Embedded Files
AARP Family Caregiving Guides
AARP Family Caregiving Guides
Downloadable PDF guidebooks, including ones in Spanish and Chinese, and ones devoted to the special circumstances of Asian Americans and Pacific Islanders; veterans, service members and families; and caregivers in the LGBTQ community.
American Geriatrics Society’s Health in Aging Foundation
American Geriatrics Society’s Health in Aging Foundation
Aging & Health Topics (directory)
This directory contains links to information on more than 60 general health topics, organized alphabetically. Some of the topics of particular interest to caregivers include entries on Assisted Living, Caregiver Health, Community Based Care, Dementia, Driving Safety, End of Life Care, Guardianship, Home Care, and Nursing Homes
This set of resources offers ideas to help caregivers reduce stress and care for themselves as part of providing effective care for their loved ones.
Administration for Community LivinG
Administration for Community LivinG
(PART OF FEDERAL DEPARTMENT OF HEALTH AND HUMAN SERVICES)
This federal agency describes its purpose as “Advancing independence, integration, and inclusion throughout life ... ACL was created around the fundamental principle that older adults and people of all ages with disabilities should be able to live where they choose, with the people they choose, and with the ability to participate fully in their communities.”
More specific sections of it includes are:
Finding Local Services for long-term care (searchable directory)
National Family Caregiver Support Program (directory of links)
AssistedLiving.org
AssistedLiving.org
Discussion of what assisted living entails, along with a search tool to find facilities that offer assisted living services.
Caregiver Action Network
Caregiver Action Network
The Caregiver Action Network describes itself as “a non-profit organization providing education, peer support, and resources to family caregivers.” Its main page linked here offers links to a toolkit of resources on various topics (some presented as videos) and also a community forum for posting questions to be answered by others who have faced similar issues.
Caregiver Decision Guide
Caregiver Decision Guide
Video intro plus online resources that guide family caregivers through planning to care for family members at home for as long as possible. Developed by researchers at the University of British Columbia in Canada.
CENTERS FOR DISEASE CONTROL
Eldercare Locator
Eldercare Locator
Geographic search tool from the federal Administration for Community Living’s Administration on Aging that reports back information about services for older adults and their families based on searches by ZIP code or city/state.
Family Caregiver Alliance
Family Caregiver Alliance
This set of resources has links to more than 500 entries, which can be sorted and filtered by topic, resource type (e.g., checklists, videos, short text entries, longer text articles), and other criteria. Some resources are available in languages other than English, including Spanish, Chinese, Korean, Vietnamese, and Tagalog.
Savvy Caregiver Program. Community-based training program (12 hours, in 2-hour sessions for 6 weeks) designed to help caregivers of those with dementia fill their role more effectively. Email FCA at info@savvycaregiver.com for a times and locations of programs being offered. Organizations that wish to present the program can learn more at https://savvycaregiver.com/newusers/
Home Alone Alliance
Home Alone Alliance
AARP initiative has training videos for caregivers and links to other resources
Medicaid Home Care Assistance
Medicaid Home Care Assistance
This page from the Medicaid website describes how caregiver of loved ones may find it possible to be paid to provide this service under a Medicaid-funded consumer directed personal care assistance program. “Consumer directed” means the care recipient, to an extent, can choose his / her caregiver including, in some cases, friends and relatives.
Medicare ASSISTANCE
Medicare ASSISTANCE
This online site from the federal Medicare program allows zip-code based searches for various types of health providers for older adults, including doctors, hospitals, nursing homes, home health services, hospice, rehab facilities, and others.
State Health Insurance Assistance Program site
Has advice and counselors to help in navigating Medicare
National Alliance for Caregiving
National Alliance for Caregiving
General caregiving resource guide
The National Alliance for Caregiving partners with other caregiving associations and groups to provide additional resources to help family caregivers address and cope with the challenges of caring for a loved one.
National Consumer Voice for Quality Long-Term Care
National Consumer Voice for Quality Long-Term Care
Resources for Long-Term Care Recipients
Resources For Family Member Caregivers
These pages are from the National Consumer Voice for Quality Long-Term Care, an advocacy organization that provides information and tools for consumers, families, caregivers, advocates and ombudsmen to help ensure quality care for the individual.
Next Step in Care (United Hospital Fund)
Next Step in Care (United Hospital Fund)
Set of resource links including checklists and videos from the United Hospital Fund's Next Step in Care program. Some resources are available in languages other than English, including Spanish, Chinese, and Russian.
tHE CONVERSATION PROJECT
tHE CONVERSATION PROJECT
Co-founded by Pulitzer Prize winning journalist and author Ellen Goodman, this organization seeks to promote end-of-life conversations. Website has information about that topic including downloadable PDF guidebooks.
Wayne State University gerontology school resources
Wayne State University gerontology school resources
Both of these sets of resources from Wayne State University in Detroit have a general focus rather than solely on Michigan.
VeryWellHealth
VeryWellHealth
Health Care for Caregivers and Loved Ones
This set of resources from the Cleveland Clinic in Ohio has approximately 40 short articles on assorted topics related to caregiving.
VA (VETERANS ADMINISTRATION) CAREGIVER SUPPORT PROGRAM
VA (VETERANS ADMINISTRATION) CAREGIVER SUPPORT PROGRAM
US Department of Veterans Affairs Caregiver Support Programs
Resources and support for those who provide personal care services to a veteran enrolled in VA health care This includes a downloadable 5-page PDF with general resources for caregivers of veterans, and a caregivers' page with links to more than a dozen resources. Also, this downloadable fact sheet (5 page PDF) has information about the Program of General Caregiver Support Services (PGCSS) and how caregivers can participate.
© New York & Michigan Solutions Journalism Collaborative 2022
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