Moderators / Speakers

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Mrs. Serena Wu

Founder, Taiwan Foundation for Rare Disorders

Prof. Min-Chieh Tseng

Co-Founder, Taiwan Foundation for Rare Disorders/ Dean of Social Science College, National Taipei University

Dr. Shuan-Pei Lin

Chairman, Taiwan Foundation for Rare Disorders and Taiwan Human Genetics Society

Prof. Paul Wuh-Liang Hwu

Attending Physician, Department of Medical Genetics and Pediatrics, National Taiwan University Hospital

Dr. Yin-Hsiu Chien

Attending Physician, Department of Medical Genetics and Pediatrics, National Taiwan University Hospital

Dr. Paul Harmatz

Professor, Benioff Children’s Hospital Oakland, CA, USA

Prof. Jan-Gowth Chang

Vice Superintendent, China Medical University Hospital/ Professor, College of Medicine, China Medical University

Dr. Ting-Chen Lu

Attending Surgeon, Craniofacial center, Plastic and Reconstructive Surgery, Chang Gung Memorial Hospital

Prof. Matthew Bellgard

Chair, APEC Rare Disease Network/ Director, eResearch, Queensland University of Technology

Assoc. Prof. Prasobsri Ungthavorn

Vice President, The Medical Council of Thailand, Ministry of Public Health, Thailand

Dr. Dau-Ming Niu

Director, Genetic Consultant Center, Taipei Veterans General Hospital

Dr. Li-Ping Tsai

Director, Department of Pediatrics, Taipei Tzu Chi Hospital

Prof. Vu Chi Dzung

Head of Department of Medical Genetics, Metabolism and Endocrinology, Vietnam National Children’s Hospital, Hanoi, Vietnam

Durhane Wong-Rieger, PHD

President and CEO, Canadian Organization for Rare Disorders/ Chair, the Rare Diseases International Council

Mr. Mark Dant

Chairman, EveryLife Foundation for Rare Diseases

Mr. Hyun-Min Shin

Chairman, Korean Organization for Rare Diseases

Ir. Lee, Yee Seng

President, Malaysia Lysosomal Diseases Association