Caregivers take on a heavy emotional and physical burden because children who have muscular dystrophy require specialized and time-consuming care.¹ Caregivers of individuals with DMD are affected by numerous factors including family burden, coping skills, and socioeconomic status.⁴

Caregivers often take on a heavy emotional and physical burden because children who have muscular dystrophy require specialized and time-consuming care.^{10, 11, 12} In order to better understand caregiver QOL, a study was conducted through interviews about family burden, coping skills, and well-being to determine the psychosocial challenges that caregivers of children with DMD face.⁴ Studies showed that all caregivers were concerned about their children, and almost all caregivers said that they needed more information regarding the diagnosis.⁴

One major factor that often affects the quality of life of both individuals with DMD and their caregivers is socioeconomic status. Resources to assist families with socioeconomic burden and DMD can be found here.

According to the study "Psychosocial Challenges in Family Caregiving with Children Suffering from Duchenne Muscular Dystrophy" conducted by Thomas et al., (2014), all caregivers in the study were concerned about their children, and almost all caregivers said that they needed more information regarding the diagnosis.⁴ We have provided resources that explain coping skills and resources for families who are caregivers of individuals with DMD.