Embedded Files
This is the day the Lord has made.
We will rejoice and be glad in it. -- Psalm 118:24
Monday, May 2, 2022
(God's got this little girl in His hands.)
Tuesday, May 3, 2022
(Diagnosis Dx Day -Â
Going home this evening!)
Wednesday, May 4, 2022
(First day back home)
Thursday, May 5, 2022
(Build-A-Bear Workshop)
Friday, May 6, 2022
(Hanging Out at Home, Prayers at LaMar's Donuts)
Saturday, May 7, 2022
(Photographer, Prayer at Church, Meeting the Sorensons)
Sunday, May 8, 2022
(Mother's Day, Flying to Memphis, TN)
Monday, May 9, 2022
(First full day at St. Jude's Children's Research Hospital)
Tuesday, May 10, 2022
(MRI #2)
Wednesday, May 11, 2022
(OT/PT)
Thursday, May 12, 2022
(Keep the faith)
Friday, May 13, 2022
(Radiology CT/MRI)
Saturday, May 14, 2022
(Sissy Elizabeth's 18th Birthday)
Monday, May 16, 2022
(Biopsy and Port Placement surgeries)
Monday, May 17, 2022
**DIPG/DMG Awareness Day**
(Discharged from LeBonheur Children's Hospital)
May 23-26, 2022
(Radiation Trial Run and Treatment Days #1-4)
May 30 - June 1, 2022
(Radiation Treatment Days #5-6)
June 2-3, 2022
(Radiation Treatment Days #7-8)
June 6-7, 2022
(Radiation Treatment Days #9-10)
June 8-9, 2022
(Radiation Treatment Days #11-12)
Friday, June 10, 2022
(Radiation Treatment Day #13)
June 11-13, 2022
(Radiation Treatment Day #14)
June 14-15, 2022
(Radiation Treatment Day #15-16)
June 16, 2022
(Radiation Treatment Day #17)
June 17-19, 2022
(Radiation Treatment Day #18)
June 20-21, 2022
(Radiation Treatment Day #19)
June 22, 2022
(Radiation Treatment Day #20)
June 23, 2022
(Radiation Treatment Day #21 - Josiah's 1st birthday)
June 24, 2022
(Radiation Treatment Day #22)
June 25, 2022
(Saturday at the RMHouse)
June 26, 2022
(Josiah's 1st birthday party with keto cake and ice cream!)
June 27, 2022
(Radiation Treatment Day #23)
June 28, 2022
(Radiation Treatment Day #24)
June 29, 2022
(Radiation Treatment Day #25)
June 30, 2022
(Radiation Treatment Day #26)
July 1-2, 2022
(Radiation Treatment Day #27)
July 3-4, 2022
(Mommy and Daddy's 19th wedding anniversary)
July 5, 2022
(Radiation Treatment Day #28)
July 6, 2022
(Radiation Treatment Day #29)
July 7, 2022
(Radiation Treatment Day #30 - LAST DAY)
July 8, 2022
(Reunion with Daddy and Bubba James!)
July 9, 2022
(First day on the road back home to Omaha - and dinner at Lambert's "Home of the Tossed Rolls")
July 10, 2022
(HOME!)
July 12, 2022
(It's relaxing to be home)
July 12, 2022
(Brother Jordan trying out Esther's armor)
July 14, 2022
(Happy 65th Birthday, Papa!)
July 15, 2022
(Family Picture Day!)
July 16, 2022
(Carter Lake Family Swim Day!)
July 17, 2022
(BAPTISM DAY!)
July 18, 2022
(Happy 10th Birthday, Evelyn!)
July 19, 2022
(Strategic Air and Space Museum)
July 22, 2022
(Stay at Home Day)
July 23, 2022
(Birthday Party at Carter Lake for sisters Evelyn and Emma Grace)
July 24, 2022
(Just a lazy day at home)
July 25, 2022
(Big Dreams Tour brainstorming for "Collect All the Kittens" instagram game; Mahoney State Park Activity Center)
July 26, 2022
(I think we forgot to use our cameras today!)
July 27, 2022
(Not much happening today either - good!)
July 28, 2022
(Make A Wish send-off lunch and gifts!)
July 29, 2022
(Regular physical checkups, Playground, luggage shopping with Daddy)
July 30, 2022
("Esther's Olympics" at Sokol Gymnastics)
July 31, 2022
(Esther at her lowest weight - 29 lbs - antibiotic septra making her sick everyday :( )
August 1, 2022
(Joshua and Jordan's regular physical checkups)
August 2, 2022
(Physical therapy and hanging out at home!)
August 3, 2022
(Love hanging out at home before Make A Wish trip!)
August 4, 2022
(Speech/Language Therapy; nice weather out!)
August 5, 2022
(Playground weather!)
August 6, 2022
(Happy 12th Birthday, Emma Grace!)
August 7, 2022
(Make A Wish - Disney World here we come! (with 2 flights delayed 2 hours each!)
August 8, 2022
(Disney World - Magic Kingdom)
August 9, 2022
(Sea World - rare black pearl for Esther, a rare special girl)
August 10, 2022
(Disney World - Hollywood Studios, Epcot, Magic Kingdom; Esther lost her first tooth at Disney World!)
*Esther receives phone call that she could be first patient to begin the Clinical Trial in DC!
August 11, 2022
(Littles and Mom stay at Give Kids the World Village for the day; Biggies and Dad go to Universal Studios)
August 12, 2022
(Esther and Mom to DC - siblings and Dad back to Omaha)
MRI shows too much swelling for treatment on Wednesday - back on steroids
August 13, 2022
(Saturday settling into the Ronald McDonald House for a weekend before following up on MRI on Monday)
August 14, 2022
(Josiah's Baby Dedication at Lifegate Church, minus Mommy)
August 15, 2022
(Follow-up on MRI, going to wait for St. Jude follow-up MRI on the 24th)
August 16, 2022
(Play day at the RMH)
August 17, 2022
(Magic Moment photos from Disney World)
August 18, 2022
(Walking to the grocery store, steroid "food baby," flowers and butterflies)
August 19, 2022
(Catalina Crunch brand cereal and cookies - God sent these!)
August 20, 2022
(Gum Ball Machines are the Best!)
August 21, 2022
(Esther lost her second tooth!)
August 22, 2022
(Last day at the Ronald McDonald House in Washington, DC - traveling from Washington, DC to St. Jude in Memphis, TN)
August 23, 2022
(First day back at St. Jude for follow-up appointments - Jordan had his blood draw for allergy testing)
August 24, 2022
(MRI Day!)
August 25, 2022
(**Clinical Trial Acceptance Day!!!)
August 26, 2022
(Last day of follow-up appointments at St. Jude)
August 27, 2022
(Flying back to DC for brand new Clinical Trial!)
August 28, 2022
(Daddy made it to DC!)
August 29, 2022
(Treatment #1 Preliminary MRI)
August 30, 2022
(Treatment #1 Preliminary Clinic and Labs - drink that almond milk and eat those bananas! - Last day with Rapunzel hair for a while)
August 31, 2022
(**SONALASENSE SONODYNAMIC THERAPY TREATMENT #1**)
September 1, 2022
**1st Day of Childhood Cancer Awareness Month**
(**SONALASENSE SONODYNAMIC THERAPY TREATMENT #1 - Day in the PICU; Post-MRI)
September 2, 2022
(Last day with Daddy for a while)
September 3, 2022
(GO GOLD in September for Childhood Cancer Awareness Month)
September 4, 2022
(Out for Church and Pizza Lunch)
September 5, 2022
(Keto Blueberry muffins, FaceTime with Daddy)
September 6, 2022
(Hanging out around the Ronald McDonald House)
September 7, 2022
(First weekly clinic/lab treatment follow-up)
September 8, 2022
(Smithsonian Natural History Museum with Mommy's longest childhood friend, Niyati)
September 9, 2022
(Last day in DC for a week off at home!)
September 10, 2022
(Welcome Home Week!)
September 11, 2022
(Church, Shopping, Massages!)
September 12, 2022
(Go Gold in September for Childhood Cancer Awareness Month)
September 13, 2022
(PT, Clinic/Labs, Chiropractor)
September 14, 2022
(Esther's dentist appointment, James' x-ray, Chick-Fil-A)
September 15, 2022
(First visit to New Heart Christian School for Kindergarten year)
September 16, 2022
(Occupational Therapy, covid test for RMH, Omaha Children's Museum)
September 17, 2022
(Packing day, trial dance class, nails with Sissy)
September 18, 2022
(Back to DC we go!)
(Hotel tonight because Esther has her covid test results, but Mommy's haven't come, so we can't stay at the Ronald McDonald House)
September 19, 2022
(Moving from Homewood Suites to the Ronald McDonald House)
September 20, 2022
(Clinic Visit)
September 21, 2022
(CureFest Day #1 - Golden Toast)
September 22, 2022
(CureFest Day #2 - Congressional Childhood Cancer Caucus at the Capitol Building Visitors' Center)
September 23, 2022
(CureFest Day #3 - Brainstorm Summit Day 1 at National Press Club; CureFest Family Welcome Party at Freedom Plaza)
September 24, 2022
(CureFest Day #4 - Brainstorm Summit Day 2; Pots of Gold; CureFest Festival)
September 25, 2022
(CureFest Day #5 - Speakers, Performers, Bereaved Families Walk; Lunch/Dinner with new friends)
September 26, 2022
(Day at the RMH, Pizza dinner and groceries at Giant)
September 27, 2022
(Weekly Clinic visit with first time in the Art Room; Daddy Arrives!)
September 28, 2022
(1st Treatment Post-MRI/2nd Treatment Pre-MRI)
September 29, 2022
(Day in DC with Daddy)
September 30, 2022
(Pre-Treatment Labs again; Hotel Sleepover, Fairfax, VA)
October 1, 2022
(Brunch with Matteo Runs; Luv2Play at Fair Oaks Mall)
October 2, 2022
(Day of Rest before 2nd Sonalasense Treatment)
October 3, 2022
(**SONALASENSE 2nd Treatment**)
October 4, 2022
(Post-MRI 2nd Treatment; Day in PICU)
October 5, 2022
(Day of Rest, Out of the Lights)
October 6, 2022
(Daddy flies back to Omaha, NE)
October 7, 2022
(American Girl store with LeAnna from Our Amazing Fighters Foundation)
October 8, 2022
(Day with Niyati, Mommy's friend from childhood, at Fair Oaks Mall)
October 9, 2022
(Big Brother James arrives!)
October 10, 2022
(Sonodynamic Therapy 2nd treatment Clinic Follow-up - Cleared to go home for 3 weeks!)
October 11, 2022
(Arlington National Cemetery, US Marine Corps Memorial, Pentagon City shopping center)
October 12, 2022
(Homeward Bound!!)
October 13, 2022
(Moving back into the house)
October 14, 2022
(Allergy Testing and 1st Trip to the YMCA pool)
October 15, 2022
(Evelyn and Emma Grace's True Girl Pajama Party Tour)
October 16, 2022
(Esther's 6th Birthday Party at Vala's Pumpkin Patch!!!)
October 17, 2022
(Physical Therapy, Orthotist, 1st Ballet & Tap Class at MLDC!!)
October 18, 2022
(OT, Speech, Chiropractor, Clinic/Labs, professionally cleaned and organized girls' room!)
October 19, 2022
(Big Dreams Tour "Kitten Rescue" comes to life with Mr. James Orrigo in downtown Omaha for Queen Esther)
October 20, 2022
(PT, Chiropractor)
October 21, 2022
(Road trip to Wamego, KS to visit Lisa and Roger Ward from Tough2Gether)
October 22, 2022
(Hair and Nails, Gymnastics, and the "Love, Chloe Foundation" Gala)
October 23, 2022
(Back on the road to Omaha, NE)
October 24, 2022
HAPPY 6th BIRTHDAY, ESTHER!!!!!!
(PT, Dance)
October 25, 2022
(OT, Speech, Chiropractor, Kris Kildosher healing service...leave DIPG/DMG behind!)
October 26, 2022
(Happy Kitten Day!)
October 27, 2022
(Pool PT, Chiropractor)
October 28, 2022
(Joshua and Esther = Birthday Buddies' Day at Vala's Pumpkin Patch; Elizabeth earned Employee of the Week!)
October 29, 2022
(Cousin's Birthday Party)
October 30, 2022
(Family Church Day)
October 31, 2022
(Halloween)
November 1, 2022
(Back to DC for follow-up MRI - found a hotel with a pool!)
November 2, 2022
(Post-SDT treatments MRI - no swimming after anesthesia)
November 3, 2022
(Best Hospital EVER - and Best MRI SO FAR)
November 4, 2022
(Short and sweet trip - back home already!)
November 5, 2022
(Esther's first hockey game for Joshua's 8th birthday - Birthday Buddies!)
November 6, 2022
(A couple of birthday gifts for the Birthday Buddies)
November 7, 2022
(Joshua's 8th Birthday!)
November 8, 2022
(Election Day, PT, Orthotist)
November 9, 2022
(Rest day for Esther, Cleaning out the kitchen for Mommy)
November 10, 2022
(Pool PT, Chiropractor, and KSU "Shave for the Brave" Night - Thank you!!)
November 11, 2022
(Thank you, Veterans! - PT and Speech)
November 12, 2022
(Omaha Children's Museum - Star Wars Weekend)
November 13, 2022
(Finally, a true stay-at-home Sabbath day)
November 14, 2022
(OT, Speech, and Raffle tickets at dance tonight!)
November 15, 2022
(Pool PT, Artifact Interview)
November 16, 2022
(New Homemade taco meat recipe!)
November 17, 2022
(OT, Speech, Chiropractor, Fresh blueberry muffins baked for breakfast tomorrow!)
November 18, 2022
(PT, Dance Team Showcase & Raffle Drawing, Fight Night for James, Birthday slumber party for Evelyn)
November 19, 2022
(First time ice skating for Joshua, Saturday evening Church)
November 20, 2022
(Daddy's weekend in MN for the Vikings Game - Daddy showed up, the Vikings did not)
November 21, 2022
(Daddy's back from MN, OT, Speech, Chiropractor, Dance)
November 22, 2022
(Pool PT)
November 23, 2022
(Preparation Day before Thanksgiving Day)
November 24, 2022
(Give Thanks to the Lord for He is Good!)
November 25, 2022
(Recovery day from cooking LOL)
November 26, 2022
(Mahoney State Park Activity Center)
November 27, 2022
(Mahoney State Park Activity Center)
November 28, 2022
(OT, Speech, Chiropractor, Dance)
November 29, 2022
(Weather Day!)
November 30, 2022
(Jordan's ENT; Esther's Port Flush)
December 1, 2022
(PT, Speech, Chiropractor)
December 2, 2022
(Stay at home day)
December 3, 2022
(Family Movie Day with Angels Among Us, UNO Hockey Game - Featuring Esther)
December 4, 2022
(Sunday rest day)
December 5, 2022
(Speech, OT, Chiropractor, Dance)
December 6, 2022
(Pool OT/PT, hang out at home in the afternoon)
December 7, 2022
(Playing with Princess Kitty, rest day off from appointments)
December 8, 2022
(PT, Speech, Chiropractor, Orthotist)
December 9, 2022
(Friday fun and movie night)
December 10, 2022
(Omaha Lancers Hockey game - featuring Esther as the Mini Sticks Co. Kid of the Game!)
December 11, 2022
(Sunday rest day)
December 12, 2022
(OT, Speech, Dance)
December 13, 2022
(Pool OT/PT)
December 14, 2022
(Day off from appointments)
December 15, 2022
(Snow Day!)
December 16, 2022
(Daddy and Joshua hockey game)
December 17, 2022
("Cinderella" at the Rose Theater courtesy of Omaha Children's Hospital)
December 18, 2022
(Girls' Trip to see "It's a Wonderful Life" on the big screen)
December 19, 2022
(OT, Speech, Chiropractor, couldn't get to dance on account of the snow)
December 20, 2022
(OT/PT - therapy pool was cold so we went swimming at the YMCA afterwards)
December 21, 2022
(Chiropractor a day early - snow expected tomorrow)
December 22, 2022
(Mommy Julie's phone died - Daddy Jim saved the day by bringing a new phone home in the freezing winter snowy weather)
December 23, 2022
(Santa's Rockin' Lights)
December 24, 2022
(Christmas Eve service at Lifegate Church; new pajamas at home)
December 25, 2022
(Merry Christmas from the Desrosiers!)
December 26, 2022
(Packing for family trip to DC!)
December 27, 2022
(Flights to DC are all canceled and cars are coming up short, too)
December 28, 2022
(Daddy, Mommy, and Esther are driving straight through to DC)
December 29, 2022
(SDT 3-month follow-up MRI, labs, clinic, and "The Nutcracker")
December 30, 2022
(Hotel day of rest Praise the Lord - Esther's fighting nausea, exhaustion, vomitting)
December 31, 2022
(Happy New Year's Eve - Mommy and Esther were able to fly back to Omaha, Daddy starts driving back with the rental car)
January 1, 2023
(Happy New Year!)
January 2, 2023
(Mahoney State Park Activity Center)
January 3, 2023
(Family "staycation" in place of DC)
January 4, 2023
(Hotel "staycation" day 2)
January 5, 2023
(Hotel "staycation" day 3)
January 6, 2023
(Heading home from our "staycation," new "Nutcracker" gifts)
January 7, 2023
(Relax at home while Mommy went to work at the coffee shop)
January 8, 2023
(Sunday School)
January 9, 2023
(Tried PT and Speech)
January 10, 2023
(Tried Pool PT and got sick)
January 11, 2023
(Rest day, let's get rid of this stomach bug once and for all)
January 12, 2023
(Feeling better - eating unsweetened applesauce and almond crackers)
January 13, 2023
(staying awake longer and eating keto cereal)
January 14, 2023
(Happy Birthday, Daddy!!)
January 15, 2023
(Playoff Sunday)
January 16, 2023
(Monday Rest Day)
January 17, 2023
(Pool OT & PT, Chiropractor - stomach hurt too much to lie down on the bed)
January 18, 2023
(Flying to St. Jude)
January 19, 2023
(Appointments)
January 20, 2023
(Second diagnosis day :(((((Â )
January 21, 2023
(Flying back to Omaha)
January 22, 2023
(Happy (not really) Birthday, Mommy :( and Happy 4th Birthday, Jordan)
January 23, 2023
(Esther enjoyed James' barista skills in her sugar-free hot chocolate)
January 24, 2023
(Day at Home)
January 25, 2023
(Esther was downstairs some of the day)
January 26, 2023
(Esther was sleepy today)
January 27, 2023
(Elizabeth gave Esther her new favorite little teddy bear)
January 28, 2023
("Try your best...Amen")
January 29, 2023
(Meet the Princesses!)
January 30, 2023
(Papa came to visit Esther)
January 31, 2023
(Esther likes having Communion every day)
February 1, 2023
(Esther drew a picture for her Sunday School teachers; She was prayed for and over at Church on Seek Night)
February 2, 2023
(Esther had a stiff sore day :( )
February 3, 2023
(Esther wanted to go to a movie today - "The Amazing Maurice" and have M&Ms)
February 4, 2023
(Esther went to another movie "Small Foot" with Sissy and Jordan)
February 5, 2023
(Last time Esther would go to Church this side of Heaven :(((Â )
February 6, 2023
(Esther went downstairs a little but was mostly tired)
February 7, 2023
(Esther used her tablet for the first time in a couple of weeks)
February 8, 2023
(Esther had a very sore neck and was very sleepy)
February 9, 2023
(Esther slept again today, hasn't been able to use the bathroom or pullup for a few days :((( Â )
February 10, 2023
(Esther was barely awake for a few bites of breakfast, then slept, hardly moving, all day)
February 11, 2023
(Mommy woke up at 2am to Esther having seizures - went to the nearest ER with 102.8* temp, was transferred to Children's PICU, and came home with transition care nurse for her last night at home :((((((((((((((((Â )
February 12, 2023
(Esther went back to Jesus at 11:45am in Mommy's arms at home surrounded by familyÂ
:(((((((((((((((((((((((((((( Â )Â
February 13, 2023
(First day at home without Esther :((((((( Â )
February 14, 2023
(Valentine's Day - spent 5.5 hours at the Funeral HomeÂ
:(((((((((((((( Â )
February 15, 2023
(International Childhood Cancer Day - planning Esther's Celebration of Life at Church - Mommy got peek-a-boo pink hair for Esther and donated her hair to Children with Hair Loss)
February 16, 2023
(Snow Day - Rest Day and Project Day for Esther's Celebration of Life)
February 17, 2023
(Shopping with Papa, Elizabeth's hair day)
February 18, 2023
(Ladies' nail salon day, Kids swimming with cousins and friends, Elizabeth's shopping day)
February 19, 2023
(Esther's Visitation 4:30-7:30pm)
February 20, 2023
(Esther's Celebration of Life, Bedside Service, and Celebration Luncheon)
Esther's Miracle Photo Album May to Sept. 2022
Esther's Miracle Photo Album Sept. to Dec. 2022
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