Resources
Browse this directory for trusted information and active nonprofits for people with multiple sclerosis across the world to discover opportunities and find new connections.
Browse this directory for trusted information and active nonprofits for people with multiple sclerosis across the world to discover opportunities and find new connections.
General resources
Multiple sclerosis (MS) is an unpredictable disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Learn more from the NMSS.
Can Do Multiple Sclerosis offers GREAT free programming "to help people living with multiple sclerosis and their care partners make each day the best it can be." Learn how MS can impact your life, find motivation and personalized guidance to overcome challenges, and build connections to find a positive support network.
A UK-based online social network for people with multiple sclerosis around the world. Founded by MSers, for MSers, the charity supports many thousands of recently diagnosed people across the world as they make sense of MS. It’s independent and it’s free.
MS Foundation (MSF) provides short-term financial assistance for assistive technology, computers, cooling equipment, doctor/dentist visits, home care, rent, respite care, transportation, utilities and wellness activities to people living with MS.
Podcasts
Join host Jon Strum, whose wife lived with MS, each week as he breaks down the latest multiple sclerosis news. The podcast talks invites experts on to talk about things like MS research, National MS Society activities and updates, and answer questions from listeners.
Dr. Barry Singer, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center, interviews global medical experts and patient advocates about the latest treatments, innovations, and tips for patients living with MS.
Resources for the newly diagnosed
The National MS Society provides various types of resources for the newly diagnosed. This clickable PDF guide is a helpful place to start.
The MS Trust is a UK-based organization with a helpline and lots of other helpful resources. On this page, I recommend exploring the "Making Sense of MS" resources, which include videos and thorough advice, though it is important to remember, they are UK-based.
Resources for loved ones of someone with MS
MS can put relationships to the test, including with friends and family. You might not feel like talking if you’re worried or uncertain. But now’s the time when good communication can help you both find a way through this.
"No two people experience MS the same way — which also means there’s no one best way to support someone with the disease. Yet for people with MS, the strength of their social support network impacts their quality of life. So how can you be a good friend, family member or partner to someone with MS?"
Resources for young adults with MS
MS, I’mpossible supports young adults (age 40 and under) with multiple sclerosis via social and financial resources to help them overcome, and ultimately, thrive while living with MS.
First Descents offers outdoor adventures for young adults diagnosed with MS between the ages of 15-39 and currently between the ages of 18-45.
Identity-based resources
We Are ILL is a nonprofit patient advocacy organization with a mission to unite Black women living with MS. "Redefining what ✨sick✨ looks like."
While MS is more common in women, men may experience differences in the severity of their symptoms and disease progression. In this 2022 episode of Ask an MS Expert, we spoke with Dr. Robert Shin, Neurology professor and director of the Georgetown Multiple Sclerosis and Neuroimmunology Center, about the impact of MS on men and the importance of early diagnosis, treatment and support.
This NMSS-sponsored support group meets weekly on Mondays at 5:00 PM CST. Contact group leader Matthew Price at modifiedbyms@gmail.com or 850-974-5504.
Assistive devices and equipment services
The MSAA Equipment Distribution Program offers products designed to improve safety, mobility, activities of daily living, along with exercise/wellness opportunities. MSAA provides these products at no charge to individuals with MS who qualify for assistance, and items are shipped directly to the client.
Products distributed through the program range from grab bars, shower chairs, and walkers to wide-grip utensil sets and yoga mats. MSAA can assist in providing clients equipment products every three years.