Action For Aidan
Booty By Brabants Virtual Workout
Want to get an amazing workout and help Action For Aidan? Join Kelly Brabants from Booty By Brabants on Instagram Live on Thursday, August 6 at 6pm!
Thank you for another amazing day!
At our last event, in 2019, we had 575 registrants and 23 sponsors.
All money raised goes to research to find a cure for Aidan and other boys with Hunter Syndrome.
There is hope... But we cannot do it without you! Please join #AidansArmy as we fight for a cure!
To date, Action For Aidan has raised over $415K for Pre-Clinical Research. This is Aidan's best hope...
Our Mission: To Cure Hunter Syndrome.
What is Action For Aidan?
Action for Aidan is a 5K trail run at Stratham Hill Park designed to raise money and awareness for Hunter Syndrome research. Action For Aidan was created by Aidan's loving parents, Jen and Tripp Carter, who are dedicated to finding a cure. Not only for their son, but for all the other boys and their families who are fighting for a cure... and for more time.
What is Hunter Syndrome?
Hunter Syndrome (MPSII) is a rare, progressive genetic disorder with approximately 2,000 boys afflicted in the world today. These boys are born lacking a critical enzyme that clears cellular waste from their bodies. Hunter Syndrome, in its severe form, causes progressive loss of physical and cognitive functions, slowly and painfully robbing children of their ability to walk, talk, eat, and recognize loved ones. In the severe form of Hunter Syndrome, most children die in their early teens. Currently, the only approved treatment is a weekly 4-hour infusion that can slow some of the physical symptoms, but it does not prevent the cognitive decline and more aggressive symptoms of this relentless disease. Nor is it a cure. The infusions cost $400,000 a year, per patient.
MPS & ME
Interested in learning about Hunter Syndrome or sharing more information with your family and community? This book written by Aidan's Mom, Dr. Jennifer Carter, is a wonderful story that describes Hunter Syndrome so that anyone can understand! All funds from purchases will support research for a cure!