HDQLIFE™ is a patient-reported outcome measurement system developed specifically for people with Huntington disease.

Introduction to HDQLIFE

Obtain and Administer HDQLIFE

Development of HDQLIFE

Complementary Measures

Find out the basics of HDQLIFE, the benefits of using this system, who can use it, and the domains it covers.

Download the HDQLIFE measures, understand how to administer and score them, and learn how to present results in publications.

Read about the science behind HDQLIFE. Learn how HDQLIFE was developed and validated.

Discover other measures that have been validated in HD from the PROMIS®, HD-PRO-TRIAD™, and Neuro-QoL™ measurement systems.