Colorado Rare is a 501(c)3 nonprofit organization.
Your donation supports the important work of Colorado Rare. In 2020, we will be hosting Rare Disease Awareness events at the State Capitol and at Children's Hospital Colorado. We also outreach to other organizations that share our vision and work collaboratively to meet the needs of our Colorado Rare Disease community.
Colorado Rare dedicates its work to all of our loved ones who live with a rare disease and the family members and professionals that work together to seek answers, and provide care and support.
We are especially saddened by the recent loss of Truett, a young boy who was a fierce warrior with an undiagnosed rare disease. His spirit and determination will continue to inspire our work so that we can create a Colorado that better supports those who live with rare diseases.
Donations in honor of TRUETT and his family can be made through the DONATE button. You can leave a message for Truett's family here: