What do I need to do?

We would like to collect some information from you/your child[ren] over the next year.
This will involve filling in a questionnaire that takes about 30 minutes (each person) to complete.
You/your child[ren] can fill in the questionnaire over the telephone, on-line or on a paper copy at the following time points:
We may also contact you and your child[ren] about 1 months or 6 months after your child’s PICU discharge to invite you to chat about your experience and life now in an interview.

Questionnaires:

You and your child[ren]will be asked to complete questionnaires.

We are really keen for your child[ren] to complete as many of these questionnaires by themselves. However if this is not possible then we will ask you to complete them on their behalf.

These questionnaires will ask questions about:

You and your child[ren]’s current quality of life
How you and your child[ren] are feeling (including emotions, stress and hope)
How you and your child[ren] are recovering and your family routines

There are no right or wrong answers.

Interviews:

You/your child[ren] might be contacted to take part in a chat with a researcher.

If you consent to participate then you can choose whether you would like a researcher from the study team to visit you (at a time and location convenient to you) or have a chat with you over the telephone or video conferencing software.

You may choose to have this interview with your child[ren]who was on PICU and their sibling(s) also present.

The interviews will try to understand what your life is like now and whether you and/or your child[ren] have any health/care needs. We will tape record our conversations so the researcher can remember what has been said.

Again there are no right or wrong answers.

For more information please access the information sheets below:

Child Study Information Sheet

OCEANIC - Child Information sheet.pdf

Parent/Carer Study Information Sheet

OCEANIC - Parent information sheet.pdf

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