23 And Me
Over 10,000 people with Parkinson's have enrolled in the 23andMe Parkinson's Community.
Since their start in 2009, they have already made several novel discoveries related to the genetics of Parkinson's disease. If everyone already participating can recruit just one additional person with Parkinson's, they will be in an even better position to make discoveries that are of value to you and your families.
From https://www.23andme.com/pd/ :
Diagnosed with Parkinson's disease by a physician
Access to the internet
Willing to complete online health surveys
FREE lifetime access to 23andMe's Personal Genome Service (valued at $299)
Find out if you carry known genetic mutations associated with Parkinson's (if you choose)
Receive monthly updates as new health discoveries are made and see how they apply to YOU
Help advance medical research
Here are some ways to help get the word out:
· Write a letter or email to a friend or family member who also has Parkinson's.
· Tell members of your support group and any classes you take with other people with Parkinson's.
· Submit information to any relevant newsletters you subscribe to.
· Post information in any online forums you participate in.
Here is some language you might consider using:
I am helping to advance research in Parkinson's by participating in the 23andMe Parkinson's Community. I'm asking you to consider joining this research program to help in the fight against Parkinson's. All that is required is a saliva sample and the ability to answer questionnaires over the internet.
Every single person with Parkinson's who contributes his or her data to this project gives scientists the opportunity to better understand this disease - and a shot at significantly improving its outcome. Please help us spread the word by passing this information on to anyone you know with Parkinson's.
Thank you!
The 23andMe Research Team