Online Resources
Online Resources:
There is a lot of information on the internet about Down syndrome, and not all the information is accurate or evidence-based. Charlie's Clinic recommends the following websites:
A wonderful resource for new parents, with many subgroups for kids with different medical needs
Https://www.dsdiagnosisnetwork.org/
NDSS: http://www.ndss.org/
Official website of the National Down Syndrome Society. Lots of great resources
Another wonderful resource. They also organize an annual conference for parents and professionals
Learn about the annual convention here
https://www.dseinternational.org/en-us/
Excellent resource on education and learning
https://www.globaldownsyndrome.org/
An organization focused on fundraising and research
An online platform that matches parents of kids with special needs with other parents going through similar journeys, for individualized support
The AbleFinder App is a free social network for special needs parents. With filters for personal interests, location, and the age-group and diagnosis of your child, AbleFinder helps you to meet, chat, and learn from like-minded parents on similar journeys.
Social media account and hashtags
It is important to have community, whether locally or online. Social media can be a source of community too!
There are many hashtags on Instagram that you can follow - families share moments of their very normal lives with their children with Down syndrome
#theluckyfew
#downsyndromelove
#downsyndromeawareness
#congratulationsproject