I am a patient advocate for cystic fibrosis, which I was diagnosed with as an infant. In December of 2020 I started Trikafta, a medicine which has finally allowed me to picture a future. I advocate to improve treatments and ultimately for a cure for people with CF. I also advocate for educational and vocational supports for people with cystic fibrosis, especially as they have new found life with new medical advancements. #untilitsdone
I am a patient advocate for cystic fibrosis, which I was diagnosed with as an infant. In December of 2020 I started Trikafta, a medicine which has finally allowed me to picture a future. I advocate to improve treatments and ultimately for a cure for people with CF. I also advocate for educational and vocational supports for people with cystic fibrosis, especially as they have new found life with new medical advancements. #untilitsdone
Advocacy Work
Advocacy Work
Cystic Fibrosis Foundation, Metro DC
Cystic Fibrosis Foundation, Metro DC
Metro DC Chapter Ambassador, 2021
VA-8 District Advocacy Captain, 2019-Present
Cystic Fibrosis Foundation, National Offices
Cystic Fibrosis Foundation, National Offices
Teen Peer Support Group Facilitator
"Day of Action" Ambassador, February 2020.
CF Foundation Online Conferences
2019 FamilyCon: Tips and Tricks from the Adult CF Panel, Panelist
2018 MiniCon: Transplant Planning Workgroup and Session Facilitator
2018 MiniCon: Sexual and Reproductive Health, Session Facilitator
2017 MiniCon: Transplant, Session Facilitator