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About the NIHR Clinical Research Network Coordinating Centre
About the NIHR Clinical Research Network Coordinating Centre
The NIHR Clinical Research Network Coordinating Centre (CRNCC) is a service provided by the Consortium, supported by a wider partnership which includes King’s College London, Imperial College London, Newcastle University, University of Liverpool and PA Consulting Services Limited
The CRNCC manages the NIHR Clinical Research Network ("CRN") on behalf of the Department of Health and Social Care. The CRN makes it possible for patients and health professionals across England to participate in clinical research studies within the NHS. The CRN provides the infrastructure that allows high-quality clinical research funded by charities, research funders and life-sciences industry to be undertaken throughout the NHS. The CRN works with patients and the public to make sure their needs are placed at the heart of all research, and provides opportunities for patients to gain earlier access to new and better treatments through research participation. The CRN provides practical help in identifying and recruiting patients for clinical research studies, so that researchers can be confident of completing the study on time and as planned.
The CRN supports around 5,000 clinical research studies each year.
The information we collect
The information we collect
The CRNCC collects your personal data on behalf of and as directed by the Department of Health and Social Care.
The NIHR CRN Data Sharing site collects information directly through on-screen data entry by you, the user. The data we will store about you will be your Name, email address and your employer.
Your data will be stored in Google Workspaces in an area only accessible to CRN staff responsible for processing Data Access Requests
We always protect your personal data within the terms of this Privacy Notice.
How and why we use your personal data
How and why we use your personal data
Use of personal data
The information we collect is needed to help us assess your Data Access Request, to be able to contact you regarding your application and (given your consent) to send you notifications relating to the data we provide.
Information collected via the Data Access Request process may be shared with HDRUK, but will not be shared with any other third parties.
How we protect your data
How we protect your data
What is the ‘data’ journey
We are committed to ensuring that your information is secure. We use leading technologies and maintain strict security standards to prevent any unauthorised access to it. However, given that transmitting information over the internet cannot be completely secure, we can’t guarantee the security of your data in transit.
The DataSharing site is hosted on the Google Workspaces platform, a cloud-based software platform which provides for disaster recovery processes across its servers.
We will not sell your personal data. With the exception of operational support of the system where an IT hosting provider may access your details as part of maintenance and support we will not disclose your personal data to third parties outside of the CRNCC, unless we have your explicit permission, or are required by law to do so.
We will hold the data for as long as we are providing you services and for as long as you agree to this. We will retain your data for varying amounts of time depending on the nature of your interactions with CRN:
We only store data that is necessary for a specific purposes
We will not store your data for longer than is necessary
Your data will be securely deleted when no longer needed for the purpose(s)
Destruction of Data
When a disc drive fails or is no longer required for use, this is securely destroyed in accordance with the NHS Code of Practice.
When an electronic file containing personal identifiable information (i.e. a complaints file) is no longer required it is securely deleted by overwriting the space several times with selected patterns, thus rendering any information unreadable.
No paper records are kept of personal confidential data
Who we share your personal data with
Who we share your personal data with
We will never share personal information with other third parties without your consent
Navigation data and usage reporting is shared with trusted third parties providing analytics such as Google Analytics.
All partner organisations are either contractually obliged or have signed up to a Data Processing Agreement, which prevents them from sharing your data with other non-authorised third parties and provides for the secure disposal of this data.
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