THE LEUKEMIA & LYMPHOMA SOCIETY

About Us

The Leukemia & Lymphoma Society offers a variety of programs and services for people affected by leukemia, lymphoma, myeloma, myelodysplastic syndromes, and myeloproliferative neoplasms. All are offered free of charge. You can read more about them at www.LLS.org.

• Information Resource Center – Information Specialists, who are master's level oncology social workers, nurses and health educators, are available to speak to you and your loved ones one-on-one. They can provide information about diagnoses, treatments, supportive resources, and financial assistance and help with the challenges of living with cancer. You can speak to an Information Specialist by phone at 800-955-4572 from 9am to 9pm EST or by live chat at www.LLS.org/InformationSpecialists or email infocenter@LLS.org.

• Clinical Trial Support Center – Clinical Trial Nurse Navigators are available to speak on the phone one-on-one with patients and caregivers to help you decide if a clinical trial is right for you and help you identify clinical trials for which you may be eligible. They can also connect you with trial sites and help you overcome barriers to participating in a clinical trial. Call 800-955-4572 or complete a referral form at www.LLS.org/CTSC.

• Nutrition Consultation – Speak one-on-one over the phone with a registered dietitian with expertise in oncology nutrition. Consultations are available to patients with all cancer types and their caregivers. www.LLS.org/nutrition.

For More information about Local Programs in your area contact: Christina Nielsen at Christina.Nielsen@LLS.org

Support

• Patti Robinson Kaufmann First Connection Program – Speak on the phone with a trained peer volunteer who has gone through a similar diagnosis or experience. This program is available to patients, caregivers, and family members. To be matched with a peer volunteer, please call 800-955-4572 or fill out a request form at www.LLS.org/firstconnection.

• Online Chats – Chat online with other patients and caregivers with your diagnosis, at the same time each week. Each chat is moderated by an oncology social worker. www.LLS.org/chat

• Family Support Groups - Talk with other people affected by blood cancers including patients, family members and caregivers. LLS support groups are professionally moderated and offered in person or by phone. For more information about groups in your area, please call 800-955-4572 or check your chapter website at www.LLS.org/chapterfind.

• LLS Community – Be part of an online community of over 10,000 people living with or supporting someone with blood cancer. The LLS Community is a place to stay up-to-date on diagnosis-specific news and connect with others who share common interests, diagnoses, and health experiences across the country. www.LLS.org/community

Education

• Online Education – Access online, telephone, and video education programs to stay up-to-date about your subtype, support, and treatment options. www.LLS.org/programs and www.LLS.org/educationvideos

• Education Resources – Free booklets and fact sheets are available on your diagnosis and other helpful topics such as managing cancer, finances, and understanding lab tests. They are available online or can be mailed to you in print. Read and share with family and friends. Resources also are available specifically for survivors, caregivers, and parents of children with cancer. Resources are available in English, Spanish, and several other languages. www.LLS.org/publications

• Podcasts – Listen to our podcast series for patients and caregivers, The Bloodline with LLS, which features patients, caregivers, advocates, doctors and other healthcare professionals who discuss topics related to disease, treatment, and survivorship issues. www.LLS.org/podcasts

• Local Education – Programs and conferences for patients and caregivers are held around the country. Visit your local chapter website: www.LLS.org/chapterfind

Financial Assistance

• The Leukemia & Lymphoma Co-Pay Assistance Program – Financial support may be available to help with the costs of health insurance premiums and co-payments for treatment-related expenses. Patients must qualify financially for the program. To apply call 877-557-2672 or visit www.LLS.org/copay. Funds are subject to availability.

• Susan Lang Pay-It-Forward Patient Travel Assistance Program – Assistance may be provided to help with treatment-related travel costs, including ground transportation, air travel, and lodging related expenses. To see if you are eligible for this program call 877-557-2672 or visit www.LLS.org/travel. Funds are subject to availability.

• Pre CAR T-cell Therapy Travel Assistance - provides financial assistance to patients diagnosed with a blood cancer who are being evaluated to receive CAR T-cell therapy as either standard treatment or a clinical trial. Those who qualify will receive $2,500 in financial assistance to support approved travel and lodging expenses. To apply call 877-557-2672 or visit www.LLS.org/PreCARTTravel. Funds are subject to availability.

• Urgent Need Program – The following Urgent Need Program funds provide eligible patients with assistance for non-medical expenses including rent, mortgage, lodging, utilities, childcare, elder care, food, transportation, car repair, car insurance, phone service, and acute dental work related to treatment. Eligible patients will receive a grant of $500, once within a 12 month period. At the end of the 12 month period, patients can reapply. Healthcare professionals must refer their patients online at www.LLS.org/urgentneed or by calling 877-557-2672.

o The Urgent Need, Pediatric and Young Adult Fund serves pediatric and young adult blood cancer patients (birth to 39 years of age) who are in acute financial need.

o The Urgent Need, Adult Fund, in partnership with Charlie’s Fund, serves adult blood cancer patients (40+ years of age) who are in acute financial need.

LLS Information Specialists in the Information Resource Center are also knowledgeable about additional programs and resources that may be available through other organizations. Call them at 800-955-4572.

Patient Resources PDF - Christina Nielsen.pdf