Help your loved one to understand the importance of life-long medical treatment

Written instructions may be beneficial for your loved one to understand

Understand when to call the healthcare provider when symptoms change

Routine medical appointments are necessary

Help your loved one be aware of their physical tolerance

Assist loved one with avoiding constipation: know what works best for them or what the healthcare team may have prescribed

Prevent skin breakdown by having your loved one change positions frequently

It is important to try and avoid infections, and consult the healthcare team if an infection is suspected