In 2014, I fell ill with ME/CFS, also known as chronic fatigue syndrome or post-viral fatigue. I learned a lot over the next fourteen months of frustration, experimentation, online research and recovery, and I recorded what I discovered here. Unfortunately, I had a bad relapse after catching a virus in May 2017 that put me in a wheelchair or in bed for the better part of a year.
In April 2018, I was finally diagnosed with a physiological condition called Proprioception Dysfunction Syndrome (PDS). I began treatment immediately, and my rapid recovery is described in the following unpublished case study (I'm Patient 1):
This case study provides evidence that some ME/CFS patients actually have an illness that can be diagnosed and treated, allowing some severely ill ME/CFS patients to recover rapidly and regain their pre-disease quality of life. While there is no suggestion that everyone that has been diagnosed with ME/CFS actually has PDS, this diagnosis and treatment programme provides real hope for patients that are severely ill with fatigue and other symptoms.
Many patients stand to benefit from understanding better the link between chronic fatigue and proprioception, if only there was a desire in the medical community to find a solution to ME/CFS that didn't involve either an app or a drug.