CF Community Wellness - CF Education

CF Community Wellness

CF EDUCATION

Knowledge for Well-Being!

Your trusted source for cystic fibrosis education, wellness, and community resources to help individuals and families thrive.

Resources

Early Childhood

CFRISE CF Glossary

Everyday CF

Video: The A to Z of CF

Videos: How the Body Works

Cystic Fibrosis Symptoms and Diagnosis

CF and CF Treatments: A Look Inside the Lungs

Cystic Fibrosis Care: Clinic Visits

CF Care Center Conversation Guide

Know Your CF Care Team

Lets go on a CF Test Quest

How to Help Kids Swallow Pills in 7 Easy Steps

How to Lower the Risk of Spreading Germs in CF Clinics and Hospitals (2014)

Enzymes and Nutrition (2012)

Tips and Tricks for Airway Clearance (2023)

Cystic Fibrosis Care: Travel Tips

Joining Extracurricular Activities

Germs and CF at School (2014)

For Teachers: Understanding CF

IPC Passport Card (2019)

Book: Timmy's Chronicles of a Hidden World: A CF Warrior's Heart

CF Smart: Cystic Fibrosis Early Learning

Video: CF Smart Good Clean Hands

Eugene Explores CF: A Video Series

Video Series: How CF affects the body

Video Series: Children Support

Middle Childhood

CF Patient Education: Beacon GAME

Video: What is CF, exactly?

Virtual CF Care Center Visit

Understanding CF Below the Surface

Webcast: Genetics

Video: CF Lungs

Video: CF Pancreas

Video: CF Liver

How CF Manifests in the Body Over Time

Understanding CF Tests

Pathways to Lifelong Health: Living with Cystic Fibrosis from Day Care to High School (2014)

Abdominal Pain, Diarrhea, and Constipation

Poor Appetite, Nausea, Vomiting, and Weight Loss

Webcast: Nutrition/GI

Nutrition Basics

Dyspnea and Cough

Pain

Get Germ Smart - 7 Ways For People with CF

Webcast: Germs

CF Nebuliser Care

Webcast: Respiratory

CF Physiotherapy

Procedural Anxiety

Video: Airway Clearance Techniques (ACT)

Videos: Exercise with CF

Puberty and Growing Up

Staying Healthy

Book: Healthy Choices, Happy Kids (2013)

CFRISE Knowledge Assessment

CFRISE Milestones by Age and Stage

Video Series: Young people Support

CF and Progression Guide

Adolescents

A Teen's Guide to Navigating CF

CF College Transition Guide

Teen Hub on Cystic Fibrosis

MyChart Patient Guide

Time Timer Daily Schedule Guide

Know Your CFTR Mutations (2024)

Keep Calm and Transition On (2016)

Partnering for Care Series

Managing Cystic Fibrosis Care: Frequently Asked Questions

Discussing Health Care Choices

Health Equity in Cystic Fibrosis

What is the Sweat Test? (2007)

The Vest Airway Clearance System

Carrier Testing for Cystic Fibrosis

Genetics: Find Out More About Your Mutations

Supporting Nutrition: Understanding Tubefeeding (2014)

GI Overview: Stomach and Pancreas Problems in CF (2011)

CFRD: Diagnosis and Screening, Daily Management, Illness, Transplant and Pregnancy (2011)

Constipation and DIOS in CF (2011)

Fatigue

Identify EPI (Exocrine Pancreatic Insufficiency)

Pulmozyme Resources

Cayston: How to take your Cayston Medication

Creon CF Care Forward

Body Image and Cystic Fibrosis

Depression, Anxiety and Cystic Fibrosis: What the Guidelines Mean for You (2016)

Adults

An Introduction to Cystic Fibrosis for Patients and Families 7th Ed. (2025)

Adult Care Guide (2019)

Carrier of CF: What you need to know (2020)

CF Genetic Counseling: Beyond 1 in 4 (2012)

Cystic Fibrosis Care: Hospital Admissions

Advance Directives

Stress Among Adults with CF and Their Loved Ones

IMPACT: ACT resources

Sinus Disease in Cystic Fibrosis (2012)

Adult Nutrition (2009)

Vascular Access Devices: PICCs and Ports

CF Liver Disease (2011)

Risks of Smoking for People with Cystic Fibrosis

Colorectal Cancer and CF: The Screening (2018)

Lung Transplantation

The Journey Through Lung Transplant (2019)

Be Prepared for a Successful Colonoscopy When You Have CF: What the Guidelines Mean for You (2018)

CF Sexual and Reproductive Health Guide

Fertility Information for Females with CF (2009)

Fertility Information for Males with CF (2009)

Pathways to Lifelong Health: Living a Healthy Adult Life with CF (2015)

Disaster and Emergency Preparedness Planning

Clinical Trial Finder

Drug Development Pipeline

CF Foundation Patient Registry Annual Data Report

Parents

An Introduction to Cystic Fibrosis for Patients and Families (2017)

Cystic Fibrosis Program Patient and Family Education

Moving Forward after a CF Diagnosis

Developmental Guide for Your Child

Caring for Your Infant: A Parent's Guide to Healthy Living with CF

Caring for Your Toddler and Preschooler: A Parent's Guide to Healthy Living with CF

The Elementary School Years: A Parent's Guide to Healthy Living with CF (2011)

Raising Successful Teens: A Parent's Guide to Healthy Living with CF (2012)

Helping Siblings Cope: A Parent's Guide to Healthy Living with CF (2013)

Your Child's First Day Home: Getting Used to Tube Feeding

Keepin' it Rosy - When Your Parent Has CF: An Activity Book (2021)

Parent to Parent

Are Finances on Your Mind?

Parenting as an Adult with CF: Balancing Family Life and CF (2021)

Parenting as an Adult with CF: Talking with Your Child About CF (2021)

Parenting Children with Health Issues and Special Needs: Love and Logic Essentials for Raising Happy, Healthier Kids (2010)

Parenting When You Have CF (2021)

Planning Ahead and What to Expect

A Teacher’s Guide to Cystic Fibrosis

Videos: Living with CF: Day Care to High School

Videos: Living with CF: Day Care to High School

Resources

Staying on Track Journal

Travel Journal

My Cystic Fibrosis Care Checklist

My Transition Checklist

Adults: Clinical Care Checklist

Self-Care Checklist

College Readiness Checklist

CF Student Scholarship Programs

CFRISE Responsibilities Checklist

65 Roses Art Club: Interest Form

The DistrActors: A Comedy group

REGISTER: Practical Skills for Healthy Eating for Children with CF and their Families

sINgSPIRE: Voice Lessons

BreatheStrongCF Exercise Grants

Sibling Support Project

Work Proudly

CF Senior Saturday Meet and Greet

Fight2Breathe Podcast

Project CF Spouse

The Salty Pen: A CF Writing Group

This Eating Stuff is Hard Work (2012)

Five Wishes: Aging with Dignity

CF Yogi: Yoga Studio

BreatheStrong CF: Promoting Sexual and Reproductive Health of Men with CF

CF Master Class Stories

We Walk Together: Mother's Retreat for Mothers of Children with CF

Turning Points Coaching

Breathe For Britt: Slow Living for the Modern Age

Fall Risk: The CF Musical Comedy

Handouts

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