I have received a ‘low risk’ result, what does that mean?

The average risk of developing Type 1 diabetes in childhood is 1 in 250 (this means that if we looked at a random group of 250 babies in England, we would expect only around 1 of them to develop Type 1 diabetes by the time they are 6 years old). 

In the INGR1D2 study we look for genetic markers that we know to be linked with a higher risk of a baby developing Type 1 diabetes in childhood (by higher risk we mean a risk of 1 in 10 (10%) or higher).  If you have received a lower risk result this means that your baby has NOT been found to have these higher risk gene markers.

It is important to know that this result does not mean your baby could never develop Type 1 diabetes and you should still seek medical advice if your baby develops symptoms of the condition (for example, drinking  more than usual, passing urine (peeing) more often, being more tired than usual, and becoming thinner – see the NHS website for more information).

If you want to know more about a lower risk result or ask anything else about the INGR1D2 study then you can contact your local study site.  Once you have received a lower risk result then this is the end of your involvement in the INGR1D2 study. Thank you for your contribution to this important research. 

You will receive a text asking you to complete a short online survey about your involvement, we would be very grateful if you would take a couple of minutes to complete this as we use the results to understand how to improve our research, now and in the future.

I have taken part in the INGR1D2 study but have not received a result

Most results take about 10 weeks after your baby is born to be received. Once we know the result we will contact you by text if your result is lower risk, or by telephone if your result is higher risk. If you have not received your result by the time your baby is 12 weeks old, then you can contact your local study site who will be happy to check your contact details and confirm whether a result is available.

I have a text asking me to complete a survey about my experience of the INGR1D2 or AVAnT1A study

We really want to hear about your experience of taking part in this research. That's why we ask parents to fill in a short anonymous survey. Your answers help us understand what is working well and what we could do better.  As a result of this survey we have made improvements such as texting lower risk results to parents, adding extra information to the website about what lower or higher risk results mean, making study contact details easier to find, and increasing the amount of information available about this research to parents during pregnancy.  We let our research teams know about any positive comments.  It would help us ot improve even more if you could take a couple of minutes to share your experiences of the INGR1D2 study, your research teams would love to know more about your experiences. 

I still have questions

If you have further questions then your local INGR1D2 study team will be very happy to speak with you and discuss them.  Simply click below on the site nearest to the maternity unit you went to  to send an email.  If you would prefer to telephone then look at the Contact us page for your local research team contact details.