Your LYME and Tick Borne Disease (TBD) information source,
for the Greater Mohawk Valley in Central - New York State,
established April 19, 2015
To receive the latest LYME information and support, Contact / Register with the Mohawk Valley LYME Support Group.
When you Register with a FaceTime or Skype id, we will make an attempt to include you remotely in the group meetings.
Phone:(at this time we cannot return phone calls, please either email, text message or attend next meeting.)
LOCATION: Monthly meetings are usually held in the Unitarian Universalist Church of Utica, on the third Sunday of each month from 2 - 4 PM. Check Schedule for current events and meeting locations. We meet in the church library, and if you find the door locked, please knock loudly, we probably forgot to unlock it. You may also call the above number for directions and more information.
SERVING: Mohawk Valley, New Hartford, Whitesboro, Utica, Herkimer, Old Forge, Rome, Remsen, Boonville, Lyons Falls, Glen Field, and all areas in-between.
LINKS: LYME has been around for many years and these links will take you to other groups who have been dealing with this health issue.
CONTACTS: We are a volunteer group, whose members have felt the effects of LYME and would like to help others avoid longterm health issues resulting from a lack of knowledge. If we can be of help in your effort to achieve better health during or after a tick bite, please feel free to contact the group.
NOTICE: Tick testing may save you from a concern about seeking treatment after a tick bite.
For more information: http://www.tickdiseases.org/tick-testing/what-is-tick-testing/
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2017 Is The Worst Year For Lyme Disease Yet: Here's What You Need To Know
The reason for this may surprise you: mice. (click on heading for more information)
PREVENTION: SAWYER TICK REPELLENT
Used to treat outdoor clothing. Lasts through several washings. Known to kill ticks also. In Utica, I have spotted this in Herb Phillipsons sporting goods stores.
Antibiotics, Herbals and a Combination of both.
The latest results show that out of 7200 lyme cases, about as many people benefited from Antibiotics as did from a Herbal treatment, with about 12% using both types of treatment. Many Lyme patients find that Herbals are the only way to sustain a level of functional health after a failure of Antibiotics to reach a full cure. After attending a conference at Woodland Essence where Stephen Buhner and other people's herbal treatments for Lyme were discussed, the MV Lyme Support Group has decided to have a herbalist come and speak at a future meeting, Sept. 17, 2017. Please register for early notice, or watch the schedule page of this website.
In memory of all those who have suffered with LYME & TBD infections, we tell our stories.
See more of the LYME Patient stories by clicking headings, or select tab - My LYME Story / Local NY LYME Stories.
My short version would be: Never saw a tick or rash but symptoms were flu like sudden onset Labor day 1988. R. - Utica, NY
I was raised on a farm, spent much of my childhood outdoors and experienced many ticks through my teenage years. J. - Boonville, NY
On 8/11/15 , late in the evening I had a temperature of 104 degrees and my body hurt from head to toe. I,- Frankfort, NY
LYME Patient 4:
Nov. 2016, developed numbness in left arm and then side, by Jan. 2017 also affected right side, and by Feb. Lyme has affected chest / breathing muscles, and required nursing home care. After having negative Lyme test and ending up in nursing home, NYC doctor got a positive Lyme test and co-infections, and started treatment for LYME. This is an active case, a result of not taking Lyme as a serious disease with early treatment. K, - Boonville, NY
Chronic illness has changed me. It changed the way I see the world and changed my goals. Even if the only goal right now is just to get better, I can’t think of a more noble one than that.
Read Kerry’s previous blog, “The High Cost of Telling Someone You Don’t Look Sick“.
A Must Read (click here): A Deep Look at the Symptoms of Six Major Lyme-Related Infections
INFLAMMATION, HISTAMINE and a Treatment: MCAD is a condition whereby the body releases an excessive amount of mast cells, which are immune cells that release histamine and cause inflammation in the body.
Why persister cells matter with Lyme disease
"..the use of ineffective antibiotics against bacteria [is like] trying to kill dandelions with a lawnmower. "
The spread of LYME disease has increased dramatically since this 2014 report. Also, this report is according to CDC guidelines which limits which cases may be reported and even those cases are not all reported because of the political issues surrounding the treating of LYME in patients.
Ticks are spread each year by migrating birds, establishing new tick colonies throughout their flight path. We must be prepared for this growing vector of human infections through prevention and rapid treatment of LYME and the co-infections.
LOCATION: Monthly meetings are usually held in the Unitarian Universalist Church of Utica, on the third Sunday of each month from 2 - 4 PM. Check Schedule for current events and meeting locations. SERVING: Mohawk Valley, New Hartford, Whitesboro, Utica, Herkimer, Rome, Remsen, Boonville, and all areas in-between. LINKS: LYME has been around for many years and these links will take you to other groups who have been dealing with this health issue. CONTACTS: We are a volunteer group, whose members have felt the effects of LYME and would like to help others avoid longterm health issues resulting from a lack of knowledge. If we can be of help in your effort to achieve better health during or after a tick bite, please feel free to contact the group. |  The movie is praised for explaining LYME and what people are experiencing in the process of getting treated. If you are interested in seeing or having the movie(s) "Under Our Skin" or the followup movie "Emergence" shown, please email MVLymeSG@gmail.com |