Important Information & Disclaimer
My Voice, My Care USA — A Practical FND Communication and Advocacy Toolkit
Published by Paul Edwards & Jennifer Kerr | From the UK to the USA
Medical Disclaimer
My Voice, My Care USA is a free educational, communication and self-advocacy resource designed to support individuals living with Functional Neurological Disorder (FND), their families, caregivers, educators and healthcare professionals. The information provided is intended for general educational and informational purposes only. It does not constitute medical advice, diagnosis, treatment, legal advice or an individualised care plan.
The toolkit is not a substitute for consultation with a qualified healthcare professional. Users should seek advice from their healthcare providers regarding symptoms, diagnosis, treatment, medication and individual support needs.
Emergency Situations
This toolkit is not an emergency response guide and should not be relied upon to determine whether symptoms require urgent medical attention. In the United States, call 911 for a medical emergency, including new or potentially life-threatening symptoms. Do not assume that new or unusual symptoms are caused by FND.
Individual Experiences
FND affects individuals differently. Symptoms, communication needs, functional seizures, mobility challenges and support requirements vary from person to person. The personal experiences and perspectives shared by the publishers are intended to promote understanding and awareness and should not be interpreted as universal experiences or clinical recommendations.
Professional Responsibility
Healthcare professionals, educators and care providers should apply their own professional judgement and follow applicable clinical guidance, safeguarding requirements, institutional policies and relevant laws.
Independence and Accessibility
This publication is independently developed by UK-based FND advocates for educational use in the United States. It is not presented as an official publication of any US government agency, healthcare institution or professional regulatory organisation.
Copyright and Distribution
© 2026 Paul Edwards & Jennifer Kerr. All rights reserved.
This toolkit is provided free of charge for personal, educational and non-commercial use. It may be shared in its original, unaltered form with appropriate acknowledgement of both publishers. It must not be sold, modified or commercially reproduced without prior written permission.
Our Commitment
We believe that everyone living with FND deserves dignity, understanding, appropriate support and the opportunity to communicate their needs.
Two Voices. One Purpose. FND Has No Borders.