I am a patient advocate for cystic fibrosis, which I was diagnosed with as an infant. In December of 2020 I started Trikafta, a medicine which has finally allowed me to picture a future. I advocate to improve treatments and ultimately for a cure for people with CF. I also advocate for educational and vocational supports for people with cystic fibrosis, especially as they have new found life with new medical advancements. #untilitsdone
I am a patient advocate for cystic fibrosis, which I was diagnosed with as an infant. In December of 2020 I started Trikafta, a medicine which has finally allowed me to picture a future. I advocate to improve treatments and ultimately for a cure for people with CF. I also advocate for educational and vocational supports for people with cystic fibrosis, especially as they have new found life with new medical advancements. #untilitsdone