Whats New ?
Rare renal disease cystinuria group. Cystinuria has now been recognised as a rare disease nationally. Kay Thomas is the co-chair of the newly formed group hoping to bring clinicians and patients together to manage and study this disease better.
New cookbook under development
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The website has been written and designed by healthcare professionals from Guy's and St. Thomas' NHS Foundation Trust with significant contributions from several patients who wish to remain anonymous.
The Team at CystinuriaUK
"I have a specialist interest in cystinuria and in particular the preventative measures which may be useful in helping patients have some control over the impact of their disease. I established a multi-disciplinary specialist clinic for cystinuria which has led to the development of this website."
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