LINKS
Organization
LYME ORGANIZATIONS
MVLSG website
( Mohawk Valley Lyme Support Group )
LYME BASICS, a source for the beginner
MVLSG facebook page
Website
www.mohawkvalleylymesupportgroup.com
https://www.facebook.com/mohawkvalleylyme
https://globallymealliance.org/news/
http://www.lymeactionnetwork.org
http://www.columbia-lyme.org/about/director_message.html
www.empirestatelymediseaseassociation.org
http://www.ceresnano.com/#!nanotrap-lyme-test/c64d
www.advanced-lab.com/spirochete.php
https://www.lymedisease.org/lyme-basics/lyme-disease/treatment/
http://lyme.kaiserpapers.org/financial-assistance.html
http://www.ampcoil.com/beat-lyme-disease?utm=facebook
https://groups.yahoo.com/neo/groups/lymestrategies/info
https://groups.yahoo.com/neo/groups/Lyme-Rife/info
https://groups.yahoo.com/neo/groups/NewYorkLyme/info
https://groups.yahoo.com/neo/groups/LymeInfo/info?referrer=NewYorkLyme
http://medicine.stonybrookmedicine.edu/pathology/tick
Pod Cast Interviews by Mackay Rippey, a founding member of the MV LYME Support Group
Conquering Tick-borne Disease through Research & Education
Focus On Lyme was started to improve diagnostics, treatment, prevention and advocacy for patients suffering from Lyme and associated tick-borne diseases.
Pennsylvania LYME Organization
A good source of LYME information from people who have been dealing with the disease since the 1980s.
Empire State Lyme Disease Association provides listing of NY State Lyme Support Groups, events and Lyme information
The Milford Medical Laboratory is offering the highly sensitive and reliable DNA test for Lyme disease at $150 for a sample of blood, joint fluid or spinal fluid, when ordered by a physician.
2016 July, multi infection DNA testing news.
LYME Ninja Radio
Focus on LYME
The Lyme Action Network is located in the upstate region of New York State, providing general information and resources to the public as well as to medical practitioners seeking more information about Lyme disease and other Tick Borne Diseases (TBDs).
Columbia University LYME research
International Lyme and
Associated Diseases
Lyme Disease Assoc. of SE Pa.
www.palyme.org
Lyme disease information and advocacy.
Empire State Lyme Disease Association
Information and worldwide support group listings
This site provides details about Lyme disease symptoms, diagnosis, treatment, and prevention.
Jeanna's Lyme Blog - for the latest news on Lyme.
LYME TESTING
Milford Medical Laboratory
Ceres - LYME urine test
IGENEX LABS, Calif.
Test uses multiple strains and includes Lyme Specific bands 31 and 34 .
TGen developing quick, affordable and accurate test to diagnose debilitating Lyme disease
They also will test ticks but only for pathogens, $68.00 for each pathogen, will not identify type of tick.
Lyme Western Blot covered under Medicare
$400 plus shipping with dry ice, costs. Must work with doctor. Lab is in Virgina.
IGENEX LABS in Calif. has been the gold standard to date. Reading of the results by an experienced LYME literate doctor is important. If any of the LYME specific bands are found, even though 5 bands were not found, most LLD would say you have LYME. Depending on the tests requested the cost can be upwards of $1000.00
Culture Test $595,
high accuracy
NATUROPATHIC COUNSELING AND EDUCATION
PEMF electric pulse treatment
Financial Assistance for Lyme Disease Patients
Various sources which offer financial assistance for Lyme testing and Drug for treatment.
AMPCOIL
LYME NEWS
Lyme Ninja Radio from NYS
Interviews of those in the know.
LEARN THE FACTS
YAHOO LYME GROUPS
A group which discusses use of Salt & Vita C, and other LYME treatments.
LYME and RIFE machines
NYS LYME Disease.ORG
A meeting place for Lyme patients in NY
The LymeInfo email list has been created to supplement the website http://www.LymeInfo.Net, which has been serving the online Lyme disease community since 1997
TESTING TICKS
The Milford Medical Laboratory is offering the highly sensitive and reliable DNA test for Lyme disease at $150 for a sample of blood, joint fluid or spinal fluid, when ordered by a physician.
UMass tick testing service, quick results, notify by email. $50 insurance does not pay
Tick testing, information, pictures of ticks, tick ID service; tick testing for infection will be sent to UMass (above link)
Will identify tick and estimate length of attachment for free if reported over the phone, if want written report will charge a fee. Do not test for infection
SUPPORT - EDUCATION - RESOURCES