Malan Syndrome Family and Scientific Engagement Conference
May 29- 31, 2020
Holiday Inn, Clark- Newark Area
Clark, New Jersey
At A Glance
The Malan Syndrome Foundation is proud to host the first Malan Syndrome Family and Scientific Engagement Conference. This event will bring Malan syndrome patients, families and caregivers together with leading geneticists, clinical specialists and scientists to learn, share and build community. We are very excited about this event and hope it will be a rewarding experience for all those in attendance.
Registration for the conference is now open.
The conference is a 3-day event, beginning Friday, May 29th, and ending Sunday, May 31st. Check-in will begin at 3pm on Friday, May 29th. A Welcome Dinner is planned for 6pm on Friday evening . Educational and advocacy seminars will be scheduled for Saturday, May 30th from 9am- 5pm, followed by a Family Dinner at 6pm. There will be a Family Breakfast on Sunday, May 31st with concluding remarks and a group photo. The conference will end at noon on Sunday, May 31st.
Coronavirus (COVID-19) Update: We are monitoring the COVID-19 situation very closely. At this time, we are still planning to hold the conference as originally scheduled. If we need to postpone/cancel the conference or if you choose to cancel your registration, we will refund registration fees without penalty.
