The following are support groups in the Rochester, NY area.
ALSA Upstate NY Chapter: http://webuny.alsa.org/site/PageServer?pagename=UNY_8_patient_family_services
Hearts for ALS: http://heartsforalsny.org/
Sitrin Neurocare: https://www.sitrinneurocare.com/ (Near Utica, NOT Rochester)
211 Lifeline: https://211lifeline.org/