Privacy Policy

Sharing your information with the NIHR ARC Yorkshire and Humber Management team for the VICTOR project

About this Privacy Notice

This privacy notice relates to collecting, recording and storing personal contact information described in this privacy notice to enable the NIHR ARC Yorkshire and Humber (ARC YH) Project Management Team to collect, record and store information to support the testing, evaluation, development and implementation of the VICTOR tool. 

In this privacy notice, ‘we’ or ‘us’ means the NIHR ARC Yorkshire and Humber Project Management team; ‘you’ or ‘your’ means you as a user of the VICTOR tool.

This privacy notice tells you what information we collect and how it is used to support the delivery of the project, including your rights and how to contact us.

What is the VICTOR tool?

VICTOR (visible impact of research) is a tool for health and care organisations aimed to make visible the benefits of conducting research. It was originally developed as a hardcopy tool by 12 CRN YH Partner Organisations and piloted across 14 NHS Trusts in the region on a minimum of 2 studies per site.

In 2021, an online version of a Minimal Viable Product (MVP) of VICTOR was developed with funding and project management support from the CRN YH. An updated of the VICTOR tool was developed in 2023 in collaboration with the ACORN group and NIHR CRN YH.

General Data Protection Regulation Legal Basis

The NIHR ARC Yorkshire and Humber VICTOR Management team is the Data Controller for the personal information collected and processed about you accordance with data protection legislation.

Our legal basis for collecting your personal information under GDPR  is:

GDPR Article 6 (1) (a): the data subject has given consent to the processing of his or her personal data for one or more specific purposes

Information we collect

In operating this website we may collect and process the following data about you:

• Details of your visits to this website and the pages/resources accessed

• Information you provide such as details submitted via questionnaires

• Information provided to us when you communicate with us for any reason

Withdrawing your consent to hold your information

If you change your mind and would like to withdraw your permission for your information to be held by the VICTOR Management team in relation to the VICTOR tool, you can do so by contacting us at VICTORimpact.tool@gmail.com 

Where you withdraw your permission, your information will be deleted from the VICTOR project contact database.

Updating your details

If you need to update any of the information you have provided, you will need to email VICTORimpact.tool@gmail.com and we will update our information accordingly.

Who do we share your personal information with?

The personal information you provide will only be shared with the VICTOR Management team and where necessary HMA Digital, developers of the VICTOR tool.

How long do we keep your personal information?

We will retain your personal information for the duration of the testing and evaluation period through to March 2026 in the first instance. If, following the evaluation and summative report, the Reference Group wishes to pursue future development of the VICTOR tool and a business case to fund this is approved by the NIHR, you will be invited to participate in the future development.

 Where do we store your personal information?

VICTOR Management team processes your personal information for the VICTOR  project in the United Kingdom. Your information will be stored securely on the NIHR Hub, which complies with ISO 27001, and access will be restricted to the VICTOR Management team for the purposes for which it is intended.

The VICTOR website uses Google Analytics, a web analytics service provided by Google, to analyse how users interact with the website. You may decline the use of cookies, which collect usage data for analysis, by setting the appropriate settings on your browser. We use records of the pages users have visited to analyse trends so we can improve the website. These records do not contain any personal information about website users.

Your rights over your personal information

You have the following rights in relation to to your personal information obtained by the VICTOR Project:

• the right to be informed about how your personal information is being used (be informed)

• the right to access the personal information (get access)

• the right to have inaccurate personal data rectified, or completed if it is incomplete (rectify or change)

• the right to erasure of your personal information in certain limited circumstances (erase or remove)

• the right to restrict processing in certain circumstances (restrict or stop processing)

• the right to object to the processing of your personal information in certain circumstances (object to processing or use)

• the right to request that elements of your data are transferred either to you or another service provider in certain circumstances (move, copy or transfer)

• the right to object to certain automated decision-making processes using your personal information (know if a decision was made by a computer rather than a person)

• the right to complain to the Information Commissioner (raise a concern)

More information about your legal rights can be found on the Information Commissioner’s website.

Please note that some of these rights do not apply in relation to the processing of your personal information by us due to the specific requirements and exemptions which apply to them. The rights which do apply in relation to the personal information we process are set out below.

Summary of your rights

Summary of your rights over your personal information

Rights

Does this right apply to the personal information I share with the VICTOR Project?

1. Be informed; Yes

2. Get access: Yes

3. Rectify or change: Yes

4. Erase or remove: Yes

5. Restrict or stop processing: Yes

6. Move, copy or transfer: Yes

7. Object to processing or use: Yes

8. Know if a decision was made by a computer rather than a person: No - automated decision making will not take place using your data

9. Raise a concern: Yes

Contact us

If you have any queries in relation to the use of your personal information in connection with the EMRI Project or if you wish to exercise any of your rights above, please contact VICTORimpact.tool@gmail.com. 

Contact the Information Commissioner

If we are unable to resolve any queries or concerns in relation to the use of your personal information in connection with the EMRI Project, you can raise your concern with the Information Commissioner. You can contact the Information Commissioner’s Office in the following ways:

• use the online Contact Us service

• call 0303 123 1113

• write to the Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF