One of the most important things you can do to help your child is to learn as much as you can about EDS, the type your child has and how severely he or she has it. This will help you determine the best way you can enable your child to live a full and happy life. It is wise to share your knowledge with family, friends, babysitters etc as well as with your child (at his/her level of understanding) so that he/she knows what limitations apply and how to help in case of injury.
Ehlers-Danlos syndrome does not cause learning difficulties. However, in certain circumstances, these may occur. For instance some children with EDS are born prematurely and these children may experience the same delays that can affect any other premature baby. Equally children who have to spend periods of time at home or in hospital when he/she should be at school, may require extra tuition to help them catch up with their peers.
Happy Baby Elmler
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