Hello, I am Hugh Sproul, I am a high school senior with dyslexia, dysgraphia and ADHD. Despite this, I am still number 1 in my class, have lots of friends, and set a state record in powerlifting. I have been able to do this with the help and support of my parents, teachers and friends. I was first diagnosed with dyslexia at the age of 6 after a very hard kindergarten year. While I was enrolled at a school that you had to be smart to attend, I was almost held back, not because I wasn't smart but because of my learning differences and the lack of support I was getting from my teachers. After I was identified, while it was hard, things definitely turned around. While I left my first school (and my second school), I started going to tutoring that helped me learn how to deal with my dyslexia. Eventually, I found a school that was great for me. I made lots of great friends and had amazing teachers. While things may be hard right now, just know that life will definitely get better. You just have to persevere through your struggles. I know it sounds hard when you are reading this, but I was in your shoes once. Just remember to lean on your parents, teachers and friends, and don't forget to ask for help. Without learning to accept help, I would not have found the success I have today.
Good Luck,
Hugh Sproul
While I know it may be hard to read now, it is a very necessary skill that can also be fun. One issue that I often had with my reading journey is that I often was forced to read books that I did not like and that did not interest me. Because I also have ADHD, reading boring books seemed like a chore. The books below are ones that I have enjoyed reading or that other people have recommended.
Dav Pilkey is the author of several of my favorite books from my childhood, like Captain Underpants and Dog Man, but what most people don't know is that he also suffered from dyslexia and ADHD. In second grade, Dav was caught writing a comic about a character named Captain Underpants. His teacher ripped up that comic and told him that he shouldn't write those insane comics, and he needed to pay more attention in class. Little did she know, his comedic drawings would go on to make Dav into a household name.
This is a series about two boys who changed their mean principal into a superhero named Captain Underpants. They go on lots of different adventures and stop lots of criminals. This series is phenomenal for younger kids as they are easy, very fun, silly books with a good number of pictures. This book keeps a young reader's attention, and the font of this book makes reading with dyslexia easier. Bonus, the author also has learning differences! My mom says to tell the other moms out there that she was disturbed by the subject matter, but can attest that I loved these books. Knowing that the author related to me, and the joy she got out of seeing me read voluntarily, got her over her discomfort.
This series is about a cop dog duo that both got into an accident where the dog's body and the cop's head were both messed up, forcing them to fuse. Together, they get into a lot of trouble as they stop crime. This series is phenomenal for younger kids as they are easy, fun, silly books with a good amount of pictures. This book keeps a young reader's attention, and the font of this book makes reading with dyslexia easier. The author is the same author as Captain Underpants and has learning differences.
This series is written from the perspective of a teenager named Greg Heffley as he goes through high school. He and his friend Rowley go on lots of different adventures as they try and survive high school.
This series is about a sixth grader named Nate who believes that he is destined for greatness despite his learning disabilities. This is a great book for kids suffering from dyslexia because it shows that anyone can succeed even if they have dyslexia.
This is a very fun read about how a kid had to persevere and grow up with the help of his uncle. Over the summer, his uncle helped him become stronger, smarter, and develop perseverance by pushing him to do hard tasks. This is a great metaphor for what Dyslexics have to go through as we have to learn to persevere to learn to read, but it eventually makes us better because we develop skills that we will use our entire life.
Middle School, the Worst Years of My Life, is about a boy named Rafe Khatchadorian, trying to acclimate to the sixth grade. He struggles with bullying, problems with his principal, and his manipulative stepfather.
The Misadventures of Max Crumbly is a series of books following the diary entries of Max Crumbly, a middle schooler navigating the challenges of a new school and a school bully, Doug "Thug" Thurston.
Wonder, by R.J. Palacio, is a book about a boy named August Pullman or Auggie, a boy with Treacher Collins syndrome, which causes facial deformities. He goes to a normal school for the first time in fifth grade. Initially, Auggie faced severe bullying due to his deformities, but he ended up making friends. While Auggie doesn't have any learning disability, this book shows how, despite your differences, you can still succeed, whether that be with making friends or doing well in school.
Serafina and the Black Cloak is a story about a 12-year-old girl named Serafina who lives at the Biltmore Estate. Serafina and her friend Braeden Vanderbilt uncover the mystery of a mysterious figure known as The Man in the Black Cloak, who is kidnapping the children visiting the estate. Serafina, using her uncanny senses, and Braeden, a fictitious member of the Vanderbilt family, team up to solve the mystery and save the missing children. While this book doesn't have any super inspiring message, I always liked the mystery in this book and loved the cool plot twists.
Author Henry Winkler is best known to adults as Arthur "Fonzie" Fonzarelli from the TV show Happy Days. In school, he had undiagnosed dyslexia and was known as an underachiever. He has grown up to be an advocate for dyslexia and authored this series about Hank Zipzer, which was inspired by his experiences in school.
Rick Riordan was one of my favorite authors growing up. His books are always exciting, fast-paced, and easy to read, making them perfect for anyone with dyslexia and ADHD because they keep your attention and are easy to read. Bonus, his Percy Jackson series grew out of stories he told to his dyslexic child!
Percy Jackson is a 12-year-old boy with ADHD and dyslexia who discovers he is the son of Poseidon. He’s swept into a world where Greek gods, monsters, and mythological creatures are real and still active in the modern world. Along with friends Annabeth and Grover, Percy goes on quests to save Olympus, stop the rise of the Titan Kronos, and ultimately protect the mortal world.
The Heroes of Olympus is a sequel to Percy Jackson, introducing three new demigods: Jason, Piper, and Leo. This time, however, they are children of Roman Gods. In this series, the Greek and Roman demigods must work together to stop the earth goddess Gaea from destroying the world.
Magnus Chase is a homeless teen in Boston, who dies and wakes up in the Norse afterlife. He learns that he is the son of Frey, the Norse god, and he must prevent Ragnarok (the apocalypse), with the help of his friends.
In this series, siblings Carter and Sadie Kane, descendants of ancient pharaohs, discover that Egyptian gods are real and that they are powerful magicians. They must battle gods, monsters, and spirits to stop the chaos serpent Apophis from destroying the world.
Apollo, the Greek god of the sun, is punished by Zeus and turned into a powerless human teen named Lester Papadopoulos. He must earn back his godhood by completing tasks, like restoring ancient oracles and defeating dark emperors, all while learning humility and empathy.
Another great series that you have probably heard all about and maybe even watched the movies is Harry Potter. This is an amazing book about the life of Harry Potter, a wizard. When he was little, his parents died, forcing him to go live with his aunt and uncle, who often mistreated him and heavily favored their son Dudley. When he was 11, he was introduced to the wizarding world, where he found out that he was a great hero. Throughout the books, he goes through a series of trials, all leading up to the final battle against Voldemort.
You might think Harry Potter is too hard. It is the first difficult series I read. But I was challenged to read it by my fourth-grade teacher. Third and fourth grade were powerful transition years for me, where I finally had teachers who saw me for my strengths and not just my weaknesses. The challenge the teacher began with me led to more than half of my fourth-grade class reading this series that year.
This is another great series to read similar to Harry Potter. They are all very fun dynamic fantasies with good writing and Biblical messaging, just a little bit of a harder read then Harry Potter so it is a perfect next step.
Ready Player One is a dystopian book set in the year 2045, the planet is on the brink of chaos and collapse, but people find salvation in the OASIS: a virtual reality world where anything is possible. When the creator of this world, James Halliday, dies, he leaves his entire fortune to the first person to discover a digital Easter egg that's hidden somewhere in the OASIS. When young Wade Watts joins the contest, he finds himself becoming an unlikely hero in a reality-bending treasure hunt through a fantastical world of mystery, discovery, and danger. To win this challenge, Wade had to overcome adversity, solve clues, and fight off bad guys in the oasis and real life. Despite all odds, he won.
Hatchet is the story of a thirteen-year-old boy named Brian Robeson, who must survive in the Canadian wilderness after a plane crash, with only a hatchet that his mother gave him. This book and any written by Gary Paulsen is a great read because it is very fast paced and attention grabbing.
The Voyage of the Frog is another classic by Gary Paulsen about how David, a fourteen-year-old boy, survives after his boat "The Frog" is caught in a storm while he is trying to spread his uncle's ashes, crashes, stranding him at sea.
The Dyslexic Advantage highlights the unique strengths and advantages associated with dyslexia and explores how individuals with dyslexia possess exceptional creativity, problem-solving skills, and the ability to think outside the box. My mom says she loves this book because it helped her understand how important it was to see me through my strengths and to focus on the strengths to help maintain my confidence. A teen I know who has dyslexia shared that reading this book helped him begin to better understand that some of his strengths come out of his dyslexia.
Dyslexia Advocate is a guide to help parents and advocates learn to navigate the public education system to secure appropriate support for children with dyslexia. It provides an explanation of dyslexia, the Individuals with Disabilities Education Act (IDEA), and how to advocate for a child's educational needs. My mom says learn the magic words - "Free and Appropriate Public Education" - what is appropriate for a child with learning differences may not be appropriate for a neurotypical child but every child is entitled to what is appropriate for them!
Why Johnny Can't Read was originally published in 1955 and advocates for the use of phonics in teaching reading. The classroom challenges identified more than seventy years ago still exist in many classrooms. Parents can use this as a resource of what they can do at home when their child faces classroom struggles.
Proust and the Squid: The Story and Science of the Reading Brain by Maryanne Wolf explores the remarkable journey of the reading brain, from its evolutionary origins to its development in childhood and the challenges of dyslexia.
Peter Wright, who is a famous education lawyer that barely passed high school because of his learning differences, has made a career of helping train parents to be better advocates for their children. He has several books, including Special Education Law and From Emotions to Advocacy, that help parents and advocates better understand the legal landscape and help them properly advocate for their children. More information about Peter Wright is below where I share a link to his website, where all of his books can be purchased.
Suzy the Struggling Reader is another book that parents can use to help explain dyslexia to their child. The author has dyslexia and children with dyslexia and has built a career out of helping students with dyslexia succeed.
I remember reading this book with my mom when my parents were still in the process of telling me about my diagnosis. My mom tells me that she asked me what I thought of the book after we read it. I told her it was about a boy like me. This is a great book for parents to read with their kids while they are figuring out how to explain the diagnosis to them. What many parents and teachers do not know is that struggles with dyslexia can disguise understanding in math. One piece of advice my psychologist gave my parents is to always advocate for me to be in advanced math classes, even if the raw scores of standardized testing did not seem to support that.
The book "If You're So Smart, How Come You Can't Spell Mississippi?" explores the idea that some people, like the main character's father, have difficulty spelling due to dyslexia. The story highlights that while her father is a successful lawyer, he struggles with spelling, which leads Katie to learn about dyslexia and its impact on learning. This book (and "Last to Finish") are both part of the "Adventures of Everyday Geniuses" series by Barbara Esham.
This book tells a story drawn from the author's own experiences in school, because Ms. Polacco has dyslexia. Share this book with any child who needs encouragement or with any teacher has provided special encouragement to a child with a reading challenge in school and check out her book The Junkyard Wonders, which explores similar themes.
Smart but Scattered: The Revolutionary "Executive Skills" Approach to Helping Kids Reach Their Potential
A lot of kids with dyslexia also have challenges with executive functioning skills. This book helps parents identify the executive strengths and weaknesses of their kids and train them where skills are lacking.
For more book ideas, you can also visit:
13 Children's Books With Dyslexic Characters You Can't Miss - The Literacy Nest
11 children’s book authors with dyslexia
There are also tons of helpful articles and news stories about dyslexia, like this one from Psychology Today. https://www-psychologytoday-com.cdn.ampproject.org/c/s/www.psychologytoday.com/nz/blog/raising-readers-writers-and-spellers/202405/celebrating-dyslexia-as-a-special-way-of-thinking?amp
Another thing parents want to know is whether they should wait (like many public schools recommend) to identify any challenge. The science is clear - once a child is behind in reading, the earlier you intervene, the more you can do to help. This article explains more:
One question that parents ask frequently is about the different therapies available and how they can be used to support dyslexic students. This article attempts to address those questions:
Dyslexia impacts more than just reading. This article addresses some of the math challenges that are from dyslexia.
Math Difficulties Common with Dyslexia - Dyslexia | Dyslexic Advantage
Wrightslaw.com provides important information for parents advocating for their children in the public school system. It was founded by Peter Wright, who has an inspiring story.
His parents were told he was borderline mentally retarded and emotionally disturbed and that he could not learn to read or write. Pete was lucky, because his parents were strong advocates. In second grade, Pete was diagnosed with dyslexia, dysgraphia and ADHD and his parents obtained intensive Orton-Gillingham remediation for him, almost unheard of in the 50s. He struggled throughout much of school, but he went to college and law school.
Pete Wright successfully argued one of the most important education law decisions in front of the Supreme Court: Florence County School District Four v. Shannon Carter, 510 U.S. 7 (1993). The Supreme Court issued a unanimous decision for Shannon Carter, holding that if a public school defaults in its obligation to provide an appropriate education for a child and the child receives an appropriate education in a private placement, the parents are entitled to be reimbursed for the education that should have been provided by the school district.
Pete Wright now focuses his time on advocacy training and writing books. My mom (who graduated from the same law school as Peter Wright) attended one of his seminars and said it was the best continuing legal education she ever received. While it was focused on advocacy in the educational setting which helped her become a more successful advocate for me, she used the tips he provided in her day job to great success.
https://decodingdyslexianc.org/
The fight to help students with dyslexia achieve the success of which they are capable has led to numerous grassroots organizations helping parents. Decoding Dyslexia North Carolina is one of those organizations and provides great resources to help parents learn to be advocates as well as great information about resources to help support the needs of students and parents, including information about audiobooks, book recommendations and other resources.
This is a great website to help parents understand the basics of dyslexia and some of the other learning differences that may exist alongside it. I have dyslexia, dysgraphia and ADHD, and my parents used this website extensively in the early years when they were still trying to figure out what that meant.
https://www.madebydyslexia.org/
Made by Dyslexia is an organization funded by successful entrepreneur Richard Branson, a man with dyslexia. They have great resources for all ages, especially focused on dyslexia in the workplace.
https://reedcharitablefoundation.org/
Reed Charitable Foundation is another grass roots organization. It was founded by a mom who had struggled finding the resources she needed to help meet the needs of her child. They do a lot of great work in the dyslexia space, including teacher training - much of which is available virtually on their website. You can learn more about the founder in Episode 62 of the podcast Dyslexia Mom Boss.
Ep. 62 Reed Charitable Foundation with Founder Jen Knopf
https://www.thereadingleague.org/
The Reading League is focused on improved literacy in general and provides important resources about the science of reading.
Reading Is a Right | Landmark School | Landmark School
The Landmark School is a private school located in Massachusetts that serves children with learning differences. They also provide great resources about dyslexia on their website.
https://dyslexia.yale.edu/resources/parents/what-parents-can-do/suspect-dyslexia-act-early/
The Yale Center for Dyslexia and Creativity has important resources and articles to help parents and teachers.
The International Dyslexia Association compiles great information, including some incredible resources about “Dyslexia in the Classroom: What Every Teacher Needs to Know.”
https://ga.dyslexiaida.org/thinking-differently-with-kahmara/
https://leahsgoldaward.weebly.com/
I also wanted to highlight the efforts of two other teens whose work inspired my project. Both of these young women earned their Girl Scout Gold Award by compiling resources to help students and parents.
Facebook Support Groups
I also recommend searching your area for parent support groups on dyslexia. These groups, usually formed geographically, will provide encouragement and also recommendations for tutors, doctors and other therapists in your area. Georgia Ryan-Dyslexic Warrior also posts a lot of informative information on Facebook.
People/Pages to Follow on LinkedIn
Landmark Outreach
Landmark School
Darren Clark
Succeed with Dyslexia
Dyslexia Canada
Dyslexia Life Hacks
Dyslexia Training Institute
Melanie Brethour
Reed Charitable Foundation
Jennifer Knopf, founder of Reed Charitable Foundation
Made by Dyslexia
All of the pages listed above frequently post helpful information, but equally important, they make you realize that your child is not alone in this battle!
Truth About Dyslexia – Help for Adults
Truth About Dyslexia - Help For Adults
This podcast is focused on adults with dyslexia and ADHD.
Sold a Story
Sold a Story | Podcast on Spotify
This podcast explores the science of reading, information that many teachers and schools do not know.
Dyslexia Explored
This podcast shares stories of people with dyslexia at all stages of life and provides practical tips for parents of dyslexic teens.
The Dyslexia Life Hacks Show
This podcast primarily interviews successful adults with dyslexia. It provides inspiration to people with dyslexia of all ages.
Audio books are a great option for anyone who struggles to read. They allow people to get the enjoyment out of reading even if they aren't able to read yet.
Learning Ally is a great resource for audiobooks though they do have fees. Audiobooks for Dyslexia & Learning Disabilities | Learning Ally
Decoding Dyslexia North Carolina has posted an article with great information about more places to access Audio Books, along with book recommendations and other great information - https://decodingdyslexianc.org/dyslexia-books-for-kids/
Your local library may also have free access to audiobooks - ask your friendly librarian!
Make sure you always talk to your parents about any issues you may be having or anything that you think may help you. Just talk to them, they are there to help you. Keep in mind, though, that the classroom today is different from it was when they were in school. So make sure you explain in detail.
Make sure you have good relationships with your teachers so they are aware of your challenges and know what the best thing to help you is. I know it is difficult to speak up, but learning to be an advocate is a skill that you will use all your life.
While you may have to do things that you do not always want to, just know that they are making you better.
Stick with the things even if they may be hard sometimes,
Find something that you enjoy outside of school to give you confidence, take stress away, and decompress.
Ask for a retest and try getting accommodations. Use your accommodations.
Open communication with parents and teachers.
Do not believe you are "less than" because of your dyslexia. You are capable of so much! And the perseverance and work ethic that you develop because school is harder for you will help you throughout life.
DO NOT be discouraged by dyslexia. While not technically curable, there are lots of methods that can severely lessen the issue.
Try lots of methods to see what helps your child the most. Dyslexia is personal for everyone, so what works for one child may not work for another. However, make sure you give each strategy enough time (at least 4 months).
Trust your gut and push for evaluation as soon as you suspect an issue. You are entitled to ask for an evaluation from the school (request must be in writing). And those evaluations CAN happen before third grade.
Make sure you talk to your child to properly gauge progress and how they feel about the methods you are using to deal with their individual challenges.
Reach out to other people with dyslexia; it is fairly common, and you are not alone.
Educate yourself on the current research. Unfortunately, many of the educators you encounter, while most of them want to do right by your child, will not have the knowledge basis to fully serve their needs.
Make sure to form a good parent-teacher connection, try to be as understanding to the teacher as possible while still advocating for your child. A tip my mom learned from a Pete Wright seminar (www.wrightslaw.com) is to reframe the conversation when the conversation gets tense and bring it back to a place where you have common ground with the educators. She would also bring gifts - donuts to the IEP/504 meeting, nice notes throughout the year, etc. She even sent those notes and gift cards to the teachers I had the most difficulty with because it was important to maintain that line of communication.
Make sure your kid doesn't get burned out. They need an outlet that they enjoy and where they have confidence. My outlets changed over the years, but now it is the gym and powerlifting.
Rewards for progress encourage kids to try harder and slow burn out.
As a parent, when going into the meeting, have your concerns organized in a list. You may consider sharing that list with the education team in advance of the meeting.
After each meeting, document - in writing - your view of what happened in the meeting. Yes, the school does this in some form or fashion if you are providing consent to a particular action, but not all meetings result in consent.
Also, you have a voice on the education team. If you do not agree with the plan they are putting in place, you should say that. While they will tell you that you always need to sign, if your signature does not mean consent, you should indicate that - in writing - when you sign the education form.
If you can afford it, private testing provides more detailed information and potentially higher quality recommendations than you will likely get if you rely solely on a school evaluation.
When your child has a 504 (accommodations) or IEP (special education and accommodations), make sure you communicate with the teachers at the beginning of the year. While the school has an obligation to inform your child's teacher, the step you take to provide the information and establish contact with your teacher will go a long way in making sure your child's needs are met from the start of each school year. Now that I am in high school, my mom uses basically the same email every semester to any new teachers I have, establishing a line of communication and letting them know that I will advocate for myself as needed.
Understand that this is a challenging time for parents and students, so they sometimes lash out.
Be patient. Be flexible. Include the student in conferences and communicate often.
Dyslexic kids often have a hard time understanding that words can have more than one meaning, like light as in weight or light as in color.
Try to get a better understanding of what the kid is thinking and their thought processes.
Learning disabilities manifest in each student differently, so don't assume that what worked for a student with a similar diagnosis will work for another student.
Students with learning disabilities are smart, but learn in different ways. That means that their intelligence may not manifest in the ways you might expect.
Have patience, certain kids will have a really hard time learning certain things, but they will eventually understand.
Kids with dyslexia are not lazy and are often very smart. They just present differently. So that requires the educator to work harder to draw these students out.
Get trained about dyslexia. What most education programs teach is not sufficient. There are proven techniques out that help these kids succeed.
While you may think you are alone in this journey that is far from the truth their are many parents who have gone through the same thing, parents who have shared their story.
Age and Gender 16 (diagnosed at age 6); Male
Interests Gym/Weightlifting; Wrestling; Hanging out with Friends; Snowboarding; Video Games
A book you've enjoyed and why I really enjoyed reading The Kane Chronicles series, including The Red Pyramid, by Rick Riordan. This series is about siblings that come from a line of magicians who were split up after the death of their mother. Their dad was captured by an evil god, and the siblings, when reunited, had to find a way to rescue their father. I liked this series because it was fast paced and kept my attention.
Book recommendations Harry Potter; Percy Jackson; Dune
Story I have Dyslexia, Dysgraphia and ADHD. I am currently a senior in high school and am ranked first in my class. While I am successful now, it wasn’t always like this. I began kindergarten at a charter school for the intellectually gifted, and I immediately fell behind my peers academically and struggled with reading, writing and math. I did not feel intelligent when I trailed the rest of the class in academic performance. This embarrassed me and worried my parents.
Upon diagnosis, my parents enrolled me in tutoring, occupational therapy and vision therapy. My learning differences have not kept me from being successful in school. Much of this is due to my third- and fourth-grade teachers, who recognized my strengths and taught me how to overcome weaknesses, encouraging me to read more challenging books and solve more complex math problems.
After fourth grade, I began to appreciate my accommodations and how my dyslexia, dysgraphia and ADHD were impacting my work. My learning differences affect my working memory and processing speed and often cause me to misread and miswrite things, including on tests and quizzes, causing me to get the answer wrong even when I know the correct answer. Since what I do on paper never reflects the understanding in my head, I have good grades, but not perfect grades. Over time, I have realized my dyslexia and ADHD come with strengths, which help me view things with a unique and more holistic perspective and give me a knack for problem-solving.
Going from being almost held back in first grade to being recognized as the most improved and best student in fifth grade, I have learned that with diligence and determination, I can soar past my peers. Despite the challenges posed by school, I stay motivated because I know that the strengths that come with my differences will help me succeed in whatever career I choose.
Encouraging advice To help reach my goals, I need areas where I have a positive mental image of myself. For me, that place is the gym. While I have never been great at any sport and school can be challenging, I have always succeeded in the gym. From the start, I was stronger than all my friends. The gym helps me stay positive, relieve stress and maintain a positive self-image even when other aspects of my life are challenging. All these things have taught me the importance of hard work and perseverance, but also that it is essential to take time to do things you enjoy to stay productive.
What has helped you succeed? I have found that the most important tools that have helped me succeed are my accommodations, which include being allowed to type my notes and assignments, having extra time and not having to read aloud. Another important thing was learning how to communicate with my parents and teachers to make sure that my accommodations were being properly implemented. The last thing that helped me was learning how to advocate for myself so that I could explain to my parents and teachers what I needed.
Tips for dealing with dyslexia As a successful student with dyslexia, I have observed that when you struggle to read sentences that you need to find books that you actually enjoy to practice reading so, when you do get tripped up, the joy you get out of reading the book is more than the frustration you get from reading. I have also found that setting breakpoints based on how much work you do helps you get the work done faster so you get to have fun faster.
The older I have gotten, the more I realize that I learn visually. So I learn information through watching videos and listening and not just through reading. This might not work for everyone, but pay attention to yourself - you may learn very successfully in a way that is non-traditional. I also realize how important it is to have a proofreader and, after I get my teachers’ permission, to use tools like Grammarly. That last tip (proofread) actually is one everyone should follow, even if they don’t have dyslexia.
I do not fall in any of the categories you have listed here. I would like to tell you about my own journey. As a child, I always struggled with reading and math. I was being tutored every summer in grade school and was usually regarded as either "dumb" or "lazy." In high school, I had the choice of being either one of the slowest kids in the "fast track," or one of the smartest kids in the "slow track;'" As a result, I was ill-prepared for college. With time, however, I learned that I had a visual acuity for pattern recognition that was useful for the study of art history, and I had developed a strong interest in non-Western art and the study of non-Western cultures. It was not until late in my Bachelor's studies that I first heard the term "dyslexia."
After graduating with a disappointing GPA, I struggled to find my way into graduate school. As my education progressed, I continued to discover alternative ways of learning, and my interest in the study of non-Western cultures grew. It took me almost a decade to conclude my MA in Asian and Pacific Art History and Religion.
Eventually, I began teaching at the community college level, and I believe that my dyslexia made me sympathetic to students who required alternative learning experiences. Teaching led to my earning a Master of Fine Arts in Sculpture, and I developed a career teaching both art history and an array of studio art classes. I have also established a name for myself as a sculptor.
Name and Location Noelle, North Carolina
Child, Age Now and at Diagnosis Son, Diagnosed at age 6, currently 16 (junior in high school)
Reaction at Diagnosis When my son was first diagnosed, I cried. I remember feeling fear, because of my poor and incorrect understanding of learning differences, and overwhelming sadness that my child would not experience the joy of reading and the knowledge that comes from the written word. I have this photo, taken a few years after diagnosis, where he is walking and reading a book. I cry when I see it—he learned to read.
Best Early Advice The psychologist who diagnosed Hugh told us that our biggest challenge would be maintaining his self-esteem. She encouraged us to find outlets where he could succeed because school would be difficult, especially in the early years. This was crucial to restoring his self-esteem, which was damaged by the early years of school.
Learning Disability Book Recommendation I give out copies of The Dyslexic Advantage. When I learned to view my child through his strengths and not by his weaknesses, I could better support him. It helped me find the words to talk to his educators in a way that helped them see him for his strengths and not for the extra work he presented to them.
Recommendation on Helping Your Child Be Successful My son's third-grade teacher recommended that she have a "hand-off" meeting with his fourth-grade teacher. His third-grade teacher gave an honest assessment of his strengths and weaknesses and strategies she used to help him succeed, and his fourth-grade teacher bounced her ideas of how to help him find early success in fourth grade off of me and his third-grade teacher. Third grade was his best year, and fourth grade far exceeded that year. Those two teachers are some of the best he has ever had.
As a parent, you need to educate yourself. Read the literature, follow the blogs, join the Facebook groups, and understand the legal language (like 'free and appropriate public education'). Recognize that you are an integral part of your child's education team, with the right to agree or disagree. Understand the rules regarding when re-evaluation is and is not required. This knowledge is your most powerful tool, empowering you to make informed decisions for your child's education.
Probably one of the best things I ever did was to attend a Peter Wright advocacy seminar - www.wrightslaw.com. I got so much better at IEP and 504 meetings and just talking to educators after that. I am a lawyer, and the tips he provided made me better at my day job but demonstratively more effective of my most important job of being an advocate for my child.
Hard Truth Some of the most critical interventions for my son were provided outside of school (specialized tutors). You cannot be a passive player in your child's fight for literacy. Early intervention is key, and parents must take the first step. You will have to instill discipline in your child and make them do things (learning-wise) that they might not want to do. We did a lot of tutoring outside of school, along with some other therapies (including the controversial vision therapy). It required the sacrifice of time and money. It helped my child learn early on that doing difficult things yields results, and I can see the bounty from those lessons in most of his activities today. But the early years were rough. It's important to remember that perseverance in the face of challenges is crucial to your child's success.
Recommendations on Approaching Meetings with the School I carried a 3" binder with materials, including my child's testing and IEPs, and helpful information about education law. I would have it with me in the meeting, available to reference (with anything I expected to reference readily available on one or two pages of notes I had out). Once, I was unhappy with the school's plan because I did not believe it was appropriate. I withheld consent because I did not want to waste my child's or the school's time with an ineffective plan. That act of withholding consent changed the plan offered. We wrote in the plan that it would be reviewed (if needed) after three months. I followed up with his EC teacher for the review, and she reported they now understood why what we had requested was appropriate. Many kids with learning differences have above-average intelligence, so the "one size fits all" plan your child's school prefers may not be appropriate. Your child may need something individualized to ensure they receive an appropriate education. Knowledge makes you more equipped to advocate for your child's needs.
You will have challenging moments with educators, and you will discover that some may appear not to have your child's best interest at heart. You have to find a way, when those conversations get tough, to reframe and get the conversation back on an upbeat track where you establish that his education team has a common goal of making sure your child gets a "free and appropriate public education" (FAPE). You will have to say "thank you" a lot, sometimes even to an educator you may not like because of how they have dealt with your child, but that is part of the reframe.
Finally, as your child grows older, in middle school or early high school, invite them to the meetings. If you have equipped your child with the right language and helped them learn how to articulate the impact of their learning needs and how the classroom does or does not meet those needs, they will become the most valuable person in the room. The communication and advocacy skills they develop will not only improve their IEP/504 plans but will also be skills they can use throughout their lives. These skills will empower them to advocate for themselves in various situations, making their future brighter.
Important Early Strategies We realized that my son could demonstrate mastery when answering questions orally, whether math or comprehension. So we pushed for oral testing when he did poorly on a written assignment. We also informally checked his knowledge/comprehension at home with questions delivered orally; because we were confident with his mastery, we were more inclined to push for the accommodation. We realized that he needed less information on a page because his eye tracking was poor. With less information, there was less chance his eyes would “jump” and misread the information. This could mean taking an assignment with twelve math problems on one page and instead putting the same number of problems on six sheets of paper, or making the font of written text bigger with more spacing.
It is also important to realize that the standardized reading testing used in schools may not be appropriate for a dyslexic student. Your child’s comprehension may be far beyond their phonemic capacity. As such, books should be chosen by interest and not by “reading level.” Books at the lower reading level are boring to many kids. If reading doesn’t interest them, it is hard for them to improve.
Thoughts on Testing If you can afford it, I highly recommend private testing. Owning the report gives you better access to the provider with questions and follow-up. We recently tested our son again to ensure he has accommodations for college and AP testing, and the new information about what his strengths and weaknesses are today has already helped.
Encouragement Sometimes, the most challenging things we do are ultimately the most rewarding. Make a plan, adjust your strategy, and go into it knowing that the payoff may not come for a long time. My son's journey is a testament to this. His incredible perseverance, discipline, and work ethic, developed over ten years, are the result of those early struggles in elementary school. Those difficult times are now part of the fuel that drives his success. You, as a parent, play a crucial role in your child’s success. Figure out where your child’s strengths lie and help them play to those strengths while supporting their weaknesses. You will also grow in this process. I cried when my son was diagnosed because I didn’t know then how much personal growth we would all get out of his journey. Now, I see the long-term benefits of perseverance, and I am full of satisfaction about the young man he has become.
Final Thoughts Listen to your child. The challenges change over the years. Initially, we focused a lot on dyslexia and making sure he learned to read. While I put in place strategies to help with ADHD and executive functioning skills, I focused hard on literacy. When his reading skills improved, we shifted to focus more on dysgraphia and ADHD. Today, many of his accommodations are tied to his needs from those challenges. Listening to him shaped the shift in his accommodations, and his recent testing validated what he had been saying.
You cannot fill a gap or catch a student up to grade level overnight. Steady and consistent work over time will show growth that the student and teacher desire. Do not worry about how far behind the student may be; focus on the growth you are seeing in the skills you are working on with the student. Do not rush through prerequisite skills to try to catch students up. A shaky foundation will never hold up, and the "on grade level skills" will not hold up on that foundation.
Don't let a student's dyslexia diagnosis become a crutch or excuse. Learn about some of the dyslexics who have become highly successful in their fields, and use them to inspire. Einstein, Spielberg, and even Agatha Christie (a famous novelist), were all dyslexic. If they can do it, so can you.
State of Dyslexia | Dyslexia Policies in the United States
The National Center on Improving Literacy has compiled a resource that will help you easily understand the law in your state applicable to dyslexia and literacy instruction. Thanks to the advocacy of parents and grassroots organizers, the law is evolving to serve students with dyslexia better. Changing the law is not the end of the story. The improved laws must be effectively implemented, and actual classroom instruction must improve. All of that will only happen with increased awareness about what dyslexia is and what students with dyslexia are capable of.