Sunday June 30th, 2024

Welcome to KEEGAN'S 12th Annual 5K for CRANIOSYNOSTOSIS AWARENESS!

When: June 30th, 2024 @ 9:00 AM

Where: West Park

2350 11th St

White Bear Lake, MN


Virtual participants welcome! 

(We will mail your shirts once we receive them, not guaranteed to be received by participant by race day, but will do our best to make it happen! $5 shipping required)

    Come and join us on a noncompetitive run/walk at the beautiful West Park in White Bear Lake, to raise craniosynostosis awareness!  

If you have a cranio warrior, we would LOVE to honor them in our facebook group, please send your warriors story to us and we will be posting them as race day gets closer!

(Google Keegan's 5K to find our FB group page, it is separate from the Keegan's 5K FB page)

We were blessed with our precious baby Keegan.  At his 2 week visit, his pediatrician informed us his head shape was suspicious for scaphalocephaly, a form of craniosynostosis.  This was confirmed a couple of weeks later with a CT scan, which was the start of our craniosynostosis journey.  

 

    Craniosynostosis affects 1 in 2500 births.  Scaphalocephaly, or sagittal suture line fusion is the most common form of craniosynostosis.  Treating craniosynostosis usually requires surgery to separate the fused bone and increase the cranial vault to allow the brain space to grow properly and prevent damage to the brain. 

    Being a new parent comes with so many emotions...amazement, joy, unconditional love.  It also comes with lack of sleep, anxiousness for the unknown and uncertainty if you are making the right decisions.  It is hard to for parents to see their children sick, no matter what age.  Imagine being told your sweet little one needs to have major skull surgery at 4 months old.  This was the hardest thing we have ever had to do!  We found support through God,  family, friends and online support groups. 

    We will be donating proceeds to Cranio Care Bears, an amazing non-profit organization that mails care packages to cranio kids before their surgery dates.  They mail over 150 cares packages per month, to countries all around the world! They touched our hearts and we wish to help them continue to support cranio families. 

    We cannot thank you enough for all of your love and support! Thank you for participating!  Praying for sunshine on race day!