This site is a crowd-sourced collection of feedback on patient engagement. It started as a Google Sheet but quickly became unwieldy with the amount of content that came in through several Twitter threads, starting with #HowNotToDoPtEngagement, and then migrating to #HowToDoPtEngagement. To date, it represents the insights from 83 unique patient partners and advocate organizations from within and outside Canada. I am deeply indebted to them sharing their thoughts, and for continuing this work.
Last edited: Tuesday, February 26, 2019 by @brynphd
A special acknowledgement to @couragesings for starting these two important threads and for sharing numerous resources to facilitate good patient engagement in clinical care and research. In reviewing these comments, please remember their words: "Know there isn’t a cookie cutter formula for engaging #pts. Always ask your #pt partners what works best for them."
This is meant to be a public, open source of information from and for those working in improving healthcare via engaging patients, families and caregivers.
It is not mine - it is yours. So, if you have content to share on this site, or if you have suggestions to make it more user-friendly - please, do get in touch via DM or email.