: presented to Parliament by the Secretary of State for Health by command of Her Majesty, March 2001

DH (2009) Valuing people Now: A New Three-Year Strategy for People with Learning Disabilities (Archived content)

HC (2008) A Life Like Any Other? Human Rights of Adults with Learning Disabilities. HL Paper 40-I, HC 71-I. London: TSO

Mansell, J (2010) Raising our Sights: services for adults with profound intellectual and multiple disabilities (Archived content)

Raising our Sights: How to guides (2013)

Disability Unit (Cabinet Office, UK Government)

Royal College of Psychiatrists (2001) DC-LD: Diagnostic criteria for psychiatric disorders for use with adults with learning disabilities/mental retardation. London : Gaskell.

W.H.O. (2018) International Classification of Diseases 11th Revision (ICD-11) . World Health Organisation, Geneva.

Selected texts

These texts provide a solid overview of current practice, there are ideal reference readers. Direct links provided to library catalogue.

Atherton, H and Crickmore, D (2011) (Eds) Learning Disabilities Towards Inclusion, 6th Edition. Edinburgh: Churchill Livingstone. (ISBN: 9780702051876. https://www.uk.elsevierhealth.com/learning-disabilities-9780702051876.html)

Bowness, B. (2014) Improving general hospital care of patients who have a learning disability. Cardiff: 1000 Lives Improvement/ NHS Wales.

Dalby, D and Knifton, C (2012) Learning disability nurse survival guide: common questions and answers for learning disability nursing. London : Quay Books

Gates, B and Barr, O. (2009) Oxford handbook of learning and intellectual disability nursing. Oxford. Open University Press.

Heslop, P. et.al. (2010) CIPOLD (Confidential Inquiry into Premature Deaths of People with Learning Disabilities). Bristol: Norah Fry Research Centre.

Learning Disabilities Mortality Review (LeDeR)

Lindsay, P (2010) (Ed.) Care of the Adult with Intellectual Disability in Primary Care. London : Radcliffe.

Gates, B; Fearns D and Welch J. (Eds.) (2015) Learning Disability Nursing at a Glance. Chichester, West Sussex : John Wiley & Sons Inc.

Gates, B and Mafuba, K (2015) Learning disability nursing : modern day practice. Boca Raton : CRC Press, Taylor & Francis Group.

Gilbert, P (2000 ) A-Z of syndromes and inherited disorders: a manual for health, social and education workers, 3rd Edition. Cheltenham : Thornes.

Glen, S and Moule, P (2006) E-Learning in Nursing. Basingstoke : Palgrave Macmillan. NHS Midlands and East (2012) Top Tips for supporting and meeting the needs of people with Profound and Multiple Learning Disabilities (PMLD). London: East Midlands Strategic Health Authority.

Moulster, G; Iorizzo, J; Ames, S and Kernohan, J. (Eds.) (2019). The Moulster and Griffiths learning disability nursing model : a framework for practice. London: Jessica Kingsley Publishers.

Pawlyn, J and Carnaby S (2009) Eds. Profound intellectual and multiple disabilities : nursing complex needs. Oxford : Wiley-Blackwell.

Raghavan, R and Patel, P (2005) Learning disabilities and mental health: a nursing perspective. Oxford : Blackwell.

Raghavan, R; Bernard, SH and and McCarthy, J (2010) (Eds) Mental health needs of children and young people with learning disabilities. Brighton : Pavilion.

Rapley, M (2004) The social construction of intellectual disability. Cambridge : Cambridge University Press.

Royal College of Nursing (2017) The Needs of People with Learning Disabilities: What pre-registration students should know. London: RCN.

Williams, V (2013) Learning Disability Policy and Practice: Changing Lives? Basingstoke: Palgrave Macmillan.

Resource collections

A2A Network - collection of resources focussed on improving "... the patient experience for people with learning disability within the acute hospital setting".

A Picture of Health - collection of resources from South West NHS focussed on Making Health Information Easier. Better Health Group (Better Lives) home page for the Leicestershire and Rutland ‘Better Health Group’and links to the Learning Disability Health Facilitation Nursing Team and Learning Disability Acute Liaison Nursing Team.

Books Beyond Words - tell stories in pictures to help people with learning and communication difficulties explore and understand their own experiences.

British Institute of Learning Disabilities (BILD) Useful resources, BILD Factsheets.

Change free resource collection Easy Health, Resource collection of easy read resources collated and maintained by Mencap and Generate (Charities).

GMC resource portal - Learning Disabilities

Health Improvement Scotland - Getting it right together: Learning how to confidently meet the healthcare needs of people with learning disabilities. (on-line learning resource)

Health resources from the Foundation for people with learning disabilities.

Hearing and Learning Disabilities (HaLD) - hald.org.uk

Historic England - A History of Disability: from 1050 to the Present Day

Leicester Partnership NHS Trust 'Easy Read' collection.

Leicestershire Partnership NHS Trust - Learning Disability Community Service Patient Pathways

Legislation and papers from Parliament - visit Official Documents [Browse Documents by Subject - search term 'Learning Disabilities' ]

Mencap - Resource collection aimed at health and social care professionals.

NDTi - National Development Team for Inclusion - Learning Disability resources.

NHS England - Reasonable Adjustments

Open University (OU) Timeline of learning disability history .

Patient.co.uk - Accessible Leaflets a collated page linking to sites which contain accessible health information.

PMLD resource collection (developed from the previous PMLD Network resource collection. Resources collated by the PMLD Link Journal team. A group of people committed to improving the lives of people with Profound and Multiple Learning Disabilities.

RCGP - Health checks for people with learning disabilities toolkit

Royal College of Nursing - Learning Disability Subject Guide

RNIB Learning Disability Services - Information about the services available from the RNIB

SeeAbility - Resources on eye care and sight loss for people who have sight loss and other disabilities, including learning and physical disabilities, mental health difficulties, acquired brain injury and life limiting conditions.

SONET University of Nottingham collection or eLearning activities for Learning Disabilities.

Understanding Intellectual Disability and Health - Intellectualdisability.info

Resource Lists

Sexual health needs for people with a learning disability – view resource list

Selected resources

Communication Plan for Adults with Learning Disabilities for Leicester, Leicestershire and Rutland (2011). "If You Listen, You Will Hear Us" - Guidelines on Involving People with Profound and Multiple Learning Disabilities in Planning and Commissioning Services - Available to download from the Leicester Partnership NHS Trust 'Easy Read' collection.

Disability Distress Assessment Tool (DisDAT) is a tool for identifying distress in people with severe communication difficulties.

Harper. K, and Bell. S, (2006) A pain assessment tool for patients with limited communication ability. Nursing Standard. 20(51), pp. 40-44. Read More: http://journals.rcni.com/doi/abs/10.7748/ns2006.08.20.51.40.c4489

Guidance on the role of the practice nurse and GP undertaking health checks.

Houghton, M (2010) A Step by Step Guide for GP Practices: Annual Health Checks for People with a Learning Disability. London: Royal College of General Practitioners.

Jenny's Diary a resource to support conversations about dementia with people who have a learning (intellectual) disability.

My Next Patient Has a Learning Disability - Toolkit to support people who have a learning disability.

Paediatric Pain Profile (PPP) is a behaviour rating scale for assessing pain in children with severe physical and learning impairments.

SmartHouse ™ This site presents a virtual walk through of the HFT SmartHouse. The house is equipped with assistive technologies which people of all ages can experience in situ. It can assist with assessment and product selection.

Journals

British journal of learning disabilities.

Insights on learning disabilities

Intellectual and developmental disabilities

Journal of applied research in intellectual disabilities

Journal of intellectual & developmental disability

Journal of Intellectual Disability Research

Journal of intellectual disability research supplement

Journal of learning disabilities

Journal of policy and practice in intellectual disabilities

Learning disabilities

Learning disabilities focus

Learning disabilities research

Learning disabilities research and practice

Learning disability practice

Learning disability quarterly

Learning Disability Today

Mental health & learning disabilities care

Tizard learning disability review

Library search terms

Learning Disability, Learning Disabilities, Intellectual Disabilities, Intellectual Disability,

Other terms which can be used in your search include, Developmental disability, Developmental delay, Cognitive Impairment.

The terms Mental Retardation and Mental Handicap will usually locate historical publications. International terminology may also provide relevant resources i.e. Psychopaedic nurse (New Zealand). Developmental Disabilities/ Intellectual Disabilities (Australia, USA).

Global library

Search the global library from your browser - http://www.worldcat.org/ (WorldCat is the world's largest network of library content and services.

Based in the USA WorldCat libraries are dedicated to providing access to their resources on the Web, where most people start their search for information.)