Whats New ? The next patient day will be held on Saturday 30th March 2019. Details can be viewed here - patient day. We have created a video outlining the diagnosis and management of cystinuria. This video can be viewed here. (note: this was created as an educational video by an external company and is viewed on their website. We did not receive money for this video and do not endorse their products) Our recent publications: Stones: Predicting stone episodes using cystine capacity - refers to this article in the Journal of Urology from Professor Pearle Follow us on Twitter @cystinuriaUK
This website was written and designed by a group of interested health care professionals and patients, all of whom felt that the current information on the web about cystinuria was limited, confusing and not particularly orientated to British patients. It has been designed to provide clear and concise information for cystinuric patients and/ or their friends and family. Our aim is threefold:
If you feel that anything is incorrect or if there is anything you would like to see on the this website then please contact us and let us know what you think via the Contact/ Feedback form. The website has been written and designed by healthcare professionals from Guy's and St. Thomas' NHS Foundation Trust with significant contributions from several patients who wish to remain anonymous.
The Team at CystinuriaUK
"I have a specialist interest in cystinuria and in particular the preventative measures which may be useful in helping patients have some control over the impact of their disease. I established a multi-disciplinary specialist clinic for cystinuria which has led to the development of this website."
Disclaimer: All the information contained on this website is for education and information only. This does not replace advice from an appropriately qualified doctor. If you are unwell or require medical advice, help or treatment you should consult your doctor or urologist. Whilst we have taken every care to ensure that the information contained in this website is accurate, complete and up-to-date, we cannot guarantee this. Links from this site to other websites are provided for information and convenience only. We cannot accept responsibility for their availability or the information they contain. We do not endorse any particular sites. Copyright: All material on this site is subject to Copyright ©. You may not reproduce any content from this website without obtaining permission from the authors. |